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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 5: Living in the community<br />

Part 5<br />

The Department <strong>of</strong> Recreation and Leisure,<br />

University <strong>of</strong> North Carolina, Chapel Hill,<br />

and the Department <strong>of</strong> Psychiatry from<br />

Division TEACCH (two nationally recognised<br />

programmes in the United States) collaborated<br />

on Project <strong>Autism</strong>, to conduct a three-year<br />

project which identified the support required to<br />

address recreation and leisure needs <strong>of</strong> people<br />

with ASD 374 . The project found that participating<br />

in recreation can help people with ASD to:<br />

• expand their interests<br />

• develop/improve their communication skills<br />

• explore or expand their knowledge<br />

• improve their cognitive functioning<br />

• be with, interact with, and build friendships<br />

with others<br />

• make leisure choices<br />

• help others, and be able to contribute to home<br />

and community, including volunteering and<br />

opportunities to provide for others<br />

• enhance self-control<br />

• follow rules, directions and procedures<br />

• gain others’ respect<br />

• enjoy completing and mastering things<br />

• improve their physical functioning<br />

• keep in shape physically<br />

• relax physically and emotionally<br />

• learn and improve coping skills<br />

• heighten self-awareness and self-esteem<br />

• promote community integration<br />

• increase their life and leisure satisfaction.<br />

Project <strong>Autism</strong> also identified a number <strong>of</strong><br />

sources <strong>of</strong> information as useful for completing<br />

an assessment to identify the support that<br />

people with ASD will need to make leisure and<br />

recreation choices. These sources included:<br />

• verbal self-reporting<br />

• information gathered from a variety <strong>of</strong><br />

sources, including everyone who interacts<br />

with the person<br />

• observation.<br />

Project <strong>Autism</strong> produced a manual, which<br />

included a section describing the steps and<br />

processes to help an individual with ASD<br />

become involved in a recreation activity <strong>of</strong><br />

choice. These steps included:<br />

• personal strengths<br />

• goals and wishes<br />

• approaches to learning – where a child or<br />

young person has communication difficulties,<br />

using concrete items such as pictures or<br />

photos, choice boards, social stories and<br />

observation <strong>of</strong> the individual can identify<br />

leisure interests and provide a means <strong>of</strong><br />

evaluating satisfaction<br />

• leisure interests and satisfaction to support<br />

future planning – use <strong>of</strong> vocabulary with<br />

which the individual is familiar; evaluation <strong>of</strong><br />

the level <strong>of</strong> satisfaction <strong>of</strong> the individual<br />

• meaningful routines including a balance<br />

<strong>of</strong> leisure, work, self-care and other<br />

commitments<br />

• use <strong>of</strong> resources found in the home and wider<br />

community<br />

• identifying who is responsible for recreation<br />

initiation and planning.<br />

5.2.a Barriers to participation in leisure<br />

and recreation pursuits<br />

People with disabilities who do not take part in<br />

sport and leisure activities may become isolated,<br />

lonely and miss out on activities which are<br />

fun and which provide opportunities to make<br />

friends and learn new skills 375 .<br />

Findings from three separate studies have<br />

identified a number <strong>of</strong> common barriers<br />

preventing participation in family and<br />

community activities, and these studies have<br />

informed both the <strong>New</strong> <strong>Zealand</strong> and United<br />

Kingdom governments’ strategies for promoting<br />

social inclusion for people with an intellectual<br />

disability 375-377 . The studies reported that key<br />

barriers preventing participation include:<br />

174<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong>

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