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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 1: Diagnosis and initial assessment <strong>of</strong> ASD<br />

1.2.b Young people and adults<br />

Components <strong>of</strong> diagnostic assessment<br />

The diagnostic team and sources <strong>of</strong><br />

diagnostic assessment<br />

Interagency or multidisciplinary assessments<br />

or both are recommended for young people<br />

11 33<br />

and adults suspected <strong>of</strong> having an ASD<br />

39-42<br />

(Recommendation 1.2.2). Although it is<br />

possible for a single clinician with experience<br />

evaluating ASD to make a diagnosis in very<br />

young children, assessment and diagnosis by a<br />

team <strong>of</strong> health care practitioners experienced in<br />

ASD is recommended for older individuals 33 . In<br />

<strong>New</strong> <strong>Zealand</strong>, recommendations and proposals<br />

have been made for the development <strong>of</strong><br />

specialist ASD services which could undertake<br />

this role for people with ASD <strong>of</strong> all ages 43-45 , but<br />

they have not been implemented.<br />

Diagnostic assessment for young children<br />

has been outlined in section 1.2.a. A similar<br />

assessment should be undertaken for young<br />

people and adults 33 46 . Diagnosing people<br />

from these age groups presents a number <strong>of</strong><br />

challenges, however, which include:<br />

• recognising the wide range <strong>of</strong> expression <strong>of</strong><br />

the symptoms <strong>of</strong> ASD which are influenced<br />

by the person’s level <strong>of</strong> maturity, lifetime<br />

experiences and cognitive ability 38<br />

• the likelihood <strong>of</strong> more complex differential<br />

diagnosis because <strong>of</strong> the increasing possibility<br />

<strong>of</strong> alternative diagnoses and co-morbid<br />

conditions 46<br />

• competing diagnoses which may overshadow<br />

ASD<br />

Part 1<br />

Currently, within <strong>New</strong> <strong>Zealand</strong>, there is no<br />

formal referral pathway for ASD assessment<br />

and diagnosis <strong>of</strong> adults. In some areas, referral<br />

pathways for young people are also unclear<br />

(Recommendation 1.2.3). Private health care<br />

practitioners are <strong>of</strong>ten approached to carry<br />

out diagnostic assessments. The health care<br />

practitioners most likely to be able to diagnose<br />

ASD in young people and adults include clinical<br />

psychologists, educational psychologists, child<br />

and adolescent psychiatrists and adult mental<br />

health psychiatrists (Recommendation 1.2.2).<br />

However, not all health care practitioners<br />

have expertise in ASD, and identifying ASDcompetent<br />

health care practitioners able to<br />

diagnose older adolescents and adults is an<br />

ongoing issue. When seeking a practitioner or<br />

team to undertake a diagnostic assessment,<br />

the choice <strong>of</strong> health care practitioner should be<br />

based on their post-qualification education and<br />

areas <strong>of</strong> specialisation, and recommendations<br />

from within the ASD community (Good Practice<br />

Point 6.26, Pr<strong>of</strong>essional learning and development).<br />

A suggested pathway for the identification and<br />

assessment process for young people and adults<br />

who may have ASD is outlined in Figure 2<br />

which can be found at the end <strong>of</strong> this section.<br />

• difficulty obtaining accurate and detailed<br />

early developmental history as the age <strong>of</strong> the<br />

individual increases 19 38 .<br />

Research and expert opinion support diagnostic<br />

assessment that includes the following<br />

components:<br />

• detailed health, developmental and<br />

behavioural history (usually from parents<br />

and other informants)<br />

• detailed assessment <strong>of</strong> patterns <strong>of</strong> skills,<br />

disabilities and behaviours<br />

• comprehensive record and file review<br />

• medical evaluation<br />

• social and emotional abilities and interactions<br />

• direct evaluation <strong>of</strong> the person through<br />

interview and observation in a range <strong>of</strong><br />

environments<br />

• formal assessment <strong>of</strong> intellectual functioning,<br />

in order to better understand the person’s<br />

abilities and their prognosis, but not as a<br />

diagnostic tool in itself<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong> 51

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