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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Appendices<br />

Practice questions and topics were defined and<br />

a systematic, hierarchical search <strong>of</strong> medical,<br />

psychological and social science databases<br />

was performed in July 2004. Further searches<br />

were also performed by accessing relevant<br />

organisations and internet websites for policy<br />

and position papers, textbooks, reports and<br />

guidelines. The identified literature was<br />

appraised using the <strong>New</strong> <strong>Zealand</strong> <strong>Guideline</strong><br />

Group process. Qualitative research was<br />

appraised using the CASP (critical appraisal<br />

skill programme) tool. Evidence tables were<br />

constructed with levels <strong>of</strong> evidence for each<br />

study. The evidence tables and practice<br />

questions are available separately, published on<br />

www.moh.govt.nz/autismspectrumdisorder. This<br />

team consulted an advisory group on a regular<br />

basis during the development <strong>of</strong> the sections.<br />

Date range for inclusion <strong>of</strong> studies<br />

For all workstreams, systematic searching was<br />

performed until 2004. Papers published after<br />

the completion <strong>of</strong> searching and, in some cases<br />

before the search dates, were suggested by<br />

members <strong>of</strong> all workstreams and incorporated in<br />

the text and evidence tables, where appropriate.<br />

In future updates <strong>of</strong> the guideline, systematic<br />

searching will commence in 2004 to ensure a<br />

systematic evaluation <strong>of</strong> all the literature is<br />

achieved.<br />

Mäori and Pacific perspectives<br />

The process underlying the chapters on Mäori<br />

and Pacific perspectives is described within<br />

these chapters.<br />

Consultation<br />

An open consultation process was undertaken<br />

requesting input from stakeholders and other<br />

interested individuals and groups, both within<br />

<strong>New</strong> <strong>Zealand</strong> and overseas. Parallel review <strong>of</strong><br />

the draft ASD <strong>Guideline</strong> was also undertaken<br />

by a number <strong>of</strong> experts in ASD nominated by<br />

the workstream leaders. Feedback was sought<br />

on identification <strong>of</strong> gaps in the content, links<br />

between evidence and recommendations and<br />

suggestions on presentation. The workstream<br />

leaders considered all the feedback and<br />

made amendments supported by additional<br />

references, where appropriate.<br />

CAVEAT:<br />

As a result <strong>of</strong> feedback received during<br />

consultation, an additional independent<br />

review <strong>of</strong> applied behaviour analysis (ABA)<br />

is currently being undertaken. The purpose<br />

<strong>of</strong> the review is to critically appraise<br />

published research about ABA interventions<br />

in relation to outcomes for people with<br />

autism spectrum disorder (ASD).<br />

The current sections <strong>of</strong> the <strong>New</strong> <strong>Zealand</strong><br />

ASD <strong>Guideline</strong> which relate to ABA will<br />

be neither reviewed nor amended until<br />

the independent review is completed.<br />

The recommendations and evidence from<br />

the review will be considered by the<br />

ASD Living <strong>Guideline</strong> Working Group<br />

using publicly available criteria that will<br />

be applied to all proposed changes to<br />

the Living <strong>Guideline</strong> (see page 16 for an<br />

explanation <strong>of</strong> the Living <strong>Guideline</strong>).<br />

Evidence tables<br />

The evidence tables that support this guideline<br />

can be accessed on www.moh.govt.nz/<br />

autismspectrumdisorder. No evidence tables<br />

were provided for the assessment and diagnosis<br />

<strong>of</strong> children as this section <strong>of</strong> the guideline was<br />

an adaptation <strong>of</strong> the NAPC UK <strong>Guideline</strong>.<br />

The evidence tables for the remainder <strong>of</strong> the<br />

guideline are in two separate formats. Evidence<br />

tables assessing the benefits and harms <strong>of</strong><br />

medications follow a strictly quantitative<br />

format, based on study design. This format was<br />

considered unsuitable to describe the evidence<br />

for all other sections <strong>of</strong> the guideline which<br />

include expert opinion and qualitative evidence<br />

as well as quantitative studies. All other<br />

evidence tables have a broader, more general<br />

format to deal with the variety <strong>of</strong> evidence that<br />

has been gathered.<br />

Grading<br />

Each <strong>of</strong> the recommendations in this guideline<br />

is followed by a ‘strength <strong>of</strong> evidence ‘ grading,<br />

designated by the letters ‘A’, ‘B’, ‘C’, ‘I’ or ‘’<br />

immediately after the recommendation. These<br />

strength <strong>of</strong> evidence gradings indicate the<br />

amount, general quality and clinical applicability<br />

(to the guideline topic or question) <strong>of</strong> scientific<br />

evidence used as the basis for each guideline<br />

recommendation.<br />

Appendices<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong> 269

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