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Final Report (all chapters)

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the creation of embryos solely for research would encounter much fiercer opposition than federal<br />

funding for stem cell research conducted on excess embryos.<br />

8.6 Genetic Engineering<br />

An area of scientific research that has received considerable attention by polling<br />

organizations is what is loosely referred to as “genetic engineering.” This term is not always<br />

well-defined, but the survey questions usu<strong>all</strong>y are worded well enough to <strong>all</strong>ow a systematic<br />

evaluation of public sentiments on this issue. Attitudes toward human genetic engineering<br />

provide an excellent opportunity to verify whether the public distinguishes between therapeutic<br />

and enhancing applications of biomedical research. In chapter 3, we suggested that this<br />

distinction should be included as one of the main guiding ethical principles in any enabling<br />

legislation. Whether the general public believes that this distinction is meaningful is therefore of<br />

considerable import to our discussion.<br />

We have identified 17 survey questions pertaining to genetic engineering for the years 1993,<br />

1994, 1997, 1998, 2002, and 2003. 11 In these questions, pollsters took this term to mean a<br />

technology that would <strong>all</strong>ow prospective parents to select specific human characteristics, usu<strong>all</strong>y<br />

higher traits such as intelligence and artistic talent but also height, hair, and eye color. Scientists<br />

in this context speak of inheritable genetic modifications. That these options today are available<br />

only in a very limited sense or not at <strong>all</strong> is rarely mentioned.<br />

An interesting result emerging from this data is that the public has begun only relatively<br />

recently to distinguish between therapeutic and enhancing applications of genetic engineering.<br />

For example, a 1993 Time/CNN poll found that 52 percent of respondents “disapproved” of<br />

screening embryos for inherited abnormalities (107). A year later, 67 percent of respondents to a<br />

CBS News poll thought that “to make a ‘test-tube’ baby that is guaranteed to be free of certain<br />

genetic diseases” was “going too far,” while only 26 percent thought it was a “good thing” (160).<br />

A few years later, in 2003, a Virginia Commonwealth University survey produced a similar<br />

result, with 54 percent of respondents believing that “changing a baby’s genetic characteristics to<br />

reduce the risk of serious diseases” is “taking medical advances to far,” while a relatively low 41<br />

percent thought that it was an “appropriate use” of this technology (105).<br />

The VCU result is somewhat of an outlier, however. It appears that the general public<br />

already had begun to distinguish between medical and enhancing applications of screening<br />

technologies. Asked by a Time/CNN poll in 1998 whether they would choose to “rule out a<br />

genetic<strong>all</strong>y transmitted fatal or crippling disease,” two-thirds of respondents declared that they<br />

would (162). The same survey found that a whopping 88 percent rejected sex selection,<br />

presumably for non-therapeutic uses (164), 86 percent would not choose height or weight (165),<br />

and 89 percent would also not choose hair or eye color (166).<br />

11<br />

All survey questions and corresponding data are available in Appendix N: Genetic Engineering.<br />

218

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