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INSPIRATION<br />

A dIFFErENT rOAd TO THEIr drEAMS<br />

Patrick John and Patrick Henry Hughes<br />

“Pregnant” and “expecting” are synonymous terms for a reason. Expectations are a natural part of childbirth. Like<br />

all expectant parents, Patrick John and Patricia Hughes wanted their first-born child to have all the opportunities for<br />

success and happiness that any child would have.<br />

When their son was born without eyes and a tightening of the limbs that made straightening his arms impossible—and<br />

would make him reliant on a wheelchair for mobility—it was devastating. Suddenly they found themselves having to<br />

redefine their expectations and dreams for their little son. In the weeks and months after his birth, Patrick John said he<br />

and Patricia buried dream after dream as they cried themselves to sleep each night wondering, “what next?”<br />

“As scary as the things we knew about our son were, even scarier were the things we didn’t know,” Patrick John said.<br />

“How would he develop cognitively and what else would go wrong in the coming weeks and months?<br />

The Hughes weren’t even sure how long their son would live.<br />

“My wife and I started to develop a new set of goals and dreams for Patrick, sometimes just<br />

small ones like getting him to smile and take his food,” Patrick John said. “We readjusted<br />

our lives, our goals, and what our expectations were. We still held out hope for the greatest<br />

things that could happen for our son.”<br />

In the years since, that hope was fulfilled in ways they could barely conceive of. Patrick<br />

Henry showed a natural affinity for music and could pluck out tunes on the piano by ear<br />

by the time he was two.<br />

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