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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 5: Living in the community<br />

Part 5<br />

using money and waiting in line). Control and<br />

choice are at the core <strong>of</strong> self-determination and<br />

should be the principles on which any recreation<br />

or leisure involvement is based. A person’s<br />

strengths should therefore be taken into account<br />

to ensure that he or she has a sense <strong>of</strong> control<br />

and choice 381 .<br />

Two independent reviews <strong>of</strong> literature and<br />

health and disability services for people with<br />

intellectual disability in <strong>New</strong> <strong>Zealand</strong> have<br />

identified a number <strong>of</strong> strategies to promote<br />

community participation 159 376 . These include:<br />

• person-centred planning with a focus on<br />

individual abilities, including strengths,<br />

capacities, interests and experiences, and<br />

respecting the choices and preferences <strong>of</strong> the<br />

person concerned (Recommendation 5.2.3)<br />

• working with local neighbourhoods and<br />

communities to promote participation in and<br />

planning for integrated activities<br />

• working to change communities to ensure<br />

they become less prejudiced and more<br />

inclusive <strong>of</strong> people with ASD<br />

• identifying and using natural (unpaid)<br />

supports<br />

• providing formal support<br />

• using visual supports (eg, social calendars to<br />

promote choice and preferences)<br />

• developing individual leisure plans that are<br />

regularly evaluated (Recommendation 5.2.4)<br />

• identifying services and staff with<br />

responsibility for leisure plans, and ensuring<br />

they have appropriate education and<br />

resources (Recommendation 5.2.4)<br />

• ensuring that policy and service design<br />

address barriers to leisure.<br />

In <strong>New</strong> <strong>Zealand</strong>, the Halberg Trust links people<br />

with disability to sport and active leisure, as<br />

do disability not-for-pr<strong>of</strong>it community groups.<br />

Information about recreational programmes<br />

in the community can be accessed through the<br />

Needs Assessment and Service Coordination<br />

(NASC) agency, the Citizens Advice Bureau,<br />

<strong>Autism</strong> <strong>New</strong> <strong>Zealand</strong> and Disability Information<br />

Advisory Services.<br />

5.2.c Children with ASD<br />

Difficulty in understanding and following social<br />

situations and cues can cause problems during<br />

interactions for people with ASD. Problems with<br />

self-initiation, motor planning and sequencing,<br />

plus a restricted repertoire <strong>of</strong> interests and<br />

play activities, mean that many children with<br />

ASD have difficulty developing play skills that<br />

enable them to occupy themselves productively.<br />

Play can be one <strong>of</strong> the most difficult times for<br />

children with ASD: it is less structured and<br />

harder to understand because <strong>of</strong> the many social<br />

aspects to follow and involves initiation and<br />

follow-through 374 .<br />

Many children with ASD need to be taught<br />

play skills that can provide the basis for more<br />

complex social play later on. All children with<br />

ASD should have access to good-quality play<br />

opportunities, including one-to-one support and<br />

adapted toys and equipment (Recommendation<br />

5.2.5). Consideration <strong>of</strong> the environment and<br />

the context in which new skills are to be taught<br />

is important, because some children with<br />

ASD experience difficulty transferring skills<br />

to different settings. For example, planning<br />

and communication between families and<br />

carers is important, where children and young<br />

people are provided with a respite service. Any<br />

environment needs to be structured, predictable<br />

and support the function <strong>of</strong> the child in<br />

communication, personal independence and safe<br />

leisure skills 374 (Recommendation 5.2.6).<br />

A child with ASD is likely to need help to<br />

explore recreation options. Children with ASD<br />

<strong>of</strong>ten display initial resistance to try a new<br />

experience, which could be driven by dislike<br />

<strong>of</strong> new or novel situations, or resistance to<br />

change. All children develop new interests and<br />

have preferences, and children with ASD can<br />

have strong and unusual interests. Determining<br />

whether these interests are appropriate needs<br />

careful consideration. The challenge is to explore<br />

176<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong>

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