Women with Disabilities: Barriers and Facilitators to Accessing ...

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WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY, CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinRodgersandLipscombe(2005),Rodgers etal (2006)Sheerin(1998b)Simpson etal (2006)Stehlik(2001)U.K.IrelandNorthernIreland.AustraliaTo explorewomen’sexperiences ofmenstruation andits managementTo review theliterature onparenting bywomen with IDTo examine thefeelings, attitudesand experiencesof people with IDregarding sex andsexualityTo examine thereality ofinstitutionalviolence towardswomen withdisabilities.Crosssectionalpostalquestionnairesurvey.Literaturereview.Mixedmethods.Historicalresearch454 questionnairesfrom women withintellectual disabilitiesaged between 14 and55.Literature review.>500 peopleincluding personswith intellectualdisabilities, familycarers, frontline staffand professionals.Menstruation is problematic for women withintellectual disabilities. Much support isgiven by carers but more formal educationand support is needed.The lack of planning for prospectivemothers with intellectual disabilities.People with intellectual disabilities often areconsidered unable to make decisions abouttheir sexuality and reproductive health.Such decisions are frequently made byfamily carers irrespective of the wishes ofthe persons with intellectual disability.The effect of eugenics andinstitutionalisation on women, focusingspecifically on motherhood.193
WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY, CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinTable 9: Studies describing facilitators to accessing services among women with intellectual disabilitiesAuthor(s) &YearBroughton &Thomson(2000)Budd &Greenspan(1985)Governmentof Ireland(2005)Mayes et al(2008)McConnellet al (2008)Simpson etal (2006)Tarleton andWard (2007)Country Aim Methodology PopulationGroup/SampleSizeFacilitators to accessing servicesU.K. See Table 11 See Table 11 See Table 11 Prolonged preparation; improvedcommunication; the giving of information;U.S.A.The effectivenessof training parentswith IDQuantitativesurvey.Ireland Legal statute. Not a researchstudy.AustraliaTo describe theexperience ofbecoming amother for womenwith intellectualdisabilities.Phenomenology20professionalsinvolved inparent-training.Not a researchstudy.17 expectantmothers withintellectualdisabilities.support for the carers.Early intervention in childcare isassociated with improved parentaloutcomes.Sets out the right of persons withdisabilities to having an independentassessment of their needs carried out.Expectant mothers with intellectualdisabilities seek out support from keyindividuals and develop their ownnetworks.Australia See Table 11 See Table 11 See Table 11 The use of extended consultation times,communication aids and audio-taping ofconsultations may improve A/N care.NorthernIreland.U.K.See Table 11 See Table 11 See Table 11 People with ID can make decisions aboutsexuality and reproductive health if propereducation is given to them and theircarers.To identifysupportivestructures forparents with IDCohort study30 parents withintellectualdisabilities.Access to supports that are provided inan integrated manner leads to improvedparenting outcomes.194
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University of DublinTrinity College
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