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Annex I: FGD Operational Flow ChartFocus Group Discussion with PLHIVIMPACT1. Coping factors/obstacles2. Motivations to seekhelp/resources3. Awareness of law/policies4. Desire to participate inHIV/AIDS issuesHealth Economic Social Psychological/emotionalHealth affected?Changed yourphysicalbehaviour/lifestyle?Access tohealthcare? Anychanges?Self-help?HIV-relatedresourcesaccessed?Discrimination?Educationalstatus/access toeducation/motivationEmploymentstatus/careerprospectDiscrimination atworkplace?Financial status(earning capacity)Accommodation andtransportationDisclosure to whom?Experiences?Stigmatization/discrimination?Home and familylife?Friendships?Relationships withneighbors/community?Religiousparticipation/networks &spiritualityCircumstances ofinitial HIV test?Feelings at times ofHIV disclosure?Self esteem/ image?Outlook of life?Fears? Howaddressed?Major concerns forthe future?140
Annex II: FGD Guide for PLHIV GroupsFocus Group Discussion GuideThe Impact of HIV/AIDS on People Living with HIV/AIDS andTheir Families and Community in Malaysia(UNCT Project)Introduction:1. Ice-breaking session2. Explain purpose of discussion3. Interested in personal experiences and views4. Encourage each participant to express his or her views on each topic as well asrespond to the views expressed by others5. It’s alright to disagree with others6. Participants do not have to respond to an issue if they do not feel comfortabledoing so7. Views to be kept confidential8. Explain the necessity to audiotape9. Take verbal consent (for both FGD and audio-taping)10. Any questions before we start?The purpose of today’s discussion is to talk about how being diagnosed withHIV/AIDS has affected your life and what impact it has had on different aspects ofyour life. How were you diagnosed with HIV?_____________________________________________________________________I. Health/Physical Impact: How has HIV affected your health and physicalwell-being?‣ Physical effects/current needs• How is your health; What are your needs?‣ Changes in behavior/lifestyle• Such as diet, sexual behavior, prevention practices, etc.‣ Access to healthcare• How has it changed after your HIV diagnosis? What medical treatment orremedies have you undergone?‣ Self-help‣ HIV-related resources• For example, do you access any support networks or counseling,welfare/financial aid, information & education on HIV/AIDS, harmreduction programs? How do you feel about them?‣ Discrimination when seeking medical care?141
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Table of ContentsPROJECT TEAM 5ACKN
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Information received at the time of
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AcknowledgementsThis research is fu
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The main findings from the qualitat
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school or work, transport costs for
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is that the large majority of women
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In fact, special surveys conducted
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ObjectivesThe specific objectives o
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have been rejected by their immedia
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eport) that his/her healthcare (or
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CommunityKnowledge/awareness of HIV
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Framework of analysisA descriptive
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urban and a rural community. In all
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medication, the physical health com
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husbands working in other places wh
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(“And then, this doctor, he/she v
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their food. Nurses and their attend
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“Because we take drugs….no time
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The same claim to 100% condom use w
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in asking them to use condoms, even
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“Normally…..normally, memang ma
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(“But I continued using at that t
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“Buat pada permulaannya, saya mem
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However, not all experiences with d
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yang amat sangat. Tak pernah I rasa
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long term fears and anxieties. The
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“The first time I heard from the
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handset, I too, have handset. Some
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have been turning to God since and
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felt I’m indecent. But, at one ti
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would certainly want to continue wo
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(Transgender, 53 yrs, Upper seconda
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“Sometimes I didn’t get enough
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positively portray people living wi
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“After my diagnosis...I’ll pay
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not know or might not want to be bo
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(UNAIDS 2005).(UNAIDS 2000):The fac
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“…bawak saya pergi hospital. An
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erpindah ke tempat lain makin lama.
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pada HIV itu, dia nampak penagih. S
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(Male, 49yrs, University education,
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However this association with the n
Page 90 and 91: “…..depends on who is the perso
Page 92 and 93: (“I …my experience society will
Page 94 and 95: (“Can…can marry, no problem. Bu
Page 96 and 97: Harm Reduction programmeSome urban
Page 98 and 99: (“In my opinion such campaign sta
Page 100 and 101: Table 2aDistribution of Respondents
Page 102 and 103: female sex workers (seven out of 13
Page 104 and 105: NO. OF LIVING PARENTSNobody 7 1 1 2
Page 106 and 107: tested in drug rehabilitation cente
Page 108 and 109: GroupsDUHetero-SexuallyInfectedMenT
Page 110 and 111: y the Ministry of Health (74.2%) or
Page 113 and 114: Child CareYes, often 0 0 0 1 0 1 0
Page 115 and 116: GroupsDUHetero-SexuallyInfectedMenT
Page 117 and 118: Figure 5: Percentage of Respondents
Page 119 and 120: GroupsTable 12aEmotional Problems E
Page 121 and 122: Stigmatization and how it has affec
Page 123 and 124: GroupsTable 15How They Cope With Th
Page 125 and 126: Table 18Percentage Of Respondents W
Page 127 and 128: esponsible for their families. As m
Page 129 and 130: In this study, it took more effort
Page 131 and 132: eing transgender and sex worker whe
Page 133 and 134: denies them social and economic opp
Page 135 and 136: working towards their future, who c
Page 137 and 138: ReferencesAidsmeds.com (2006). Curr
Page 139: Sen G, George A, Ostlin P (2002). E
Page 143 and 144: ♦ Spouse: marital/sexual relation
Page 145 and 146: I. Attitudes and Perceptions relate
Page 147 and 148: I. HIV/AIDS Knowledge‣ What did y
Page 149 and 150: Annex V: Rapid Needs Assessment Que
Page 151 and 152: Types of support or responsibilityM
Page 153 and 154: Please tick (√)one onlyIf yes,ple
Page 155 and 156: more help would be useful for you i
Page 157 and 158: Annex VI: Ethics Approval Letter157
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