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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 2: Support for individuals, families and carers<br />

In order to support spouses and life partners,<br />

health and education pr<strong>of</strong>essional development<br />

curricula need to:<br />

• ensure that any pr<strong>of</strong>essional learning and<br />

development for ASD <strong>of</strong>fered to health<br />

and education pr<strong>of</strong>essionals through<br />

their institutions includes knowledge and<br />

awareness <strong>of</strong> the needs <strong>of</strong> this specific group<br />

<strong>of</strong> people<br />

• ensure that social service staff members<br />

receive adequate education in child-welfare<br />

issues relating to parents who have ASD 39<br />

(Recommendation 6.4, Pr<strong>of</strong>essional learning<br />

and development).<br />

2.1.f People raised by parents with ASD<br />

A number <strong>of</strong> issues are raised in calling for<br />

further research to better support people with<br />

ASD in their role as parents 127 , including:<br />

• research on the needs <strong>of</strong> parents with ASD<br />

• research to identify the needs <strong>of</strong> children<br />

parented by people with ASD<br />

• parent education and workshops which <strong>of</strong>fer<br />

ASD-appropriate supports and resources<br />

• specific training for counsellors to work with<br />

children who are parented by people with<br />

ASD (Recommendation 6.5, Pr<strong>of</strong>essional learning<br />

and development).<br />

Part 2<br />

There is limited information on what it means<br />

to be parented by someone who has ASD. A<br />

small number <strong>of</strong> websites and publications<br />

provide personal insights from adults 126-128 .<br />

Very little research information was identified<br />

on the experiences <strong>of</strong> young children parented<br />

by people with ASD (Recommendation 2.1.8). A<br />

number <strong>of</strong> important child-welfare issues need<br />

to be addressed when the parenting threshold<br />

for an ASD parent has been exceeded, including<br />

the needs <strong>of</strong> children in custody arrangements<br />

or following the death <strong>of</strong> a parent.<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong> 69

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