Soins maternels intensifs (Maternal Intensive Care) en Belgique - KCE

KCE Reports 94 Maternal Intensive Care in Belgium 33
4 CONSTRUCTION OF THE DATABASE AND
DATASET ANALYSIS
4.1 METHODOLOGY AND DATA
4.1.1 Available federal and regional data
The R.D. of 1996 (legal basis of the MIC-services) chapter IV art. 16 states: “The MICservices
have to record principal diagnosis that causes the admission in the MIC-service.
[….]The MIC-services have to provide annual statistics related to the medical
conditions (principal diagnosis) that cause the admission in the MIC-service, following
the instructions of the Minister who has the agreement of the hospitals in his
attributions….” However, no report was published since 2001.
Some data on the MIC-activity in Belgium can however more indirectly be obtained
from the following sources:
• IMA/AIM: centralizes information on all health care reimbursed by
the 7 social security insurance companies (sickness funds);
• MKG/RCM: all hospitals register their activity by the means of ICD-9-
CM codification. This data is sent to the ministry of health and is used
to calculate the hospital financing;
Reports were also published by regions :
• SPE: edits an annual report. This publication is based on the data of all
70 maternity clinics within the Flemish region (and the University
Hospital Brussels). Registered parameters are: parity, caesarean
section in previous deliveries, hypertension in pregnancy, diabetes,
HIV, multiple pregnancies, gestational age, position of the baby,
induction of labour, epidural analgesia, group B Streptococcus infection
(+ prophylaxis), date and time of birth, mode of delivery, episiotomy,
indication for caesarean section, birth weight, sex, Apgar (at 1 & 5
minutes), ventilation of the baby, congenital malformation, transfer to
N* or NIC-service, stillbirth, early neonatal death (+ cause), maternal
morbidity and maternal mortality. Unfortunately the information on
maternal morbidity is not specific and detailed enough to meet our
research goals;
• Observatoire Bruxellois de la Santé et du Social/
Observatorium voor gezondheid en welzijn Brussel: published a
report in 2007 on perinatal health indicators for the region of Brussels
between 1998 and 2004. However, the information provided is not
detailed.
Hence, as there is no systematic uniform reporting of obstetrical data available for the
entire country, we aimed to develop a new database that compiles all available data on
MIC-activities in Belgium as registered by the Social Health Insurance companies and by
the FPS (through MKG/RCM).
4.2 CONSTRUCTION OF THE DATABASE
4.2.1 Ethics and privacy
The ethical approval was given by the Gent university hospital ethic commitee on April
3rd, 2007 (Belgian registration number: B67020071969). The authorisation to use
private patient information was also obtained from the “Commission Vie Privée de la
Banque Carrefour de la Sécurité Sociale” on March 6 th , 2007.