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Consultant physicians working with patients - Royal College of ...

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2 Specialties Neurologyworked . . . we identified an absence <strong>of</strong> leadership atboth national and local level and poor integration <strong>of</strong>services as key weaknesses that must be addressed. It istherefore extremely disappointing that the Departmenthas rejected our recommendations in relation to theseissues . . . the Department has got to do better and wewill be taking this up <strong>with</strong> them in due course.Neurologists are <strong>of</strong>ten part <strong>of</strong> the team providing carefor <strong>patients</strong> who are at the end <strong>of</strong> their lives. Patients,carers and families need to be kept fully informed aboutprognosis and the range <strong>of</strong> services available. It isessential to coordinate pain control and emotional andpsychological care.Patient support groupsPatients and carers should have access to high-qualityinformation about their neurological condition,investigations and treatment, and to local branches <strong>of</strong>neurological charities, together <strong>with</strong> a wide range <strong>of</strong>healthcare workers. Increasingly, neurological <strong>patients</strong>are experts in their condition and may be part <strong>of</strong> themultidisciplinary team (MDT) as expert <strong>patients</strong>.Availability <strong>of</strong> clinical records and resultsAll <strong>patients</strong> should be <strong>of</strong>fered copies <strong>of</strong> clinic letters andthe results <strong>of</strong> investigations. Patient records should beavailable at all times to all treating agencies. This is nowincreasingly possible by electronic means.4 Interspecialty and interdisciplinary liaisonMultidisciplinary team <strong>working</strong>Neurologists frequently work as part <strong>of</strong> MDTs whencaring for acutely ill <strong>patients</strong> and especially for <strong>patients</strong><strong>with</strong> LTNCs. Clinical nurse specialists and therapists<strong>with</strong> knowledge <strong>of</strong> neurological conditions are key teammembers and some should be based in the community.Links <strong>with</strong> care <strong>of</strong> elderly people and social servicesneed to be better developed, so that <strong>patients</strong> receive theappropriate care and support required.Transition careThe ABN fully supports the RCP’s young adult andadolescent initiative to improve healthcare outcomes forthose aged 16–24 years. Some neurologists alreadyundertake transition clinics <strong>with</strong> paediatric colleagues(in specialties such as epilepsy and neuromusculardiseases) but there is a need to increase the pr<strong>of</strong>ile <strong>of</strong>this type <strong>of</strong> specialist service and to ensure that it isappropriately supported by trusts and health boardsacross the UK.Working <strong>with</strong> other specialistsManaging acute neurological conditions involves<strong>working</strong> <strong>with</strong> acute and other medical specialists in themedical admissions unit (MAU) and during wardliaison to improve appropriateness <strong>of</strong> investigations,obtain early diagnosis and speed up discharge fromhospital by facilitating appropriate follow-up. There hasto be a close liaison <strong>with</strong> radiologists, intensivists andneurophysiologists, and the involvement <strong>of</strong>neurosurgery and neurorehabilitation. Neurologistshave an increasing role in stroke care together <strong>with</strong>stroke <strong>physicians</strong> and geriatricians. Neurologists alsowork <strong>with</strong> psychiatrists in dementia services.Long-term condition services need neurologists,neurorehabilitationists, geriatricians and palliative care<strong>physicians</strong>.Close liaison also exists between neurology and otherspecialties in the following areas: Parkinson’s disease(geriatrics), dementia (psychogeriatrics), higherfunction disorders (neuropsychiatry andneuropsychology), double vision and visual loss(ophthalmology), dizziness (ear, nose and throat,audiovestibular <strong>physicians</strong>), peripheral nerve and nerveroot disease (orthopaedics), inherited neurologicaldisease (clinical genetics), functional disorders(psychiatrists), pain teams and obstetric services.Working <strong>with</strong> GPs and GPwSIsCare for <strong>patients</strong> <strong>with</strong> LTNCs has traditionally beenbased in DGH or RNC outpatient clinics that are mainlyconsultant delivered, and more recently have had nursespecialist input. Newer networks <strong>of</strong> care are developing<strong>with</strong> the involvement <strong>of</strong> primary care, and neurologistsare key members <strong>of</strong> these networks. Better use needs tobe made <strong>of</strong> combined meetings, educational seminarsand clinical guidelines to underpin this network.5 Delivering a high-quality serviceWhat is a high-quality service?The ABN and the Neurological Alliance(www.neural.org.uk) are currently assessing whatoutcomes can be measured to reflect high-quality care.These have to be meaningful and applicable to allneurology units in England, Wales and NorthernIreland. Scotland has published clinical standards forC○ <strong>Royal</strong> <strong>College</strong> <strong>of</strong> Physicians 2013 175

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