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OECD Peer Review of E-Government in Denmark - ePractice.eu

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Standards-based electronic health records<br />

In a discussion paper that was the basis for the 1999 health sector IT strategy, the M<strong>in</strong>istry <strong>of</strong> the<br />

Interior and Health, <strong>in</strong> co-operation with Danish Counties and the Copenhagen Hospital Corporation,<br />

presented a picture show<strong>in</strong>g that, despite the efforts <strong>of</strong> the 1990s, the majority <strong>of</strong> process<strong>in</strong>g <strong>of</strong> patient<br />

data <strong>in</strong> hospitals was still be<strong>in</strong>g done manually us<strong>in</strong>g paper-based health records. From an ICT<br />

perspective there was great variety <strong>in</strong> the <strong>in</strong>formation management technologies be<strong>in</strong>g used <strong>in</strong><br />

hospital; additionally, their development was not occurr<strong>in</strong>g quickly enough.<br />

From an operational/process perspective, all hospitals had a patient adm<strong>in</strong>istration system<br />

handl<strong>in</strong>g essential adm<strong>in</strong>istrative and operational tasks. The functionality and user-friendl<strong>in</strong>ess <strong>of</strong><br />

these systems varied widely. The quality <strong>of</strong> data <strong>in</strong> these systems was generally regarded as be<strong>in</strong>g a<br />

significant problem. From a management perspective, hospitals’ ICT systems were not provid<strong>in</strong>g<br />

sufficient basis for management decision mak<strong>in</strong>g, plann<strong>in</strong>g or quality control. The paradox was that<br />

the required data was be<strong>in</strong>g manually registered <strong>in</strong> patient records – the problem was not a lack <strong>of</strong><br />

data, but <strong>in</strong>adequate data management.<br />

This analysis resulted <strong>in</strong> further recommendations with regard to EHRs that became part <strong>of</strong> the<br />

1999 and 2003 national health sector IT strategies.<br />

One <strong>of</strong> these strategies’ goals has been to enable the shar<strong>in</strong>g <strong>of</strong> data between the disparate ICT<br />

solutions that exist <strong>in</strong> the sector through the use <strong>of</strong> EHRs based on common standards. Plans were to<br />

<strong>in</strong>troduce these EHRs <strong>in</strong> all hospitals before the end <strong>of</strong> 2005. However, due to problems with the<br />

implementation <strong>of</strong> the national EHR standard, and the impact <strong>of</strong> the Structural Reform, <strong>in</strong> 2004 this<br />

goal was changed to be more open-ended. Under the broad oversight <strong>of</strong> the M<strong>in</strong>istry <strong>of</strong> Interior and<br />

Health, work <strong>in</strong> this area has been moved forward by the National Health IT Strategy Group (with<br />

members from all levels <strong>of</strong> government) and a mix <strong>of</strong> work<strong>in</strong>g and steer<strong>in</strong>g groups work<strong>in</strong>g on<br />

specific <strong>in</strong>itiatives. Two particularly important <strong>in</strong>itiatives <strong>in</strong> this context are the BEHR (Basic structure<br />

for Electronic Health Records) project and the work <strong>of</strong> the steer<strong>in</strong>g group deal<strong>in</strong>g with the<br />

implementation <strong>of</strong> the national standard for EHRs.<br />

The national BEHR project will create the basis for co-ord<strong>in</strong>ated development <strong>of</strong> EHR concepts,<br />

ty<strong>in</strong>g health sector ICT to a common architecture with all the associated organisational and<br />

performance advantages such an approach allows. The result<strong>in</strong>g EHRs will be based on common<br />

standards for cl<strong>in</strong>ical def<strong>in</strong>itions, adm<strong>in</strong>istrative processes and technology, ensur<strong>in</strong>g that<br />

<strong>in</strong>teroperability between different systems can be achieved. The Board <strong>of</strong> Health has the role <strong>of</strong> sett<strong>in</strong>g<br />

standards.<br />

The EHR work is focused on <strong>in</strong>troduction <strong>of</strong> EHRs <strong>in</strong>to the health service delivery environment<br />

<strong>in</strong> a way that ensures <strong>in</strong>teroperability across the health sector. Achiev<strong>in</strong>g this requires a number <strong>of</strong><br />

<strong>in</strong>itiatives and/or changes to be undertaken at both the whole-<strong>of</strong>-sector and <strong>in</strong>dividual organisation<br />

levels, <strong>in</strong>clud<strong>in</strong>g a reference implementation <strong>of</strong> BEHR, establishment <strong>of</strong> a common data model,<br />

development <strong>of</strong> XML schemas for communication <strong>of</strong> health data based on the reference<br />

implementation <strong>of</strong> BEHR, and education <strong>of</strong> health sector personnel.<br />

In the background, as a result <strong>of</strong> the Structural Reform reduc<strong>in</strong>g the number <strong>of</strong> hospital<br />

adm<strong>in</strong>istrations, there has been a policy question regard<strong>in</strong>g the best way to achieve <strong>in</strong>tegrated data<br />

management at the regional level. The National Board <strong>of</strong> Health has identified two possible<br />

approaches to this issue: 1) develop a s<strong>in</strong>gle system for all <strong>of</strong> <strong>Denmark</strong>; or 2) make the exist<strong>in</strong>g<br />

systems <strong>in</strong>teroperable. The weight <strong>of</strong> op<strong>in</strong>ion is <strong>in</strong> favour <strong>of</strong> the <strong>in</strong>teroperability approach, as it both<br />

reduces the operational risks relat<strong>in</strong>g to implementation <strong>of</strong> Structural Reform and fits with the wider<br />

153

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