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3.6 Bibliography Baruch, Susannah, Audrey Huang, Daryl Pritchard, Andrea Kalfoglou, Gail Javitt, Rick Borchelt, Joan Scott, and Kathy Hudson. "Human Germline Genetic Modification: Issues and Options for Policymakers." Washington, D.C.: Genetics and Public Policy Center, 2005. President’s Council on Bioethics. Beyond Therapy: Biotechnology and the Pursuit of Happiness Washington, D.C.: Government Printing Office, 2003. Spar, Debora L. The Baby Business: How Money, Science, and Politics Drive the Commerce of Conception. Boston, MA: Harvard Business School Press, 2006. Spriggs, M. "Lesbian Couple Create a Child Who Is Deaf Like Them." Journal of Medical Ethics 28 (2002): 283. 73
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Beyond Bioethics: A Proposal for Mo
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(ARTs) as well as laboratory resear
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issues raised by new biotechnologie
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human and animals cells, tissues, a
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(CLIA) of 1988 and, more importantl
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the activities of both private and
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themselves whether or not to eat fo
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5.5 Creating a New Regulatory Insti
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egarding reproductive biomedicine t
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to represent constituencies that ar
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“Deliberative panels,” the term
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Page 27 and 28: outer limits of the right to privac
Page 30: About the Authors Francis Fukuyama
Page 33 and 34: 1.1 THE CHALLENGE OF NEW BIOTECHNOL
Page 35 and 36: 7.1 TRADITIONAL REPRODUCTIVE TECHNO
Page 37 and 38: Shortness as a Psychological and So
Page 40 and 41: 1 Introduction This report presents
Page 42 and 43: them only on the basis of safety an
Page 44 and 45: esearch, and clinical and medical p
Page 46 and 47: Congress’ powers over scientific
Page 48 and 49: of newborns; destruction of an embr
Page 50: 1.6 Bibliography Evans, John H. Pla
Page 53 and 54: endogenous growth hormone secretion
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Page 57 and 58: proposed by Eli Lilly - a rather su
Page 59 and 60: Committee tended, predictably, to r
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Page 64: 2.5 Bibliography American Academy o
Page 67 and 68: • Limits on the commercialization
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Page 73 and 74: We recognize that for some people,
Page 78 and 79: 4 New Frontiers of Reproductive Sci
Page 80 and 81: 4.2 Standard Reproductive Technique
Page 82 and 83: United States. According to a 2002
Page 84 and 85: treatment surfaces, it is usually a
Page 86 and 87: inherited foreign DNA is minuscule,
Page 88 and 89: the institution of the family, as i
Page 90 and 91: almost without saying. Children bor
Page 92 and 93: ecent review of the scientific lite
Page 94 and 95: Aware of the controversial nature o
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Page 98 and 99: eproductive medicine (See chapter 6
Page 100 and 101: this argument implies that there is
Page 102 and 103: cellular tissue compatible with the
Page 104 and 105: exclusively for the purpose it was
Page 106 and 107: 4.5.3 Making Eggs After twenty year
Page 108 and 109: As for many other medical technolog
Page 110 and 111: Several scientists expressed seriou
Page 112 and 113: 4.6 Bibliography Abboud, Leila. "FD
Page 114 and 115: Derbyshire, David. Foetuses Had Thr
Page 116 and 117: Pilcher, Helen R. Could We Defeat t
Page 118 and 119: Wade, Nicholas. "Is the World Ready
Page 120 and 121: 5 The Current Legal and Regulatory
Page 122 and 123: on a clinic-by-clinic basis could b
Page 124 and 125: eligibility” rule, and a “good
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and enforcement difficulties can pa
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considers the scope and depth of th
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and/or any organs derived from huma
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D.C., since 2001, the Congress has
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ureaucratic. As we discuss in more
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12 days old, as well as safeguards
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conducting targeted inspections of
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countries have imposed strict limit
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As for other programs of self-regul
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and dialogue among all relevant ind
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justifiable is the assumption that
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5.4 Bibliography Ahmed, Amer S. "Th
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Malinowski, Michael J., and Robin J
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6 International Legislative and Reg
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Health Ministry, and sets aside fun
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allowing the cryopreservation of oo
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that the cloned embryo have an iden
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derived from embryos created before
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RIHEA Sections 20 through 28 govern
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guaranteeing access to procreative
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progress over time may provide new
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whereas in Britain they must be ren
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three instead of the usual five yea
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address ethical controversies - the
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embryos, 78 the act regulates the c
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This provision has important conseq
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Schedule 2, Article 1 enumerates th
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decision by the licensing committee
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among Scandinavian countries; Swede
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6.6 Bibliography Caulfield, Timothy
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7 Constitutional Constraints? 7.1 T
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are likely to limit the number of r
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that has been denied access to pre-
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deeply rooted in this Nation’s hi
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engage in sodomy […].” 23 By a
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to bear or beget a child.”). 29 L
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The emphasis placed by the Court on
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Selecting “freedom of intimate as
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contribute to shaping individuality
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year of age or younger living in a
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information do not provide an adequ
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7.5 Bibliography Ackerman, Bruce. "
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8 Public Sentiments Toward New Repr
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outweighed” the harm. By contrast
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thought that cloning human beings w
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Over the last few years, organized
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esearch as desirable. Generic expre
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To the extent possible, we have agg
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Therapeutic and enhancing applicati
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clear” had remained at 34 percent
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significant majority of Americans c
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some detail in chapter 10.1 Here, w
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8.9 Bibliography Annas, George J. "
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9 Possible Societal Responses In th
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Neither Zavos and Antinori nor the
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present case there is any specific
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disciplining tool. Furthermore, by
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mechanisms of information monitorin
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consequences brought about by ill-i
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harmed for the greater good of the
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9.5 Bibliography Adamson, David. "R
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10 Correcting Political and Regulat
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is competitive - as long as the mar
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moment of conception, a new being e
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contributing factor is strategic be
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provides considerable ammunition to
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submit public comments, it is usual
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a fairly limited spectrum of the po
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that medical personnel often encour
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affected by a negative decision. In
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consultations. 36 These doubts are
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ioethical dilemma, the credibility
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concerned about their public image.
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level, where bureaucratic authority
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method of choice at all levels of g
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and lay out its main elements. We t
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There is also some evidence that on
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10.9 Public Participation at the Fe
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which only business and developers
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this view of politics, there is no
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Superfund Community Involvement Too
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more deliberative CAGs may produce
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10.10 Bibliography Ackerman, Stark.
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Harvey, John C. Distinctly Human: T
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Schicktanz, Silke, and Jörg Nauman
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11 Independent Agencies 11.1 Why an
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inefficiency, neglect of duty, or m
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capture than executive agencies pla
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does little to directly affect the
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that independent commissions tend t
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eflection of the committee size as
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should not be taken to suggest that
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then an equal number of representat
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or individuals who have been select
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How should these individuals be ide
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11.3 Bibliography Bainbridge, Steph
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12 Designing Mechanisms of Public C
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public consultation is immune to th
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public consultation is modest, and
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proposing here. More than 130 indiv
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underlying motives informing opposi
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administrative record and form the
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12.4 Bibliography Barber, Benjamin
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13 Implementation Issues Consistent
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tracking and monitoring system woul
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that he had falsified some of the d
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information is stored in a database
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Failure to acknowledge this fact, s
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assessment of possible health and s
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many procedures the industry regard
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likely to meet with fierce resistan
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of oversight as laid out in this re
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collusion between inspectors and in
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Consider first the scope of the HFE
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There is some evidence that the bio
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13.8 Bibliography Afsah, Shakeb, an
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Schneider, Eric C., and Arnold M. E
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