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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 1: Diagnosis and initial assessment <strong>of</strong> ASD<br />

child. In areas with large child populations, an<br />

<strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> coordinator may be<br />

appointed to assist the developmental services<br />

coordinator in this task (Good Practice Point<br />

1.2.11).<br />

• Contact details for the local developmental<br />

services coordinator and ASD coordinator<br />

should be widely disseminated to all<br />

potential referrers.<br />

• The coordinator will also be responsible for<br />

collecting data and providing information<br />

to the <strong>Ministry</strong> <strong>of</strong> <strong>Health</strong> and District <strong>Health</strong><br />

Boards for policy and planning purposes.<br />

Data to be collected include:<br />

– parental report <strong>of</strong> age <strong>of</strong> first<br />

developmental concerns<br />

– age at referral to the coordinator or to<br />

another pr<strong>of</strong>essional service<br />

– duration <strong>of</strong> waiting time for<br />

multidisciplinary assessment<br />

– outcome <strong>of</strong> assessment<br />

– time until specified services and supports<br />

are in place for the child.<br />

• Outcome data could include:<br />

– diagnosis <strong>of</strong> autism or Asperger syndrome<br />

by DSM-IV or ICD-10 criteria<br />

– autism spectrum disorder diagnosis, or<br />

other diagnosis<br />

– presence <strong>of</strong> co-morbid conditions<br />

– level <strong>of</strong> verbal and non-verbal<br />

developmental function.<br />

NOTE: It is not intended that an ASD or<br />

developmental disorder register be established,<br />

rather that the efficiency <strong>of</strong> service provision and<br />

service gaps be identified by data collection.<br />

4. Multidisciplinary assessment<br />

A multidisciplinary specialist assessment<br />

team involves a group <strong>of</strong> pr<strong>of</strong>essionals<br />

working collaboratively to assess the child.<br />

This team usually includes at least two or<br />

three members drawn from the following<br />

pr<strong>of</strong>essions: paediatricians, child and<br />

adolescent psychiatrists, clinical or educational<br />

psychologists, speech-language therapists and<br />

occupational therapists.<br />

The preferred model <strong>of</strong> assessment process<br />

is a concurrent assessment by a collaborating<br />

team. If this is not feasible, the process could<br />

involve sequential assessments by individual<br />

pr<strong>of</strong>essionals who then share their findings<br />

with one another. Each pr<strong>of</strong>essional provides<br />

insights from his/her area <strong>of</strong> expertise which<br />

are then integrated and synthesised through<br />

an interactive group process. This approach<br />

will lead to more robust diagnosis, more<br />

accurate planning <strong>of</strong> future services and<br />

supports, and will reduce repetition and<br />

redundancy. Where a paediatrician or child<br />

and adolescent psychiatrist is not present at the<br />

multidisciplinary assessment, a separate medical<br />

assessment, including physical examination, is<br />

required by one <strong>of</strong> these pr<strong>of</strong>essionals.<br />

Specialist assessment teams are<br />

multidisciplinary, and may be multiagency<br />

(team members employed by different health<br />

and education providers such as <strong>Ministry</strong><br />

<strong>of</strong> Education, Special Education, Child<br />

Development teams, Child Adolescent and<br />

Family Mental <strong>Health</strong> Service) or provided<br />

within one agency. Multiagency teams are<br />

preferred to prevent the child and family having<br />

to undergo repeated assessments and to ensure<br />

timely access to all the services needed by the<br />

child and family.<br />

Occasionally, the local multidisciplinary<br />

specialist assessment team will be unable to<br />

make a diagnosis. This may occur where the<br />

clinical features are atypical or complex. In this<br />

situation, local clinicians should be able to access<br />

assessment at a tertiary centre. It is envisaged<br />

that there should be a network <strong>of</strong> tertiary<br />

centres, with such assessments being available in<br />

main centres (Good Practice Point 1.2.12).<br />

The NAPC <strong>Guideline</strong> has defined the following<br />

essential components <strong>of</strong> specialist team<br />

assessment. These have been adapted for<br />

<strong>New</strong> <strong>Zealand</strong>.<br />

Part 1<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong> 47

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