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10.10 Bibliography Ackerman, Stark. "Observations on the Transformation of the Forest Service: The Effects of NEPA on Forest Service Decision Making." Environmental Law 20 (1990): 703-34. Applegate, John S. "Beyond the Usual Suspects: The Use of Citizens Advisory Boards in Environmental Decisionmaking." Indiana Law Journal 73 (1998): 901-57. Beauchamp, Tom L. "Reply to Strong on Principlism and Casuistry." Journal of Medicine and Philosophy 25, no. 3 (2000): 342-47. Been, Vicki. "What's Fairness Got to Do with It? Environmental Justice and the Siting of Loc<strong>all</strong>y Undesirable Land Uses." Cornell Law Review 78 (1993): 1001-83. Beierle, Thomas C. "The Quality of Stakeholder-Based Decisions: Lessons from the Case Study Record." Washington, D.C.: Resources for the Future, 2000. Bioethics, President's Council on. Applications of Human Stem Cells in Research and Medicine 2003 [cited October 3, 2005]. Available from http://www.bioethics.gov/background/sc_application.html. Blumm, Michael C. "The National Environmental Policy Act at Twenty: A Preface." Environmental Law 20 (1990): 447-83. Bradbury, Judith A., and Kristi M. Branch. "An Evaluation of the Effectiveness of Local Site- Specific Advisory Boards for U.S. Department of Energy Environmental Restoration Program." Pacific Northwest National Laboratory, 1999. Bram, Adam N. "Public Participation Provisions Need Not Contribute to Environmental Injustice." Temple Political and Civil Rights Law Review 5 (1996): 145-67. Breyer, Stephen. Breaking the Vicious Circle: Toward Effective Risk Regulation. Cambridge, MA: Harvard University Press, 1993. Buchanan, James M. "Public Choice: Politics without Romance." Policy 19, no. 3 (2003): 13-18. Buchanan, James M., and Gordon Tullock. The Calculus of Consent: Logical Foundations of Constitutional Democracy. Ann Arbor: University of Michigan Press, 1962. Casey, Dion. "Agency Capture: The USDA's Struggle to Pass Food Safety Regulations." Kansas Journal of Law & Public Policy 7 (1998): 142-56. Checkoway, Barry. "The Politics of Public Hearings." Journal of Applied Behavioral Science 17, no. 4 (1981): 566-82. Cole, Richard L., and David A. Caputo. "The Public Hearing as an Effective Citizen Participation Mechanism: A Case Study of the General Revenue Sharing Program." American Political Science Review 78, no. 2 (1984): 404-16. "Community Advisory Groups: Partners in Decisions at Hazardous Waste Sites, Case Studies." Cincinnati, OH: National Service Center for Environmental Publications, 1996. Croley, Steven P. "Public Interested Regulation." Florida State University Law Review 28 (2000): 7-107. Culhane, Paul J. "NEPA's Impacts on Federal Agencies, Anticipated and Unanticipated." Environmental Law 20 (1990): 681-702. Dahrendorf, Ralf. Dopo La Democrazia. Intervista a Cura Di Antonio Polito. Roma: Laterza, 2001. Dietz, Thomas, and Robert W. Rycroft. The Risk Professionals. New York: Russell Sage Foundation, 1987. 287
Dunkerley, David, and Peter Glasner. "Empowering the Public? Citizens' Juries and the New Genetic Technologies." Critical Public Health 8, no. 3 (1998): 181-92. Dürrenberger, Gregor, Hans Kastenholz, and Jeannette Behringer. "Integrated Assessment Focus Groups: Bridging the Gap between Science and Policy?" Science and Public Policy 26, no. 5 (1999): 341-49. Ebdon, Carol. "Beyond the Public Hearing: Citizen Participation in the Local Government Budget Process." Journal of Public Budgeting, Accounting and Financial Management 14, no. 2 (2002): 273-94. Einsiedel, Edna F., and Deborah K. Eastlick. "Consensus Conferences as Deliberative Democracy." Science Communication 21, no. 4 (2000): 323-43. Elliott, Carl. "Six Problems with Pharma-Funded Bioethics." Studies in the History and Philosophy of Biological and Biomedical Sciences 35 (2004): 125-29. Elliott, Donald E. "Re-Inventing Rulemaking." Duke Law Journal 41 (1992): 1490-96. Elliott, Matthew, and Allister Heath. "The Failure of CAP Reform: A Public Choice Analysis." Economic Affairs 20, no. 2 (2000): 42-48. Erikson, Susan L. "Post-Diagnostic Abortion in Germany: Reproduction Gone Awry, Again?" Social Science & Medicine 56 (2003): 1987-2001. Evans, John H. Playing God? Human Genetic Engineering and the Rationalization of Public Bioethical Debate. Chicago, IL: University of Chicago Press, 2002. Farber, Daniel A. "Democracy and Disgust: Reflections on Public Choice." Chicago-Kent Law Review 65 (1989): 161-76. Farber, Daniel A., and Philip P. Frickey. "The Jurisprudence of Public Choice." Texas Law Review 65 (1987): 873-927. Fiorino, Daniel J. "Citizen Participation and Environmental Risk: A Survey of Institutional Mechanisms." Science, Technology and Human Values 15, no. 2 (1990): 226-43. Folk, Ellison. "Public Participation in the Superfund Cleanup Process." Ecology Law Quarterly 18 (1991): 173- 221. Funk, William F. "Regulatory Negotiation and the Subversion of the Public Interest." Duke Law Journal 46 (1997): 1351-88. Futrell, Robert. "Technical Adversarialism and Participatory Collaboration in the U.S. Chemical Weapons Disposal Program." Science, Technology and Human Values 28, no. 4 (2003): 451-82. Garrett, Elizabeth. "Interest Groups and Public Interested Regulation." Florida State University Law Review 28 (2000): 137-54. Gert, Bernard, Charles M. Culver, and K. Danner Clouser. "Common Morality Versus Specified Principlism: Reply to Richardson." Journal of Medicine and Philosophy 25, no. 3 (2000): 308-22. Golash, Carrie. FASEB Statement on Human Somatic Cell Nuclear Transplantation (SCNT) and Embryonic Stem Cells FASEB, February 12, 2004 [cited May 3, 2006]. Available from http://opa.faseb.org/pdf/nr_2x12x4_stem.pdf. Guston, David H. "Evaluating the First U.S. Consensus Conference: The Impact of the Citizens’ Panel on Telecommunications and the Future of Democracy." Science, Technology and Human Values 24, no. 4 (1999): 451-82. Gutmann, Amy, and Dennis Thompson. Democracy and Disagreement: Why Moral Conflict Cannot Be Avoided in Politics, What Should Be Done About It. Cambridge, MA: Belknap Press, 1996. 288
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Beyond Bioethics: A Proposal for Mo
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(ARTs) as well as laboratory resear
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issues raised by new biotechnologie
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human and animals cells, tissues, a
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(CLIA) of 1988 and, more importantl
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the activities of both private and
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themselves whether or not to eat fo
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5.5 Creating a New Regulatory Insti
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egarding reproductive biomedicine t
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to represent constituencies that ar
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“Deliberative panels,” the term
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participants may be able to engage
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outer limits of the right to privac
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About the Authors Francis Fukuyama
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1.1 THE CHALLENGE OF NEW BIOTECHNOL
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7.1 TRADITIONAL REPRODUCTIVE TECHNO
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Shortness as a Psychological and So
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1 Introduction This report presents
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them only on the basis of safety an
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esearch, and clinical and medical p
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Congress’ powers over scientific
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of newborns; destruction of an embr
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1.6 Bibliography Evans, John H. Pla
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endogenous growth hormone secretion
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slippery slope toward blanket uses
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proposed by Eli Lilly - a rather su
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Committee tended, predictably, to r
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coincidentally, she was also one of
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2.5 Bibliography American Academy o
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• Limits on the commercialization
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the sick and relieving the pain and
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give for opposing this practice var
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We recognize that for some people,
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3.6 Bibliography Baruch, Susannah,
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taxonomies are likely to exist. For
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that an investigator may not be abl
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ecome part of this complex transact
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These concerns are not unfounded, a
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cryopreservation a good example of
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A 2003 news story published in Popu
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episode. Reputational incentives ar
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Would you approve or disapprove if
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strong preference for a mixed famil
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controversial not because it provid
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esearch. On the other end are situa
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nucleus of a somatic cell, such as
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And we have to have some degree - a
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father. The experiment could also l
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The availability of oocytes in larg
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and the tail of serpent. In biology
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our view, that the scientific commu
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Bonnicksen, Andrea. "Innovative ART
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Kubawara, Y., T. Okai, S. Kozuma, N
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Shamblott, Michael J., Joyce Axelma
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116
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iotech companies or university clin
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As an infrastructure of quality ass
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toward implementing a comprehensive
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clinical research, 22 while the FDA
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principles of good governance as fe
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sustainable way. Examples include c
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cloning to register with the Depart
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kind of cloning or they limit the b
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The federal government has been rel
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includes ethicists, scientists, men
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Society for Assisted Reproductive T
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Reproductive Endocrinology Subspeci
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safety guidelines aimed at ranking
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elatively mundane. 67 For example,
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Fallon, Peter, and Zafiris Tzannato
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148
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6.1 Italy - from the “Wild West
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also prohibited. 13 The law activel
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selection technologies, but only fo
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eproductive technologies in section
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Neither the RIHEA nor its explanato
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inspect all licensees, or how often
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(principle (e)). 43 Canada affords
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traditional views of reproduction,
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y the Canadian authorities and the
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esearch on human embryos. It requir
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This argument is not likely to conv
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• Maintain a formal register of i
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The remaining three positions reser
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type of research. The HFEA is requi
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The relevance of the Code of Practi
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180
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182
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of saving the life of an older sibl
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procreative right, unlikely as it i
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assisted suicide, the Court has est
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or that there are an infinite numbe
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What is obvious is that the Court s
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generalizing from a strong but gene
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are not any societal traditions tha
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the First Amendment’s protection
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least preferable among all forms of
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Surrogacy 16 Donor egg 14 Donor spe
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To recap, the survey data shows a s
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Robertson, John A. Children of Choi
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media and from polling organization
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Before diving into the data, the me
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(126), and allowing parents to have
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esearch cloning. Two questions (150
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asked five times whether the public
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the creation of embryos solely for
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Our conclusions could be criticized
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about embryonic stem cells? The ans
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were essentially split (44 percent
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228
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coincidence that U.S. scientists id
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assertion of jurisdiction in this c
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of the opposition to genetically mo
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Page 243 and 244: another branch of medicine. ART pra
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Page 247 and 248: Navasky, Victor S., and Christopher
Page 249 and 250: to extract benefits for their membe
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Page 263 and 264: In many cases, these efforts are pe
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Page 267 and 268: years away. Again, no scientific ba
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Page 293 and 294: ———. "The Courts and the Ossi
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Page 297 and 298: agency’s ability to implement Con
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Page 317 and 318: Morrison, Alan B. "How Independent
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eliefs firmly held by medical pract
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some studies, the TRI program has b
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13.4 Technologies of Reproductive C
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epresentatives of the general publi
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population of firms, clinics, labor
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an ART program, a biotech company,
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By all accounts, the British regula
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would add roughly 0.56 percent to t
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[cited September 20, 2005]. Availab
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