felt I’m indecent. But, at one time, I thought, when I’m normal again, notaddicted to drug, I will automatically change. Change. I won’t be a crueland aggressive person. I will change”)(Male, 32yrs, Lower secondary education, DU)“I always wondering what would happen next. Tomorrow what’s going tohappen. Will I, will I wake up tomorrow? This kind of things, you know.Today healthy. When I see somebody really sick, I’ll be wondering will Ibe like him tomorrow or next week or next month. This kind of things Iam thinking”(Male, 40yrs, Upper secondary education, DU)Major concerns for the futureDifferent concerns for the future have been explored. These concerns depend on one’sown marital status such as the future of their children, some fearing death and some arepessimistic as to what the future holds for them. Some live one day at a time andwouldn’t dare think of the future. Some hope to get a job to finance their medicalexpenses. Others hope for a cure for HIV and <strong>AIDS</strong>. Other concerns are on a macrolevel such as the concern for governmental policies affecting the lives of people livingwith HIV and <strong>AIDS</strong>.“I was worried also at the same time what will happen to my children.Whom shall they turn to? All kind of things because my brothers havetheir own families. They won’t take my family”(Female, 54yrs, Lower secondary education, SW)“I look at the future as very bright for people living with HIV and <strong>AIDS</strong>now. I mean, there’s so much of medication. There’s so much ofinformation the government is giving. But it didn’t keep its promise ofgiving all free lah. But at least we have various supports when I comparedto other countries like Indonesia, Singapore, Thailand, Philippines. We’vegot better various supports for medication and things like <strong>this</strong>. So, it’sbetter for us. Most of the people who are living with HIV and <strong>AIDS</strong>, asyou can see, most of us are doing volunteer work. We don’t have a fixedsalary, fixed income and we are okay. This is the first line for some of uswho are on medication. It’s what the government is giving us. What willhappen when they go to second line regime? Can the government stillsupport? You know, we still have to look into these issues”(Male, 50yrs, Upper secondary education)“I don’t know what the future holds for me. I am still searching what Iwant to do, you know. Peace of mind, you know and everything turns outsmoothly. I think that’ll be enough”(Male, 44yrs, Upper secondary education, DU)“There is no guarantee. I don’t know how to plan for my future because Iam not sure when I go smoke back or I will not smoke back. Even thoughif I will not smoke back, I will die because of HIV. It’s very hard to planfor a person like me”(Male, 49yrs, University education, DU)64
“Masa depan anak-anak kita. Dia orang makin sehari makin besar.Makin sehari semakin bertambah. Makin mendengar kan. Jadi, suatumasa, satu ketika, kita kena perlu bagi tahu kepada mereka mengatakankita ni positif, mak positif, isteri pun positif”(“The future of my children. They grow up at each passing day. Theirunderstanding will be better. So, at certain time, we have to tell them thatwe are positive, mum is positive, wife is also positive”)(Male, 50yrs, Lower secondary education, DU)“Yang paling fikir pasal anak lah sebab masih kecil kan. Kalau boleh kitaminta kita sampai dia besar nanti umur dah besar dan tengok berjaya.Banyak-banyak berdoa pada Tuhan sekarang. Susah hati pasal masadepan saya tengok macam mana. Banyak doa saja”(“The thing I keep thinking is concerning my child because he/she stillyoung. If possible, I want to live to be able to see my child grows up andbecomes successful. Pray fervently to God now. I’m distress to thinkabout future, I’ll see how…Just pray only”)(Female, 29yrs, Upper secondary education, Infected Partner)“To resettle in another country by UNCHR and work for [my] family”(Male, 30yrs, Primary education, Refugee)“I am hoping and praying that one day HIV disease can be healed, and Ican be healed too”(Male, 24yrs, Primary education, Refugee)“Saya rasa nak kerja untuk teruskan hidup. Boring lah tak kerja. Sayarisau tentang sewa bilik saya dan saya rasa ceria nak teruskan hidup.Kita confident. If I get security job pun ok to keep me surviving”(“I felt like working to continue living. Boring…if don’t work. I amworried about my room rental and I feel motivated to go on living. We areconfident. If I get security job is also ok to keep me surviving”)(Transgender, 53yrs, Upper secondary education, SW)Economic ImpactImpact on work and incomeFor many respondents who are sick, they could not continue to work. Majority stoppedworking may it be due to being incapacitated by HIV illness, forced to resign due to openor tacit discrimination once diagnosis is revealed, or simply asked to leave their job. Tomany the loss of job and income is another huge blow and especially when expenseswould certainly increase as respondents need to spend money on treatment andsupplements, thus creating much worry and anxiety. Although many expressed they65
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Table of ContentsPROJECT TEAM 5ACKN
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Information received at the time of
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AcknowledgementsThis research is fu
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The main findings from the qualitat
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- Page 16 and 17: is that the large majority of women
- Page 18 and 19: In fact, special surveys conducted
- Page 20 and 21: ObjectivesThe specific objectives o
- Page 22 and 23: have been rejected by their immedia
- Page 24 and 25: eport) that his/her healthcare (or
- Page 26 and 27: CommunityKnowledge/awareness of HIV
- Page 28 and 29: Framework of analysisA descriptive
- Page 30 and 31: urban and a rural community. In all
- Page 32 and 33: medication, the physical health com
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- Page 36 and 37: (“And then, this doctor, he/she v
- Page 38 and 39: their food. Nurses and their attend
- Page 40 and 41: “Because we take drugs….no time
- Page 42 and 43: The same claim to 100% condom use w
- Page 44 and 45: in asking them to use condoms, even
- Page 46 and 47: “Normally…..normally, memang ma
- Page 48 and 49: (“But I continued using at that t
- Page 50 and 51: “Buat pada permulaannya, saya mem
- Page 52 and 53: However, not all experiences with d
- Page 54 and 55: yang amat sangat. Tak pernah I rasa
- Page 56 and 57: long term fears and anxieties. The
- Page 58 and 59: “The first time I heard from the
- Page 60 and 61: handset, I too, have handset. Some
- Page 62 and 63: have been turning to God since and
- Page 66 and 67: would certainly want to continue wo
- Page 68 and 69: (Transgender, 53 yrs, Upper seconda
- Page 70 and 71: “Sometimes I didn’t get enough
- Page 72 and 73: positively portray people living wi
- Page 74 and 75: “After my diagnosis...I’ll pay
- Page 76 and 77: not know or might not want to be bo
- Page 78 and 79: (UNAIDS 2005).(UNAIDS 2000):The fac
- Page 80 and 81: “…bawak saya pergi hospital. An
- Page 82 and 83: erpindah ke tempat lain makin lama.
- Page 84 and 85: pada HIV itu, dia nampak penagih. S
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- Page 88 and 89: However this association with the n
- Page 90 and 91: “…..depends on who is the perso
- Page 92 and 93: (“I …my experience society will
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GroupsDUHetero-SexuallyInfectedMenT
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Figure 5: Percentage of Respondents
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GroupsTable 12aEmotional Problems E
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Stigmatization and how it has affec
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GroupsTable 15How They Cope With Th
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Table 18Percentage Of Respondents W
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esponsible for their families. As m
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In this study, it took more effort
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eing transgender and sex worker whe
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denies them social and economic opp
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working towards their future, who c
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ReferencesAidsmeds.com (2006). Curr
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Sen G, George A, Ostlin P (2002). E
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Annex II: FGD Guide for PLHIV Group
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♦ Spouse: marital/sexual relation
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I. Attitudes and Perceptions relate
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I. HIV/AIDS Knowledge‣ What did y
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Annex V: Rapid Needs Assessment Que
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Types of support or responsibilityM
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Please tick (√)one onlyIf yes,ple
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more help would be useful for you i
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Annex VI: Ethics Approval Letter157