Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC

More documents

Recommendations

Info

APPENDIX 8. PROVINCIAL AND NATIONAL PATIENT REGISTRIES INVOLVING B.C. INVESTIGATORS Name of Registry/ URL B.C. Contact Description 254 Has been monitoring the impact of cancer in the province since 1969. Registry tracks cancer incidence, diagnosis, mortality, gender and age to determine the trend of cancer B.C. as different patterns are seen in different age groups and sometimes for the same cancer in different sexes. This information identifies the most deadly cancer diseases and targets high risk groups. The Leukemia/BMT Program of B.C. contributes to this North American registry. Sharon Tamaro, Director stamaro@bccrc.ca Tel: 604 675 8070 Cancer B.C. Cancer Registry, BCCA (www.bccancer.bc.ca/HPI/CancerStatistics/ default.htm#bccanreg) Clay Smith. Director Leukemia/BMT Program of B.C. clsmith@bccancer.bc.ca Tel: 604-875-4863 National Marrow Donor Program (www. marrow.org) Operated by B.C. Cardiac Registry and Evaluation Services at the PHSA to record information about patients going through the cardiac care system. The BCCR database contains information such as demographics, nature of cardiac surgeries, as well as diagnostic and interventional catheterization procedures. This is one of the most comprehensive medical databases in Canada; it records over 30,000 diagnostic procedures per year and contains more than 10 years of high-quality cardiac catheterization and adult open heart surgery data. The data is gathered from all hospitals with catheterization labs in B.C. It contains data covering 60 cardiologists, 17 cardiac surgeons and 6 sites (www.coe.ubc.ca/industry/projects/2005/ Ron Carere. Regional Director of the Cardiac Program for VCH. rcarere@providencehealth.bc.ca Tel: 604 806-9139 Cardiovascular/ Cardiology B.C. Cardiac Registry (www.phsa.ca/NR/ rdonlyres/3B51D4FB-5384-4F26-AA50-7- B29443DB48B/27283/Cardiac_Strategic_ Plan_Updated_final.pdf) cardiac_registry.pdf). A localized database of inflammatory markers prior to and post uncomplicated percutaneous coronary intervention (PCI) (a.k.a. angioplasty) followed by a brief infusion of eptifibatide. BRIEF PCI Registry (No URL) Graham Wong, Coronary Care Unit, Vancouver General Hospital gcwong@telus.net BRITISH COLUMBIA Tel: 604-875-5735 A single-centre prospective carotid intervention registry on carotid stenting in symptomatic coronary disease. Contains information on clinical, procedural, lesion and other characteristics. Carotid Registry (No URL) Jackie Saw, Cardiology, Vancouver General Hospital jsaw@interchange.ubc.ca Tel: 604 875-5547
Name of Registry/ URL B.C. Contact Description Localized registry containing demographic, clinical, coronary angiographic and other information on patients with Coronary Fibro Muscular Dysplasia. Christopher Buller, Interventional Cardiologist, Vancouver General & St. Paul’s Hospitals janet.crocombe@vch.ca (administrator) Tel: 604 875-4111 x 69821 Fibro Muscular Dysplasia (FMD) Registry (No URL) CLINICAL TRIALS AND PRECLINICAL INFRASTRUCTURE ASSET MAP A comprehensive multicentre epilepsy database, developed to study the impact of medical, psychological, social, demographic and other factors on epilepsy in Canada. It can also be used locally in the clinic for office record keeping, automated printout of a referral letter or graphing seizures and other data over time. The data in CEDAR are similar to those found in the patient’s chart. There are 20 participating centres across Canada which have entered data on over 8,000 adult and pediatric epilepsy patients. The information is available for research purposes to centres entering data as well as to academic researchers, the pharmaceutical industry and government agencies. The purpose of this unique project is to: • Collect comprehensive population-based data on pediatric (up to 18 yrs old) ischemic stroke (arterial ischemic stroke and sinus thrombosis) • Provide information, including prospective update of chart information, for randomized clinical trials testing treatments for childhood stroke. The recording period is January 1, 1992 to present and 16 pediatric tertiary care centres participate. Two hundred and twenty patients with stroke or cerebrovascular disease (131 AIS, Mary Connolly, Head of Division of Pediatric Neurology, BCCH. mconnolly@cw.bc.ca Tel: 604-875-2000 x 3512. CNS Canadian Epilepsy Database and Registry (CEDAR) (No URL; see www.ncbi.nlm.nih.gov/ pubmed/9827243) Contact: Bruce Bjornson, B.C. Children’s Hospital (BCCH) bbjornson@cw.bc.ca Tel: 604-875-2345 x 3510 Canadian Pediatric Ischemic Stroke Registry (No URL; see www.cfri.ca/our_research/ researchers/search_researchers/researcher_ detail.asp?ID=387) 32 SVT, 57 other cerebrovascular diseases) have been identified at BCCH. National database based in Vancouver that tracks specific outcome measures for people with traumatic forms of SCI and provides invaluable research data. Lvl 6, 818 West 10th Avenue Vancouver, B.C., V5Z 1M9 Tel: 604-707-2100 Rick Hansen Spinal Cord Injury Registry (www.rickhansenregistry.org) National surveillance program of HIV exposed and infected children, which is reported annually by the Public Health Agency of Canada (see www.cfri.ca/our_research/researchers/ search_researchers/researcher_detail.asp?ID=41). Infectious Diseases Canadian Perinatal HIV Database John (Jack) Forbes, BCCH jforbes@cw.bc.ca Tel: 604-875-2212 255 Localized registry of asthma patients. Pulmonary Asthma Registry at The Lung Centre, VGH Mark FitzGerald, Director of the Centre for Clinical Epidemiology and Evaluation markf@interchange.ubc.ca Tel: 604-875-4565
Page 1:
1 33 0 34 0 M A G N E T I C V A R 9
Page 4 and 5:
ii BRITISH COLUMBIA
Page 6 and 7:
2 EXECUTIVE SUMMARY BRITISH COLUMBI
Page 8 and 9:
4 INTRODUCTION BRITISH COLUMBIA Wit
Page 10 and 11:
6 Health Authority (URL) Key Facili
Page 12 and 13:
8 FIGURE 2. Clinical Trials Units,
Page 14 and 15:
10 Facility (URL if available) Pedi
Page 16 and 17:
12 Facility (URL if available) Mood
Page 18 and 19:
14 Facility (URL if available) Down
Page 20 and 21:
16 Facility (URL if available) Clin
Page 22 and 23:
18 Facility (URL if available) Gast
Page 24 and 25:
20 TABLE 3. Clinical Trials Support
Page 26 and 27:
22 Much clinical research - particu
Page 28 and 29:
24 FIGURE 3. Source of Funds for Cl
Page 30 and 31:
26 BRITISH COLUMBIA FIGURE 7. Thera
Page 32 and 33:
28 BRITISH COLUMBIA Clinical Invest
Page 34 and 35:
Disease Area Population Information
Page 36 and 37:
32 CV/Cardiology CNS Pulmonary Canc
Page 38 and 39:
34 TABLE 9. Health Economics and He
Page 40 and 41:
36 TABLE 10. Epidemiology and Surve
Page 42 and 43:
38 TABLE 12. Provincial Networks Th
Page 44 and 45:
40 Network B.C. Investigator’s Ro
Page 46 and 47:
42 Network B.C. Investigator’s Ro
Page 48 and 49:
44 TABLE 14. Independent Clinical T
Page 50 and 51:
46 COMPARATIVE POSITIONING OF B.C.
Page 52 and 53:
48 ACKNOWLEDGEMENTS BRITISH COLUMBI
Page 54 and 55:
50 APPENDIX 1-2 TABLE OF CONTENTS B
Page 56 and 57:
52 PROVINCIAL HEALTH SERVICES AUTHO
Page 58 and 59:
54 BRITISH COLUMBIA Edward Miller C
Page 60 and 61:
56 BRITISH COLUMBIA Radiation Thera
Page 62 and 63:
58 The Unit has 15 Principal Invest
Page 64 and 65:
60 BRITISH COLUMBIA Neonatal Resear
Page 66 and 67:
62 The B.C. Children’s Hospital p
Page 68 and 69:
64 BRITISH COLUMBIA The clinical tr
Page 70 and 71:
66 FRASER HEALTH AUTHORITY BRITISH
Page 72 and 73:
68 BRITISH COLUMBIA tional therapis
Page 74 and 75:
70 PROVIDENCE HEALTH CARE SOCIETY 4
Page 76 and 77:
72 BRITISH COLUMBIA Quality control
Page 78 and 79:
74 Clinical trials investigators in
Page 80 and 81:
76 The facility has 13 investigator
Page 82 and 83:
78 Staffing of the Centre is as fol
Page 84 and 85:
80 Investigators: • Ayas, Najib
Page 86 and 87:
82 BRITISH COLUMBIA Quality control
Page 88 and 89:
84 The Research Group consists of t
Page 90 and 91:
86 BRITISH COLUMBIA Multiple Sclero
Page 92 and 93:
88 BRITISH COLUMBIA Gastroenterolog
Page 94 and 95:
Since the Centre is located in St.
Page 96 and 97:
TABLE A1. Providence Health Care So
Page 98 and 99:
94 BRITISH COLUMBIA FIGURE A9. Cent
Page 100 and 101:
96 BRITISH COLUMBIA The Unit suppor
Page 102 and 103:
TABLE A2. CFRI Program-affiliated R
Page 104 and 105:
100 BRITISH COLUMBIA Quality contro
Page 106 and 107:
102 BRITISH COLUMBIA • Knowledge
Page 108 and 109:
104 Its staffing is as follows: Stu
Page 110 and 111:
106 APPENDIX 3. QUALITY CONTROL/ QU
Page 112 and 113:
APPENDIX 5. CLINICAL TRIALS TRAININ
Page 114 and 115:
APPENDIX 5. Clinical Trials Trainin
Page 116 and 117:
112 APPENDIX 6 TABLE OF CONTENTS BR
Page 118 and 119:
6.1 Clinical Trials Researchers Lis
Page 120 and 121:
Page 122 and 123:
Page 124 and 125:
Page 126 and 127:
Page 128 and 129:
Page 130 and 131:
Page 132 and 133:
Page 134 and 135:
Page 136 and 137:
Page 138 and 139:
Page 140 and 141:
Page 142 and 143:
Page 144 and 145:
Page 146 and 147:
Page 148 and 149:
Page 150 and 151:
Page 152 and 153:
Page 154 and 155:
Page 156 and 157:
Page 158 and 159:
Page 160 and 161:
Page 162 and 163:
Page 164 and 165:
Page 166 and 167:
Page 168 and 169:
Page 170 and 171:
Page 172 and 173:
Page 174 and 175:
Page 176 and 177:
Page 178 and 179:
Page 180 and 181:
Page 182 and 183:
Page 184 and 185:
Page 186 and 187:
Page 188 and 189:
Page 190 and 191:
Page 192 and 193:
Page 194 and 195:
Page 196 and 197:
Page 198 and 199:
Page 200 and 201:
Page 202 and 203:
Page 204 and 205:
Page 206 and 207:
Page 208 and 209: 6.2 Clinical Trials Researchers Lis
Page 242 and 243: Pediatrics INSTITUTION EMAIL URL DI
Page 244 and 245: Pediatrics (cont’d) INSTITUTION E
Page 252 and 253: 248 APPENDICES 7-13 TABLE OF CONTEN
Page 254 and 255: 250 TABLE A3. Patient and Addiction
Page 256 and 257: 252 TABLE A3. Patient and Addiction
Page 260 and 261: APPENDIX 8. Provincial And National
Page 262 and 263: 258 APPENDIX 9. Healthcare Research
Page 264 and 265: APPENDIX 9. Healthcare Research Cen
Page 288 and 289: APPENDIX 10. NATIONAL AND INTERNATI
Page 290 and 291: Networks In Which B.C.’s Clinical
Page 296 and 297: APPENDIX 11. INDEPENDENT CLINICAL T
Page 298 and 299: APPENDIX 11. Independent Clinical T
Page 308 and 309:
APPENDIX 11. Independent Clinical T
Page 310 and 311:
APPENDIX 12. PRECLINICAL STUDIES SE
Page 312 and 313:
APPENDIX 12. Preclinical Studies Se
Page 314 and 315:
APPENDIX 12. Preclinical Studies Se
Page 316 and 317:
312 B.C. Centre for Disease Control
Page 318 and 319:
314 University of Victoria Brenda D
Page 320:
316 BRITISH COLUMBIA
show all

Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC

Create successful ePaper yourself

Delete template?

Save as template?