Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC
Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC
Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC
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APPENDIX 8. PROVINCIAL AND NATIONAL PATIENT REGISTRIES INVOLVING<br />
B.C. INVESTIGATORS<br />
Name of Registry/ URL B.C. Contact Description<br />
254<br />
Has been monitoring the impact of cancer in the province since 1969. Registry tracks cancer<br />
incidence, diagnosis, mortality, gender <strong>and</strong> age to determine the trend of cancer B.C. as<br />
different patterns are seen in different age groups <strong>and</strong> sometimes for the same cancer in<br />
different sexes. This information identifies the most deadly cancer diseases <strong>and</strong> targets high<br />
risk groups.<br />
The Leukemia/BMT Program of B.C. contributes to this North American registry.<br />
Sharon Tamaro, Director<br />
stamaro@bccrc.ca<br />
Tel: 604 675 8070<br />
Cancer<br />
B.C. Cancer Registry, <strong>BC</strong>CA<br />
(www.bccancer.bc.ca/HPI/CancerStatistics/<br />
default.htm#bccanreg)<br />
Clay Smith. Director Leukemia/BMT<br />
Program of B.C.<br />
clsmith@bccancer.bc.ca<br />
Tel: 604-875-4863<br />
National Marrow Donor Program (www.<br />
marrow.org)<br />
Operated by B.C. Cardiac Registry <strong>and</strong> Evaluation Services at the PHSA to record information<br />
about patients going through the cardiac care system. The <strong>BC</strong>CR database contains<br />
information such as demographics, nature of cardiac surgeries, as well as diagnostic <strong>and</strong><br />
interventional catheterization procedures. This is one of the most comprehensive medical<br />
databases in Canada; it records over 30,000 diagnostic procedures per year <strong>and</strong> contains more<br />
than 10 years of high-quality cardiac catheterization <strong>and</strong> adult open heart surgery data. The<br />
data is gathered from all hospitals with catheterization labs in B.C. It contains data covering<br />
60 cardiologists, 17 cardiac surgeons <strong>and</strong> 6 sites (www.coe.ubc.ca/industry/projects/2005/<br />
Ron Carere. Regional Director of the<br />
Cardiac Program for VCH.<br />
rcarere@providencehealth.bc.ca<br />
Tel: 604 806-9139<br />
Cardiovascular/ Cardiology<br />
B.C. Cardiac Registry (www.phsa.ca/NR/<br />
rdonlyres/3B51D4FB-5384-4F26-AA50-7-<br />
B29443DB48B/27283/Cardiac_Strategic_<br />
Plan_Updated_final.pdf)<br />
cardiac_registry.pdf).<br />
A localized database of inflammatory markers prior to <strong>and</strong> post uncomplicated percutaneous<br />
coronary intervention (PCI) (a.k.a. angioplasty) followed by a brief infusion of eptifibatide.<br />
BRIEF PCI Registry (No URL) Graham Wong, Coronary Care Unit,<br />
Vancouver General Hospital<br />
gcwong@telus.net<br />
BRITISH COLUMBIA<br />
Tel: 604-875-5735<br />
A single-centre prospective carotid intervention registry on carotid stenting in symptomatic<br />
coronary disease. Contains information on clinical, procedural, lesion <strong>and</strong> other characteristics.<br />
Carotid Registry (No URL) Jackie Saw, Cardiology, Vancouver General<br />
Hospital<br />
jsaw@interchange.ubc.ca<br />
Tel: 604 875-5547