Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC

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Networks In Which B.C.’s Clinical Investigators Are Members (cont’d) Network Description International Alzheimer’s Disease Neuroimaging Initiative (www.nia.nih. A major research study, sponsored by the US NIH, to determine whether brain imaging can help predict onset and monitor progression of Alzheimer’s disease. gov/Alzheimers/ResearchInformation/ClinicalTrials/ADNI.htm) 290 Consortium of Multiple Sclerosis Satrs (www.mscare.org) Professional organization for MS healthcare providers and researchers in North America. Cancer/ Hematology National Canadian Brain Tumor Consortium (www.cbtc.ca) National investigator network of over 40 brain tumour specialists and researchers treating both pediatric and adult patients with brain tumour. An integral pillar of the Canadian Brain Tumour Network (CBTNet). CFRI members are involved in the studies. Canadian Pediatric Thrombosis & Hemostasis Network (no URL) N/A International Breast Cancer International Research Group (www.bcirg.org) Part of the Cancer International Research Group division of TRIO (Translational Research in Oncology), an international, not-for-profit, academic research organization consisting of an international scientific oncology division known as Breast Cancer International Research Group (BCIRG) and a clinical trial operations branch (CIRG) that serves and supports the scientific division in conducting and managing their clinical trials. Eastern Oncology Cooperative Group (http://ecog.dfci.harvard. One of the largest clinical cancer research organizations in the US, conducting multi-centre clinical trials in all types of edu) adult cancers. Hemophilia Prophylaxis networks (various) N/A National Surgical Adjuvant Breast and Bowel Project (NSABP). A clinical trials cooperative group supported since by the US National Cancer Institute (NCI). (www.nsabp.pitt.edu) Radiation Therapy Oncology Group (RTOG), US (www.rtog.org) RTOG is a key clinical research component of the American College of Radiology (ACR) and serves as a multi-institutional, international clinical cooperative group funded primarily by the National Cancer Institute. Southwest Oncology Group (SWOG), US (www.swog.org) One of the largest of the NCI-supported cancer clinical trials cooperative groups. BRITISH COLUMBIA Founded in 1998 by the National Heart Lung and Blood Institute (NHLBI), part of the National Institute of Health (NIH), to provide a US/Canadian structure to conduct clinical studies in thalassemia. Thalassemia Clinical Research Network (www.chori.org/Clinical_Studies/Thalassemia/TCRN.html) Infectious Diseases National Canadian Pediatric AIDS Research Group (CPARG) CFRI’s Jack Forbes is a member.
Network Description Maternal and Child Health (Not Disease Specific) Established under the CIHR Opportunity Program. National Canadian Neonatal and Pediatric Nutrition Network (CNPNN) (no URL) CLINICAL TRIALS AND PRECLINICAL INFRASTRUCTURE ASSET MAP Pediatric Emergency Research Canada (PERC) Network of health care professionals that was formed in 1995 to conduct multi-centre research projects. Currently PERC has 15 sites situated across Canada within teaching or pediatric hospitals. BCCH’s Ran Goldman is the B.C. representative. N/A The Network is part of the Canadian Cystic Fibrosis Foundation, which funds clinical trials and research in cystic fibrosis. National framework to support interdisciplinary collaboration and networking, bringing together research, surveillance and clinical and public health practices, with the ultimate goal of enhancing the quality of surveillance data and expanding our understanding of congenital anomalies. Other National Addressing Childhood Obesity through Research & Networking (ACORN) (no URL) Canadian Cystic Fibrosis Foundation Clinical Studies Network (CFF-CSN) (www.cysticfibrosis.ca) Canadian Congenital Anomalies Surveillance Network (CCASN) (www.phac-aspc.gc.ca/ccasn-rcsac/index-eng.php) Critical Care Research Network (www.criticalcareresearch.net) Network’s mission is to improve patient care and resource utilization through the rigorous evaluation of health delivery systems. Encompasses a broad spectrum of 9 teaching hospitals, 24 community hospitals, and many industry and government partners across Canada. International Diabetes TrialNet (www.diabetestrialnet.org) International network of researchers who are exploring ways to prevent, delay and reverse the progression of type 1 diabetes. Metabolic Diseases networks (various) N/A Pediatric Inflammatory Bowel Disease Collaborative Research N/A Group/ Registry (no URL) 291
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1 33 0 34 0 M A G N E T I C V A R 9
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ii BRITISH COLUMBIA
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2 EXECUTIVE SUMMARY BRITISH COLUMBI
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4 INTRODUCTION BRITISH COLUMBIA Wit
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6 Health Authority (URL) Key Facili
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8 FIGURE 2. Clinical Trials Units,
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10 Facility (URL if available) Pedi
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12 Facility (URL if available) Mood
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14 Facility (URL if available) Down
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16 Facility (URL if available) Clin
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18 Facility (URL if available) Gast
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20 TABLE 3. Clinical Trials Support
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22 Much clinical research - particu
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24 FIGURE 3. Source of Funds for Cl
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26 BRITISH COLUMBIA FIGURE 7. Thera
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28 BRITISH COLUMBIA Clinical Invest
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Disease Area Population Information
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32 CV/Cardiology CNS Pulmonary Canc
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34 TABLE 9. Health Economics and He
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36 TABLE 10. Epidemiology and Surve
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38 TABLE 12. Provincial Networks Th
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40 Network B.C. Investigator’s Ro
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42 Network B.C. Investigator’s Ro
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44 TABLE 14. Independent Clinical T
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46 COMPARATIVE POSITIONING OF B.C.
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48 ACKNOWLEDGEMENTS BRITISH COLUMBI
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50 APPENDIX 1-2 TABLE OF CONTENTS B
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52 PROVINCIAL HEALTH SERVICES AUTHO
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54 BRITISH COLUMBIA Edward Miller C
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56 BRITISH COLUMBIA Radiation Thera
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58 The Unit has 15 Principal Invest
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60 BRITISH COLUMBIA Neonatal Resear
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62 The B.C. Children’s Hospital p
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64 BRITISH COLUMBIA The clinical tr
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66 FRASER HEALTH AUTHORITY BRITISH
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68 BRITISH COLUMBIA tional therapis
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70 PROVIDENCE HEALTH CARE SOCIETY 4
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72 BRITISH COLUMBIA Quality control
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74 Clinical trials investigators in
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76 The facility has 13 investigator
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78 Staffing of the Centre is as fol
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80 Investigators: • Ayas, Najib
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82 BRITISH COLUMBIA Quality control
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84 The Research Group consists of t
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86 BRITISH COLUMBIA Multiple Sclero
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88 BRITISH COLUMBIA Gastroenterolog
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Since the Centre is located in St.
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TABLE A1. Providence Health Care So
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94 BRITISH COLUMBIA FIGURE A9. Cent
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96 BRITISH COLUMBIA The Unit suppor
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TABLE A2. CFRI Program-affiliated R
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100 BRITISH COLUMBIA Quality contro
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102 BRITISH COLUMBIA • Knowledge
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104 Its staffing is as follows: Stu
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106 APPENDIX 3. QUALITY CONTROL/ QU
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APPENDIX 5. CLINICAL TRIALS TRAININ
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APPENDIX 5. Clinical Trials Trainin
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112 APPENDIX 6 TABLE OF CONTENTS BR
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6.1 Clinical Trials Researchers Lis
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Pediatrics INSTITUTION EMAIL URL DI
Page 244 and 245: Pediatrics (cont’d) INSTITUTION E
Page 252 and 253: 248 APPENDICES 7-13 TABLE OF CONTEN
Page 254 and 255: 250 TABLE A3. Patient and Addiction
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Page 258 and 259: APPENDIX 8. PROVINCIAL AND NATIONAL
Page 260 and 261: APPENDIX 8. Provincial And National
Page 262 and 263: 258 APPENDIX 9. Healthcare Research
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Page 290 and 291: Networks In Which B.C.’s Clinical
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Page 316 and 317: 312 B.C. Centre for Disease Control
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