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Socio-Economic Impact of HIV and AIDS in Tamil nadu

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Chapter 8<br />

Stigma <strong>and</strong> Discrim<strong>in</strong>ation,<br />

Knowledge <strong>and</strong> Awareness<br />

about <strong>HIV</strong> <strong>and</strong> <strong>AIDS</strong><br />

8.1 Introduction<br />

<strong>HIV</strong> is an <strong>in</strong>fection that preys on social,<br />

economic <strong>and</strong> community vulnerabilities.<br />

From the beg<strong>in</strong>n<strong>in</strong>g, the <strong>in</strong>fection has<br />

been accompanied by social responses<br />

<strong>of</strong> widespread stigma <strong>and</strong> discrim<strong>in</strong>ation.<br />

Because <strong>of</strong> its association with lifestyle<br />

choices that are considered socially<br />

unacceptable by many, <strong>HIV</strong> <strong>in</strong>fection is<br />

widely stigmatised. People liv<strong>in</strong>g with<br />

the virus are discrim<strong>in</strong>ated aga<strong>in</strong>st.<br />

Equally responsible for this attitude is<br />

the lack <strong>of</strong> proper knowledge among<br />

people about the <strong>in</strong>fection <strong>and</strong> the many<br />

misconceptions that exist around it.<br />

Stigmatisation <strong>and</strong> discrim<strong>in</strong>ation not<br />

only affect the rights <strong>of</strong> the people liv<strong>in</strong>g<br />

with this condition, it discourages them<br />

from disclos<strong>in</strong>g their status, <strong>in</strong> many<br />

cases, even to their spouses <strong>and</strong> hence<br />

contributes to others gett<strong>in</strong>g <strong>in</strong>fected.<br />

This chapter analyses the stigma <strong>and</strong><br />

discrim<strong>in</strong>ation faced by the sample<br />

PLWHA <strong>in</strong> four different sett<strong>in</strong>gs <strong>in</strong><br />

the state <strong>of</strong> <strong>Tamil</strong> Nadu, namely their<br />

family, the community <strong>in</strong> which they<br />

live, their workplace <strong>and</strong> the healthcare<br />

facilities where they seek treatment.<br />

This chapter also <strong>in</strong>cludes the views<br />

<strong>and</strong> attitude <strong>of</strong> the general population<br />

about <strong>HIV</strong> <strong>and</strong> <strong>AIDS</strong>, s<strong>in</strong>ce stigma <strong>and</strong><br />

discrim<strong>in</strong>ation aga<strong>in</strong>st PLWHA arise<br />

mostly due to lack <strong>of</strong> knowledge <strong>and</strong><br />

awareness <strong>and</strong> misconceptions about<br />

the <strong>in</strong>fection. Before discuss<strong>in</strong>g the<br />

stigma <strong>and</strong> discrim<strong>in</strong>ation faced by<br />

PLWHA, details about the ways <strong>in</strong> which<br />

the sample PLWHA discovered their <strong>HIV</strong><br />

status <strong>and</strong> the disclosure <strong>of</strong> their status<br />

to their family members <strong>and</strong> others are<br />

presented.<br />

8.2 Discover<strong>in</strong>g <strong>HIV</strong> status<br />

An <strong>HIV</strong> <strong>in</strong>fected person would not know<br />

his/her <strong>HIV</strong> status unless he/she goes <strong>in</strong><br />

for a blood test after a prolonged illness<br />

or at the time <strong>of</strong> donat<strong>in</strong>g blood or dur<strong>in</strong>g<br />

pregnancy. Health counsellors also<br />

recommend the spouses <strong>of</strong> those who<br />

test <strong>HIV</strong>-positive to go <strong>in</strong> for voluntary<br />

test<strong>in</strong>g. Table 8.1 shows that while<br />

nearly 64 percent <strong>of</strong> the men who had<br />

tested <strong>HIV</strong>-positive had gone <strong>in</strong> for<br />

a test after prolonged illness, only 24<br />

percent <strong>of</strong> women had gone <strong>in</strong> for test<strong>in</strong>g<br />

after prolonged illness. A number <strong>of</strong><br />

women, as high as 64 percent, had<br />

gone <strong>in</strong> for voluntary test<strong>in</strong>g <strong>and</strong> a large<br />

percentage <strong>of</strong> such women had done<br />

so after discover<strong>in</strong>g the <strong>HIV</strong> status <strong>of</strong><br />

their husb<strong>and</strong>s. Around 9 percent <strong>of</strong><br />

the women discovered their <strong>HIV</strong> status<br />

dur<strong>in</strong>g pregnancy <strong>and</strong> a few men also<br />

discovered their status when their wives<br />

tested positive dur<strong>in</strong>g pregnancy.<br />

Stigma <strong>and</strong> Discrim<strong>in</strong>ation<br />

107

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