978-1572305441
autism
autism
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Sophie 185<br />
Sophie had to learn so much more—to go to stores without fear, to<br />
go to school without anxiety. Manners she can probably do without.<br />
During those difficult early school years, when Sophie resisted going to<br />
school, the mornings were particularly troublesome for Marianne. She<br />
had to struggle with Sophie, get her clothes on, encourage her to eat her<br />
breakfast and get her out the door to catch the school bus. Often Sophie<br />
put up so much resistance that she was late for the bus and Marianne<br />
had to drive her to school. Part of the problem was that Marianne felt so<br />
much pressure to get things done that much of the morning would be<br />
wasted and the many things she had to accomplish that day would be<br />
postponed. But once Marianne gave herself time, and the gift of not trying<br />
to do everything, her sense of pressure decreased and Sophie became<br />
more compliant. Now she was able to get Sophie off to school in a<br />
good mood—a major accomplishment for both of them.<br />
Greg and Marianne have learned to accommodate to Sophie’s<br />
perspective on the world. They’ve learned to read her signals and to respond<br />
to the subtlest forms of nonverbal communication—her grunts,<br />
her pointing, her rocking, and her pacing around. These were all indications<br />
of some desire or need. Above all they know her routines and her<br />
favorite toys, foods, and activities, so they are able to anticipate the<br />
meaning of her requests. They sometimes give in to Sophie’s demands,<br />
recognizing that she has no way to communicate her distress other than<br />
by having a temper tantrum, so giving in also teaches Sophie the value<br />
of communication. This is all part of Sophie’s difficulty in modulating<br />
her emotions to the environment. Once her parents understood that, it<br />
became easier to tolerate the occasional upheavals. They also learned to<br />
see that progress can be measured in small changes that others might<br />
overlook. One day she stopped picking up branches on the way to the<br />
library. Another day she pointed to a horse in the field while they were<br />
driving home. These accomplishments and changes were a great joy to<br />
them. These small steps forward were often not visible to others, but<br />
her parents could see them and could use them as a buttress against the<br />
despair they sometimes felt. They never doubted that Sophie loved<br />
them, though she could never communicate that in the traditional way.<br />
She would put her arm around her Mom and Dad, stick close to them in<br />
unfamiliar and strange environments, sit beside them while watching<br />
TV or when she was feeling unwell. If she seemed to reject them at<br />
other times, they never doubted that she loved them. She never said “I<br />
love you” to them, but of her feelings they had no doubt. They were<br />
able to imagine her love and need for them. But most important, they