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Socio-Economic Impact of HIV and AIDS in Tamil nadu

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differences <strong>in</strong> enrolment <strong>and</strong> dropout<br />

rates <strong>of</strong> children <strong>and</strong> time use pattern <strong>of</strong><br />

all the household members. In addition to<br />

this, the <strong>in</strong>terview schedule for non-<strong>HIV</strong><br />

households had a section on knowledge,<br />

awareness <strong>and</strong> attitude (<strong>in</strong>clud<strong>in</strong>g views<br />

on stigma <strong>and</strong> discrim<strong>in</strong>ation) towards<br />

<strong>HIV</strong> <strong>and</strong> <strong>AIDS</strong>.<br />

The questionnaire for the <strong>HIV</strong> households<br />

was designed to gather basic <strong>in</strong>formation<br />

about migration history, <strong>HIV</strong> status <strong>of</strong> the<br />

person, stigma <strong>and</strong> discrim<strong>in</strong>ation <strong>in</strong> the<br />

family, community, workplace, health<br />

facilities <strong>and</strong> educational <strong>in</strong>stitutions.<br />

Details about the economic impact<br />

on the household like cost <strong>of</strong> medical<br />

treatment, cop<strong>in</strong>g mechanisms <strong>and</strong><br />

loss <strong>of</strong> <strong>in</strong>come/employment were also<br />

collected.<br />

2.2 Qualitative techniques<br />

In addition to the household survey, case<br />

studies <strong>and</strong> Focus Group Discussions<br />

(FGDs) were conducted <strong>in</strong> order to collect<br />

<strong>in</strong>formation that would supplement<br />

the f<strong>in</strong>d<strong>in</strong>gs <strong>of</strong> quantitative survey<br />

<strong>and</strong> probe <strong>in</strong>to the how <strong>and</strong> why. An<br />

NCAER research team that is well<br />

t r a i n e d i n q u a l i t a t i v e re s e a rc h<br />

techniques they themselves conducted<br />

the case studies <strong>and</strong> FGDs.<br />

2.2.1 Case studies<br />

Case studies were conducted to capture<br />

<strong>in</strong>-depth <strong>in</strong>formation on PLWHA. Case<br />

studies are a better tool to capture<br />

problems like stigma <strong>and</strong> discrim<strong>in</strong>ation<br />

with<strong>in</strong> the household. Chatt<strong>in</strong>g with<br />

the PLWHA us<strong>in</strong>g semi-structured<br />

<strong>in</strong>-depth <strong>in</strong>terview schedules makes<br />

them feel more relaxed <strong>and</strong> gives<br />

them the confidence to reveal facts<br />

more comfortably. For the purpose <strong>of</strong><br />

conduct<strong>in</strong>g case studies, unique/typical<br />

cases <strong>of</strong> PLWHA were selected with the<br />

help <strong>of</strong> field <strong>in</strong>vestigators, NGOs <strong>and</strong> key<br />

<strong>in</strong>formants <strong>of</strong> the locality. In the state <strong>of</strong><br />

<strong>Tamil</strong> Nadu, two such case studies were<br />

conducted.<br />

2.2.2 Focus group discussions<br />

The FGDs were conducted with the<br />

members <strong>of</strong> the Network <strong>of</strong> Positive<br />

Persons. The ma<strong>in</strong> purpose <strong>of</strong> conduct<strong>in</strong>g<br />

the FGDs with the Network <strong>of</strong> Positive<br />

Persons was to underst<strong>and</strong> social <strong>and</strong><br />

economic problems faced by them <strong>and</strong><br />

the legal <strong>and</strong> other issues taken up by the<br />

network. The f<strong>in</strong>d<strong>in</strong>gs from FGDs are <strong>of</strong><br />

help <strong>in</strong> the analysis <strong>and</strong> <strong>in</strong>terpretation <strong>of</strong><br />

data collected by the household survey<br />

<strong>and</strong> hence complement the survey. The<br />

NCAER research team conducted Focus<br />

Group Discussions <strong>in</strong> Theni district at<br />

Cambam on 5th January, 2005 at the<br />

<strong>of</strong>fice <strong>of</strong> the Cumban Network <strong>of</strong> Positive<br />

People <strong>and</strong> there were 21 participants. (A<br />

summary <strong>of</strong> the discussion is presented<br />

<strong>in</strong> the Appendix)<br />

2.2.3 Tra<strong>in</strong><strong>in</strong>g <strong>of</strong> field<br />

<strong>in</strong>vestigators<br />

Both men <strong>and</strong> women <strong>in</strong>vestigators were<br />

employed to canvass the questionnaires.<br />

The questionnaires were translated<br />

<strong>in</strong>to <strong>Tamil</strong> <strong>and</strong> those who were fluent <strong>in</strong><br />

the language were selected for conduct<strong>in</strong>g<br />

the survey. The NCAER researchers<br />

provided tra<strong>in</strong><strong>in</strong>g to the field <strong>in</strong>vestigators<br />

<strong>and</strong> also supervised the survey. The<br />

<strong>in</strong>vestigators were given both classroom<br />

<strong>and</strong> field tra<strong>in</strong><strong>in</strong>g to enable them to<br />

adm<strong>in</strong>ister the questionnaires. S<strong>in</strong>ce<br />

the subject <strong>of</strong> the study is <strong>of</strong> a sensitive<br />

nature, the <strong>in</strong>vestigators were tra<strong>in</strong>ed<br />

to conduct the <strong>in</strong>terviews keep<strong>in</strong>g<br />

<strong>in</strong> m<strong>in</strong>d the ethical issues <strong>in</strong>volved<br />

<strong>and</strong> were required to get the verbal<br />

consent <strong>of</strong> the respondents prior to<br />

<strong>in</strong>terview<strong>in</strong>g them.<br />

The questionnaire<br />

for the <strong>HIV</strong><br />

households was<br />

designed to gather<br />

basic <strong>in</strong>formation<br />

about migration<br />

history, <strong>HIV</strong><br />

status <strong>of</strong> the<br />

person, stigma<br />

<strong>and</strong> discrim<strong>in</strong>ation<br />

<strong>in</strong> the family,<br />

community,<br />

workplace,<br />

health facilities<br />

<strong>and</strong> educational<br />

<strong>in</strong>stitutions<br />

Data <strong>and</strong> Methodology<br />

17

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