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978-1572305441

autism

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Sally, Ann, and Danny 119<br />

“What we want to know is what tests can we do to see if the vaccination<br />

caused his autism?”<br />

“I don’t think there are any,” I reply, knowing that this answer will<br />

not satisfy.<br />

“What about urinary peptides or blood levels of proteins? Other research<br />

we have seen on the Net shows that kids with autism after the<br />

vaccination have abnormal levels of these chemicals.”<br />

“I would be interested in seeing those results. I find it hard to keep<br />

up with research that is only posted on various Websites. To me that<br />

could mean that the authors would prefer to not have their research<br />

scrutinized by members of the scientific community. That’s usually the<br />

minimum requirement for accepting as valid what people might claim<br />

to be true.”<br />

“That’s because most doctors don’t want to believe the research.”<br />

I sighed. This was going to be a long interview.<br />

* * *<br />

I see Joan and Dave and the triplets six months later. They have<br />

now had several months of intervention in a community child care setting<br />

with lots of extra support from people knowledgeable about<br />

autism. If the impairments in the children were transient or caused by<br />

something other than autism, one might expect that there would be a<br />

large improvement. I learn that the triplets have adapted well, they enjoy<br />

going to day care, are eager to get ready for school, and quickly participate<br />

in the activities. They do not need time to warm up but are at<br />

the sensory bins first thing. Sally is using her few words more communicatively,<br />

but the other two are still not talking. The difficulties in<br />

social interaction remain, and the preference for repetitive and solitary<br />

activity is still very strong. They are not really interacting with the other<br />

children in day care; they still love to watch videos; and Danny still<br />

jumps on the couch for hours at a time. I tell the parents that I think the<br />

triplets do in fact have autism. They take all this in stride. A few tears<br />

well up in Joan’s eyes, but she tells me she has already done her crying.<br />

Given the enormity of the predicament, I perhaps naively expected<br />

them to be more distraught, but of course they knew all along what was<br />

wrong with the children. Most parents are, in fact, devastated by the diagnosis<br />

and do their mourning in private, hopefully with the support of<br />

family and friends. It is parents who have trouble accepting the diagnosis,<br />

who do not mourn, who have the most difficult time moving on.

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