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not know or might not want to be bothered then the body would be kept for 14 days, afterwhich the body could be claimed by non-family. They want <strong>this</strong> policy/practice to bechanged so that a recognized HIV/<strong>AIDS</strong> NGO can apply to claim the body so that thedeceased can be buried or given last rites according to respective cultures in a dignifiedmanner. The Muslims felt very strongly since it is required that the body need to beburied before sunset.Not surprisingly, majority of the infected women respondents asked if the governmentcould help with free medication and treatment since they seemed the most in need andeconomically rather vulnerable group in the study.“Kenapa HIV kena bayar...mmm...sekarang ni saya kena bekerjasendiri...kalau tak ada kerja memang tak ada duit...kalau saya sakit?Sekarang ni saya masih sihat...saya tanggung dua orang anak...yangmasih bersekolah...Kalau ada mana-mana pihak yang boleh mengadukanbenda ini kepada kerajaan...”(“Why HIV (patients) have to pay...mmm...now I have to work alone...ifnot working surely no money...if I’m sick? Now I’m still healthy...I’ve tocare for two children...who are still schooling...If there’s any agency thatcan bring <strong>this</strong> matter up to the government...”)(Female, 46 yrs, Upper secondary education, Infected Partner)As the DU respondents from the urban location tended to be living in homes, some ofthem expressed there should be an “after-care” program once they leave the homes.“In <strong>this</strong> whole program is...something like “after-care”...after-careprogram is very less. Meaning like you know...we feel safe inside here.But what if we go out, what’s going to happen to us, you know, are wegoing to face again the same you know, back to square one. Start back thediscrimination again...or is that going to have a program. I feel like youknow like ah...what they are doing with the people with the addictionproblem you know, they have like centres where people can go and for...torecharge back your energy you know to move on and to fight your life, issomething like that. You know, they should have like more places forpeople with HIV to get access, you know, to counselling, to motivation, orto have a place where they can...sit and they can talk and they can feelamong themselves you know free...”(Male, 36 yrs, Upper secondary education, DU)The transgender sex workers are another group that are also economically vulnerable andpowerless. Since they encounter double discrimination, many of them expressed theywould welcome more government, statutory bodies, NGOs or charitable organisations tocome forward to help provide resources for their medication and treatment in particular.A number of them also asked if other resources like employment and temporary sheltercould be made available. Since many of them were either sheltered or working forWAKE at the time of the study, they were grateful to such an organisation providingthese resources and hoped there could be more of such set-ups or government couldcollaborate with such NGOs.76

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