school or work, transport costs for medical care, loss of income, school withdrawal,psychological/emotional trauma, for the individual, his/her family, the work place, and,ultimately, for the nation’s economy. HIV/<strong>AIDS</strong> has a multi-dimensional impact on acountry affecting social, demographic, economic and structural factors, not least, thehealth sector, family welfare and households, the education sector, business enterprisesand workplaces, and manpower resources. This wide spectrum of impact has beendocumented for Africa i but less so for affected countries in Asia. The recent UnitedNations Millennium Development Goals report commended Malaysia on its recordtowards achieving all MDG targets by 2015 except in halting and reversing the spread ofHIV/<strong>AIDS</strong> (UNDP 2005). An escalation of the HIV epidemic would seriously underminethe pace of socio-economic progress and the Nation’s Vision towards developed status by2020.Profile of HIV in MalaysiaSince the disease emerged in the mid-Eighties, the profile of reported HIV infections hasremained consistent, i.e., predominantly substance abusers (IDUs), male, 20-39 years ofage, Malaysian Malay ethnicity and heterosexual (Figure 1). The relatively young agegroupaffected implicates losses in human capital investments and productive resources.Furthermore, despite the preventive measures thus far, the persistence of the substanceabuse and dependence problem in Malaysia provides a continuous human pool ofpotential HIV infections. To reduce <strong>this</strong> risk, the Ministry of Health (MOH) andMalaysian <strong>AIDS</strong> Council (MAC) initiated the Harm Reduction programme in December2005 which will be expanded under the 2006-2010 National Strategic Plan on HIV/<strong>AIDS</strong>(MOH 2006b).Despite the preponderance of infected men, there is serious concern over the risingnumbers of women infected with HIV. Women with HIV bear the added risk of verticaltransmission to infants. In addition, although the present numbers and proportion aresmall, there also appears to be a rising trend in new HIV infections classified as MSMtransmission.14
Figure 1: % cumulative HIV cases by year and mode of transmission100%80%Percent60%40%UnknownMother-infantOrgan RecepientBlood RecepientHetrosexualHomo/BisexualInjecting Drug Users20%0%1990 1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003YearAs shown in Figure 1, the majority of infections are related to IDU. As testing,diagnoses and reporting improve over time, the proportion of infections classified underunknown causation has narrowed. Over the same period, the proportion of infectionsclassified as heterosexual has risen, particularly after 1995 when the Ministry of Health,as the lead agency in the country’s prevention and control strategy, expanded itsscreening programme, including through government antenatal clinics, prisons and drugrehabilitation centres.In fact, heterosexual transmission contributes a significant proportion of infectionsamong Chinese Malaysians, in contrast to Malay and Indian Malaysians for whom IDUtransmission predominates by far. Heterosexual transmission is also prominent in certainlocations, e.g., Sabah.With regards to the preponderance of IDU in Malaysia, it is recognised that <strong>this</strong> situationis partly due to reporting bias. Substance abusers are routinely tested for HIV when theyopt for treatment and rehabilitation or when they enter the criminal justice system.Although the direct route of disease transmission among <strong>this</strong> group is most likely throughcontaminated needles or other objects involved with injecting drugs, it is recognised thatunprotected sex may also be a risk factor. Furthermore, most of the substance abusers areheterosexual and risk infecting women partners and offspring. Other issues pertinent tosubstance dependence and the ensuing life circumstances, hamper prevention efforts,such as, fear of criminal prosecution, marginalisation, apathy and poverty. Hence, <strong>this</strong>group remains a priority in controlling the HIV epidemic.The rise in diagnosed infections via heterosexual transmission raises concerns forwomen. While HIV cases have continued to be overwhelmingly male, the percentage ofwomen has increased from 1.4% in 1990 to nearly seven percent (3,781 cases) in 2003.In terms of <strong>AIDS</strong>, the number of women diagnosed increased from two in 1991 to 700 in2003, representing about eight percent of all <strong>AIDS</strong> cases. Again, increased detection hasfollowed expanded HIV testing among women through mandatory testing in antenatalcare. The unequivocal difference between infections among men and women in Malaysia15
- Page 2 and 3: Table of ContentsPROJECT TEAM 5ACKN
- Page 4 and 5: Information received at the time of
- Page 6 and 7: AcknowledgementsThis research is fu
- Page 9: The main findings from the qualitat
- Page 16 and 17: is that the large majority of women
- Page 18 and 19: In fact, special surveys conducted
- Page 20 and 21: ObjectivesThe specific objectives o
- Page 22 and 23: have been rejected by their immedia
- Page 24 and 25: eport) that his/her healthcare (or
- Page 26 and 27: CommunityKnowledge/awareness of HIV
- Page 28 and 29: Framework of analysisA descriptive
- Page 30 and 31: urban and a rural community. In all
- Page 32 and 33: medication, the physical health com
- Page 34 and 35: husbands working in other places wh
- Page 36 and 37: (“And then, this doctor, he/she v
- Page 38 and 39: their food. Nurses and their attend
- Page 40 and 41: “Because we take drugs….no time
- Page 42 and 43: The same claim to 100% condom use w
- Page 44 and 45: in asking them to use condoms, even
- Page 46 and 47: “Normally…..normally, memang ma
- Page 48 and 49: (“But I continued using at that t
- Page 50 and 51: “Buat pada permulaannya, saya mem
- Page 52 and 53: However, not all experiences with d
- Page 54 and 55: yang amat sangat. Tak pernah I rasa
- Page 56 and 57: long term fears and anxieties. The
- Page 58 and 59: “The first time I heard from the
- Page 60 and 61: handset, I too, have handset. Some
- Page 62 and 63: have been turning to God since and
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felt I’m indecent. But, at one ti
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would certainly want to continue wo
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(Transgender, 53 yrs, Upper seconda
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“Sometimes I didn’t get enough
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positively portray people living wi
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“After my diagnosis...I’ll pay
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not know or might not want to be bo
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(UNAIDS 2005).(UNAIDS 2000):The fac
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“…bawak saya pergi hospital. An
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erpindah ke tempat lain makin lama.
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pada HIV itu, dia nampak penagih. S
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(Male, 49yrs, University education,
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However this association with the n
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“…..depends on who is the perso
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(“I …my experience society will
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(“Can…can marry, no problem. Bu
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Harm Reduction programmeSome urban
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(“In my opinion such campaign sta
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Table 2aDistribution of Respondents
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female sex workers (seven out of 13
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NO. OF LIVING PARENTSNobody 7 1 1 2
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tested in drug rehabilitation cente
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GroupsDUHetero-SexuallyInfectedMenT
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y the Ministry of Health (74.2%) or
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Child CareYes, often 0 0 0 1 0 1 0
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GroupsDUHetero-SexuallyInfectedMenT
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Figure 5: Percentage of Respondents
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GroupsTable 12aEmotional Problems E
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Stigmatization and how it has affec
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GroupsTable 15How They Cope With Th
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Table 18Percentage Of Respondents W
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esponsible for their families. As m
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In this study, it took more effort
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eing transgender and sex worker whe
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denies them social and economic opp
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working towards their future, who c
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ReferencesAidsmeds.com (2006). Curr
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Sen G, George A, Ostlin P (2002). E
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Annex II: FGD Guide for PLHIV Group
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♦ Spouse: marital/sexual relation
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I. Attitudes and Perceptions relate
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I. HIV/AIDS Knowledge‣ What did y
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Annex V: Rapid Needs Assessment Que
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Types of support or responsibilityM
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Please tick (√)one onlyIf yes,ple
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more help would be useful for you i
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Annex VI: Ethics Approval Letter157