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[ E ] Buying vitamins / food supplements[ F ] Childcare payments[ G ] Children’s school fees, books, etc[ H ] Fees for my own education or training[ I ] Obtaining HIV-related medicaltherapies and treatment[ J ] Obtaining other medical care ortreatment[ K ] Others, please specify________________________17c. Please tell us what social / emotional problems you experience currently as a result ofyour HIV status. Please tick (√) all that apply.Please tick (√)one onlyIf yes,please tick (√)Social / emotional problemsYes, oftenYes, sometimesNo problemNot relevantDo you receivehelp for <strong>this</strong>problemcurrently?[ A ] Difficulty managing depression /anxiety[ B ] Low self-esteem[ C ] Poor outlook on future[ D ] Feeling isolation or alone[ E ] Relationship problem with yourpartner / husband / wife[ F ] Relationship problem with familymembers[ G ] Relationship problem with friends[ H ] Relationship problem with co-workers[ I ] Afraid to tell family members about myHIV status[ J ] Afraid to tell friends about my HIVstatus[ K ] Others, please specify_____________________________18. For those problems you have listed above (Questions 17a, 17b, 17c), do you think154
more help would be useful for you in coping with the problems? Please tell us for whichproblems you need more help.________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________19. Do you experience stigmatization / discrimination because of your HIV status?[ 1 ] Yes[ 2 ] No (Please go to Question 21)[ 3 ] No, because no one knows (Please go to Question 21)20. How has stigmatization / discrimination affected normal activities in your life?Please tick (√) all that apply.[ A ] Prevented me or my children from attending school[ B ] Health care workers now seem reluctant / anxious to treat me (eg. they avoidtouching me or postpone my appointments)[ C ] Cause me to change workplace or lose my job[ D ] Friends do not want to socialize with me[ E ] Neighbors do not allow their children to play with mine[ F ] Prevented me from attending religious activities due to the reaction of otherworshippers[ G ] Others, please specify ________________________________________________21. How do you cope with the challenges of being HIV positive?Please tick (√) all that apply.[ A ] Support from immediate family (eg. your parents, brothers & sisters, grandparents,your children)[ B ] Support from relatives (eg. cousin, uncle, aunt)[ C ] Support from long time friends[ D ] Support from other people living with HIV[ E ] Support from religious leaders[ F ] Support from counselor / staff at HIV/<strong>AIDS</strong> organization[ G ] Telephone helpline[ H ] Support from doctors / nurses / healthcare staff[ I ] Pamphlets for people living with HIV[ J ] Others, please specify ________________________________________________22. What are your main worries currently because of your HIV status?________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________23. Are you aware of any government help or services for people living with HIV?(Eg. treatment, medicine, school, welfare).155
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Table of ContentsPROJECT TEAM 5ACKN
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Information received at the time of
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AcknowledgementsThis research is fu
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The main findings from the qualitat
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school or work, transport costs for
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is that the large majority of women
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In fact, special surveys conducted
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ObjectivesThe specific objectives o
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have been rejected by their immedia
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eport) that his/her healthcare (or
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CommunityKnowledge/awareness of HIV
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Framework of analysisA descriptive
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urban and a rural community. In all
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medication, the physical health com
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husbands working in other places wh
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(“And then, this doctor, he/she v
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their food. Nurses and their attend
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“Because we take drugs….no time
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The same claim to 100% condom use w
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in asking them to use condoms, even
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“Normally…..normally, memang ma
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(“But I continued using at that t
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“Buat pada permulaannya, saya mem
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However, not all experiences with d
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yang amat sangat. Tak pernah I rasa
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long term fears and anxieties. The
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“The first time I heard from the
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handset, I too, have handset. Some
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have been turning to God since and
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felt I’m indecent. But, at one ti
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would certainly want to continue wo
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(Transgender, 53 yrs, Upper seconda
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“Sometimes I didn’t get enough
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positively portray people living wi
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“After my diagnosis...I’ll pay
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not know or might not want to be bo
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(UNAIDS 2005).(UNAIDS 2000):The fac
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“…bawak saya pergi hospital. An
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erpindah ke tempat lain makin lama.
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pada HIV itu, dia nampak penagih. S
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(Male, 49yrs, University education,
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However this association with the n
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“…..depends on who is the perso
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(“I …my experience society will
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(“Can…can marry, no problem. Bu
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Harm Reduction programmeSome urban
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(“In my opinion such campaign sta
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Table 2aDistribution of Respondents
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female sex workers (seven out of 13
Page 104 and 105: NO. OF LIVING PARENTSNobody 7 1 1 2
Page 106 and 107: tested in drug rehabilitation cente
Page 108 and 109: GroupsDUHetero-SexuallyInfectedMenT
Page 110 and 111: y the Ministry of Health (74.2%) or
Page 113 and 114: Child CareYes, often 0 0 0 1 0 1 0
Page 115 and 116: GroupsDUHetero-SexuallyInfectedMenT
Page 117 and 118: Figure 5: Percentage of Respondents
Page 119 and 120: GroupsTable 12aEmotional Problems E
Page 121 and 122: Stigmatization and how it has affec
Page 123 and 124: GroupsTable 15How They Cope With Th
Page 125 and 126: Table 18Percentage Of Respondents W
Page 127 and 128: esponsible for their families. As m
Page 129 and 130: In this study, it took more effort
Page 131 and 132: eing transgender and sex worker whe
Page 133 and 134: denies them social and economic opp
Page 135 and 136: working towards their future, who c
Page 137 and 138: ReferencesAidsmeds.com (2006). Curr
Page 139 and 140: Sen G, George A, Ostlin P (2002). E
Page 141 and 142: Annex II: FGD Guide for PLHIV Group
Page 143 and 144: ♦ Spouse: marital/sexual relation
Page 145 and 146: I. Attitudes and Perceptions relate
Page 147 and 148: I. HIV/AIDS Knowledge‣ What did y
Page 149 and 150: Annex V: Rapid Needs Assessment Que
Page 151 and 152: Types of support or responsibilityM
Page 153: Please tick (√)one onlyIf yes,ple
Page 157 and 158: Annex VI: Ethics Approval Letter157
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