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Consultant physicians working with patients - Royal College of ...

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<strong>Consultant</strong> <strong>physicians</strong> <strong>working</strong> <strong>with</strong> <strong>patients</strong>Table 1 Service location and main activities (continued)Service locationMain activitiesManagement <strong>of</strong> rare cardiac arrhythmias (eg congenital long QT syndrome, Brugada’s syndrome,arrhythmogenic right ventricular dysplasia, ventricular arrhythmias associated <strong>with</strong> familialcardiomyopathies)Screening families affected by sudden cardiac deathManagement <strong>of</strong> some cardiomyopathiesExtraction <strong>of</strong> pacemaker leads <strong>with</strong> special equipmentCardiac surgeryComplex cardiac interventionsAdvanced cardiac electrophysiologySupra-regionalcardiologyPaediatric cardiologyAssessment <strong>of</strong> adults <strong>with</strong> congenital heart diseaseMost interventions in adults <strong>with</strong> congenital heart diseaseFollow-up <strong>of</strong> certain adults <strong>with</strong> congenital heart diseasePulmonary hypertensionImplantation <strong>of</strong> left ventricular assist devicesCardiac transplantationCardiopulmonary transplantationECG = electrocardiography; PFO = patent foramen ovale; ASD = atrioseptal defect; VSD = ventriculoseptal defect; STEMI = ST-elevation myocardialinfarction.Community cardiology is an expanding subspecialtythat has a particular interest in these areas.Complementary servicesComplementary therapies do not play a major role inthe management <strong>of</strong> heart disease. However, some<strong>patients</strong> have access to various therapies through linksbetween voluntary services and patient and carergroups.3 Working <strong>with</strong> <strong>patients</strong>: patient-centredcarePatient and carer involvement in cardiac servicesIn 2003, the British Cardiovascular Society (BCS)established a broad-based group to represent theinterests and aspirations <strong>of</strong> cardiac <strong>patients</strong> and theircarers. The Cardiovascular Care Partnership UK (CCPUK) was developed as an affiliated group <strong>of</strong> BCS in 2004to act as the patient arm <strong>of</strong> cardiology. Trustees aredrawn from various cardiac patient and carer charities,including the Children’s Heart Federation (CHF), theGUCH Association, the British Heart Foundation(BHF) Heart Support Group network, thecardiovascular network patient and carer partnerships<strong>of</strong> England, and various healthcare pr<strong>of</strong>essionalscommitted to patient empowerment.The CCP UK is represented on the patient involvementpanel <strong>of</strong> the <strong>Royal</strong> <strong>College</strong> <strong>of</strong> Physicians (RCP), the JointSpecialty Committee for Cardiology, the board <strong>of</strong>Myocardial Infarction Audit Project (MINAP), Societyfor Cardiothoracic Surgery (SCTS), Department <strong>of</strong>Health’s (DH) <strong>working</strong> groups on cardiovascularmedicine and stroke, BHF, National Audit <strong>of</strong> CardiacRehabilitation (NACR), NICE consultations, NSFchapter groups for GUCH and arrhythmias, and theNHS Improvement Heart team.Patient-centred care in integrated care pathwaysA formal description <strong>of</strong> a patient’s view <strong>of</strong> the essentialelements <strong>of</strong> the care pathway is given in the Fifth reporton the provision <strong>of</strong> services for <strong>patients</strong> <strong>with</strong> heartdisease. 4 Among the issues raised were: involvement in decisions regarding treatment receipt <strong>of</strong> appropriate information time to interpret and reflect before decisions aremade partnership <strong>with</strong> pr<strong>of</strong>essionals in their care support <strong>of</strong>fered earlier in care pathways promotion <strong>of</strong> cardiac rehabilitation and supportgroups.Patients help to define care pathways through theirinvolvement <strong>with</strong> quality in practice teams <strong>working</strong> in50 C○ <strong>Royal</strong> <strong>College</strong> <strong>of</strong> Physicians 2013

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