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New Zealand Autism Spectrum Disorder Guideline - Ministry of Health

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Part 5: Living in the community<br />

all opportunities while maintaining structure,<br />

keeping the child safe and in good health, and<br />

maintaining the right balance <strong>of</strong> activities 23 . Jen<br />

Birch, a <strong>New</strong> <strong>Zealand</strong>er who provides personal<br />

insight into her life as an adult diagnosed with<br />

ASD, suggests careful monitoring <strong>of</strong> the amount<br />

<strong>of</strong> recreational activity in which an individual<br />

participates and providing an adequate balance<br />

in learning, recreation and special interests 164 .<br />

5.2.d Young people with ASD<br />

Young people with ASD <strong>of</strong>ten have particular<br />

difficulties with social interaction and<br />

reciprocity. The severity <strong>of</strong> social impairment<br />

and practical language problems varies greatly<br />

within the ASD population, with observable<br />

behaviours including high levels <strong>of</strong> anxiety,<br />

obsessional disorders, depression, suicidal<br />

ideation, rage and defiance 289 382 383 .<br />

Adolescence marks the transition from<br />

childhood to adulthood, with the accompanying<br />

pressure to conform. Typical characteristics<br />

noted in adolescents with ASD are:<br />

• poor communication skills<br />

• excellent vocabulary<br />

• intense interests and pursuits (usually<br />

isolative) that can seem obsessive<br />

• a tendency to prefer predictable events,<br />

resulting in problems <strong>of</strong> social flexibility<br />

• problems in self-organisation and<br />

productivity, especially around school work<br />

• a preference and overt wish to engage in selfinterest<br />

activities.<br />

There is general consensus from experts in ASD<br />

internationally about the support strategies and<br />

services that can assist young people with ASD 39<br />

289 382 384<br />

.<br />

• one-to-one support for acquiring social skills,<br />

time to achieve these skills and a safe place<br />

for practice<br />

• being taught friendship skills<br />

• adults acting as guides and coaches,<br />

facilitating relationships and providing<br />

opportunities to interact with peers<br />

• life-skills training<br />

• opportunities for supervised highinterest<br />

activities <strong>of</strong>ten enjoyed by people<br />

with ASD (chess clubs, computer clubs,<br />

animal husbandry, writing classes, music<br />

appreciation, etc)<br />

• alternatives to unstructured social situations<br />

• availability <strong>of</strong> safe adults who can be<br />

accessed in times <strong>of</strong> crisis<br />

• specialised staff<br />

• if required by an individual, ongoing support<br />

to help build and maintain social contacts.<br />

Individual support is sometimes needed<br />

to link the person into existing community<br />

activities, interests, clubs and leisure facilities<br />

and also to help them identify social networks<br />

(Recommendation 5.2.7). Some <strong>New</strong> <strong>Zealand</strong><br />

schools have included leisure and recreation<br />

planning in a student’s transition programme.<br />

It is important that information in a student’s<br />

transition plan is shared with post-school<br />

providers 39 (Recommendation 5.2 3).<br />

5.2.e Adults with ASD<br />

Leisure activities can be an important source <strong>of</strong><br />

empowerment, self-expression and community<br />

participation for adults. For full community<br />

participation, social relationships and networks<br />

are <strong>of</strong> critical importance 376 (Recommendation<br />

5.2 8).<br />

Young people with ASD can be supported<br />

through:<br />

• social therapy and social skills groups<br />

People with ASD can have strong and<br />

sometimes unusual interests and incorporating<br />

these into a leisure plan is an important issue to<br />

address. Interests can be expanded to include<br />

those that are more socially acceptable and<br />

Part 5<br />

<strong>New</strong> <strong>Zealand</strong> <strong>Autism</strong> <strong>Spectrum</strong> <strong>Disorder</strong> <strong>Guideline</strong> 177

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