Success-Stories-on-Health-Sector

2. Identifying carriers and sufferers and issuing
yellow cards to carriers and red cards to diseased
individuals.
3. Counselling carriers and sufferers about marriage and
the importance of regular treatment.
4. Providing screening facilities at Primary Health
Centres, Rural Hospitals, and Sub- District Hospitals
and District Hospitals.
5. Referring positive cases from Solubility positive
samples for electrophoresis test to the nearest
Electrophoresis Testing Centre.
6. Providing Prophylactic and Symptomatic treatment at
Primary Health Centres, Rural Hospitals and District
Hospitals.
7. Training of Medical officers and other paramedical
staff at PHC, RH and DH for testing, counselling and
treatment.
Out of a total of 2303 Health Institutions, 1215 including
PHCs, RHs, SDH, DH, Women’s Hospital, speciality
hospitals and Medical Colleges, are involved in SCD
Control.
The service package has been made for various levels
of health institutions and service provision in SCDCP
include free solubility testing, free Electrophoresis testing
(Electrophoresis centre), counselling, regular health checkup
of sufferers, prophylactic and symptomatic treatment
to be provided, blood transfusion to Sickle Sufferer if
blood storage centre or blood bank is available, specialty
treatment, maintenance of records and register, and
provision of day-care centre.
Colour coded cards are used under the programme-White
Card for Negative, Yellow card for the Disease Carrier and
Red Card for disease Sufferer.
PrograMMe outcoMes
1. Since 2009 under Sickle cell Disease control
Programme 1,38,48,343 solubility testing has been
done from which 1,60,866 carriers (1.16%) & 13,499
(0.09%) sufferers has been identified and Yellow and
red cards have been distributed respectively up to
March 2015.
2. Out of 13,499 Sufferers detected 13,458 (99%) patients
are taking regular treatment.
3. After Counselling out of 62,770 married Sickle cell
carriers, 56,686 (90%) carriers are married to healthy
partners and out of 3,020 married sufferers, 2,716
(90%) sufferers are married to healthy partners.
iMPleMenting Partners
Sickle cell disease is implemented in 9 districts through
NGO’s. Also, 8 Government Medical colleges are involved
in this Programme.
conclusions/lessons learnt
Addition of Caste/tribe in the colour coded SCD Card
will be done so as to help track racial profiling at all
service outlets. A mechanism of digital tracking of
Sufferers and carriers to avoid duplication need to be
established. There is felt need of High prevalence Caste
Population based Screening strategy to enhance yield of
cases. Timely procurement of solubility & electrophoresis
kits for screening of population is one of the critical
component.
references
1. Directorate of Medical Education & Research Draft
proposal June 2008. Studies carried indicate that the
overall prevalence of sickle cell disorder in different
tribal population is 10% for carrier and 0.5% for the
sufferer.
2. Research paper published on Epidemiology of sickle
cell disorder: The urban scenario in Maharashtra,
India by A.U. Deore and S.B. Zade.
Contact
Quality Control Officer Sickle Cell Programme
Mob.: 8080813226 & Programme Officer
Mob.: 9870853402
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