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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 1: Diagnosis and initial assessment <strong>of</strong> ASD<br />

1.2.a Early childhood to adolescence<br />

The recommended pathway leading to the<br />

assessment <strong>of</strong> a young child, older child or<br />

adolescent with suspected ASD is summarised<br />

below in four steps:<br />

1. developmental surveillance<br />

2. identification <strong>of</strong> developmental concerns and<br />

appropriate referral<br />

3. appropriate referral and developmental<br />

service coordination<br />

4. multidisciplinary assessment.<br />

This pathway is outlined in Figure 1 which can<br />

be found at the end <strong>of</strong> this section.<br />

1. Developmental surveillance<br />

All children in <strong>New</strong> <strong>Zealand</strong> should receive<br />

developmental surveillance. For babies and<br />

children in the early childhood years, this is<br />

provided through the Well Child/Tamariki Ora<br />

framework. Children and teenagers attending<br />

compulsory sector education have educational<br />

attainment and behaviour reviewed regularly at<br />

school, with schools being required to formally<br />

report to parents at least twice per year. Where<br />

schools have a particular concern about a<br />

student’s health, they can consult with the Public<br />

<strong>Health</strong> Nurse linked to the school.<br />

Parents and a range <strong>of</strong> health and educational<br />

pr<strong>of</strong>essionals (such as Plunket nurses and other<br />

Well Child providers, general practitioners<br />

(GPs), early childhood educators, playgroup<br />

supervisors and teachers) have considerable skill<br />

and experience in understanding the pattern <strong>of</strong><br />

normal child development and should, in the<br />

course <strong>of</strong> developmental surveillance, identify<br />

areas <strong>of</strong> developmental concern. If any concerns<br />

become apparent to parents or pr<strong>of</strong>essionals,<br />

these concerns should be discussed immediately.<br />

This discussion between parent and health or<br />

educational pr<strong>of</strong>essional should seek to define<br />

the developmental concerns and gather further<br />

information about the child’s developmental<br />

milestones, unusual social interactions or<br />

behaviour, the child’s general health, eating<br />

and sleeping patterns, and potential family<br />

and environmental impacts on development,<br />

such as family emotional or financial stress.<br />

Such discussions may be formal (eg, a speechlanguage<br />

therapy screening assessment) or<br />

informal (eg, a discussion between a parent and<br />

a kindergarten teacher). These are not formal<br />

diagnostic assessments.<br />

<strong>Health</strong> and education pr<strong>of</strong>essionals should be<br />

proactive and should view each pr<strong>of</strong>essional<br />

encounter as an opportunity to elicit<br />

developmental, health and social concerns<br />

about the child, rather than waiting for<br />

parents to voice concern. Routine pr<strong>of</strong>essional<br />

encounters include each Well Child assessment,<br />

GP visits for intercurrent illness, and sessions<br />

at creche, kindergarten, playgroup or school<br />

(Recommendation 1.2.1).<br />

A wait-and-see approach, or a desire not<br />

to mention a concern for fear <strong>of</strong> creating<br />

unnecessary anxiety in parents, should be<br />

resisted, as this could lead to a delay in<br />

providing appropriate assessment and other<br />

services.<br />

2. Developmental concerns<br />

If the outcome <strong>of</strong> the discussion between the<br />

parent and pr<strong>of</strong>essional is that developmental<br />

concerns are unclear, or if that pr<strong>of</strong>essional is<br />

not formally trained in assessing developmental<br />

skills, the pr<strong>of</strong>essional should seek further<br />

advice, guidance or assessment from another<br />

pr<strong>of</strong>essional with expertise in assessing child<br />

development. These pr<strong>of</strong>essionals could<br />

include a speech-language therapist, a child<br />

development service therapist, or a paediatrician<br />

(Good Practice Point 1.2.8).<br />

If developmental concerns are confirmed<br />

during the discussion between the parent<br />

and pr<strong>of</strong>essional, then onward referral for<br />

appropriate assessment must be made, through<br />

the developmental services coordinator.<br />

Part 1<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong> 45

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