20.03.2014 Views

New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

SHOW MORE
SHOW LESS

You also want an ePaper? Increase the reach of your titles

YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.

Part 4: Treatment and management <strong>of</strong> ASD<br />

Part 4<br />

While every parent or person with ASD has the<br />

right to seek treatment from any source they<br />

believe may work for them, pr<strong>of</strong>essionals have<br />

a responsibility to interpret research evidence<br />

for them and be as objective and honest as<br />

possible (Recommendation 4.3.1). The absence <strong>of</strong><br />

appropriately supportive data for most <strong>of</strong> the<br />

treatment approaches underlies the reluctance<br />

that many authorities worldwide share for<br />

publicly funding specific treatment methods 204<br />

274 275<br />

. Furthermore non-established treatments<br />

can be costly in time and money and some have<br />

adverse effects 276 .<br />

As ASD represents a heterogeneous spectrum<br />

<strong>of</strong> disorders, treatments may have differential<br />

effects in individuals, making the identification<br />

<strong>of</strong> effective treatments difficult. There is a great<br />

deal <strong>of</strong> variability in response to treatment<br />

and some individuals may show apparently<br />

spontaneous improvement in symptoms in<br />

a particular area for unidentified reasons. In<br />

such a situation, if an intervention has been<br />

recently implemented, the improvement can be<br />

erroneously attributed to the treatment, even<br />

when the treatment is actually ineffective.<br />

The following intervention guidance has<br />

been suggested (which is also contained in Part<br />

3: Education for learners with ASD – the same<br />

principles apply in both settings) 277 :<br />

• treatment programmes should be individually<br />

designed, taking into account the individual’s<br />

cognitive level, severity <strong>of</strong> autistic<br />

symptomatology, overall developmental<br />

level, chronological age and temperament/<br />

personality (Recommendation 4.1.2)<br />

• structured educational/daily living<br />

programmes should be considered;<br />

programmes with an emphasis on visually<br />

based cues can provide a predictable and<br />

readily understandable environment,<br />

minimising confusion and distress to the<br />

person with ASD (Recommendation 4.3.2)<br />

• interventions should take account <strong>of</strong> the<br />

core deficits <strong>of</strong> autism (eg, communication,<br />

social skills and stereotyped and ritualistic<br />

behaviour) (Good Practice Point 4.2.5)<br />

• many undesirable or challenging behaviours<br />

reflect limited behavioural repertoires or<br />

poor communication skills, so focus on<br />

skill enhancement and establishment <strong>of</strong><br />

more effective communication strategies<br />

are <strong>of</strong>ten the most successful means <strong>of</strong><br />

reducing difficult or disruptive behaviours<br />

(Recommendation 4.3.2)<br />

• family-centred treatment approaches result<br />

in greater generalisation and maintenance <strong>of</strong><br />

skills. Development <strong>of</strong> management strategies<br />

that can be implemented consistently but<br />

do not demand extensive sacrifice in terms<br />

<strong>of</strong> time, money or other aspects <strong>of</strong> family<br />

life seem most likely to <strong>of</strong>fer benefits for all<br />

involved (Recommendation 4.3.2).<br />

<strong>Guideline</strong>s for evaluating treatment options<br />

for people with ASD advise parents, family,<br />

whänau and pr<strong>of</strong>essionals to:<br />

• ask specific questions about the treatment<br />

regarding its goals, components, style, target<br />

group, outcomes, efficacy, effectiveness (and<br />

the best method for evaluating this), negative<br />

effects, risks and safeguards<br />

• find out about therapist experience,<br />

qualifications and pr<strong>of</strong>essional association<br />

• be hopeful, but conservative, about any new<br />

treatment where the efficacy <strong>of</strong> the treatment<br />

has not been proven<br />

• remember that the primary goal <strong>of</strong> any<br />

treatment should be to help the person with<br />

ASD live as full a life as possible within society<br />

• beware <strong>of</strong> any programme that claims to be<br />

effective for all people with ASD<br />

• be cautious <strong>of</strong> programmes that do not allow<br />

individualisation<br />

• recognise that there are likely to be several<br />

suitable treatment options for each person<br />

with ASD<br />

• recognise that treatment choices should<br />

be based on the results <strong>of</strong> the person’s<br />

individual assessment<br />

140<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong>

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!