Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC

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Networks In Which B.C.’s Clinical Investigators Play a Pivotal Role (cont’d) Network Description Network investigating childhood arthritis in Canada. Obtained CIHR funding for “Determinants of Risk and Outcome in Inflammatory Arthritis”, REACCH OUT (quality of life and outcomes in juvenile arthritis), and BBOP (Biologically Based Outcome Predictors) in Juvenile Idiopathic Arthritis. CFRI’s David Cabral is a member of the interim steering committee; and Lori Tucker is a PI on REACCH OUT. Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) (www.icaare.ca/index.php?option=com_content&tas k=view&id=44&Itemid=80) 288 International American Bronchology Association (www.aabronchology.org) Promoties excellence in clinical care, education, and research in the rapidly expanding fields of Bronchoscopy, Interventional Pulmonology, and Interventional Bronchoscopy. VCHRI’s Stephen Lam is past Director. Canadian Pharmacogenomics Network for Drug Safety A joint initiative of POPi and CMMT (CFRI), Vancouver B.C. One of only two active adverse drug reaction (ADR) surveillance networks in the world. Brings together leading scientists from many disciplines within industry, government, universities, hospitals, and research institutes to better understand and prevent severe ADRs. Currently recruiting patients to a trial on adverse drug reactions in children (ClinicalTrials.gov identifier: NCT00414115) and adults in Canada, US, Mexico, Europe. North American organization of pediatric rheumatologists who are building a multi-centre network of pediatric rheumatology research centres across the continent that will work together on clinical trials and research. CFRI’s David Cabral Childhood Arthritis & Rheumatism Research Alliance (CARRA) (www.carragroup.info; www.arthritis.org/carra.php) and Lori Tucker are co-founders. Co-directed by Scott Hofer, Victoria B.C. smhofer@uvic.ca. Collaborative research infrastructure for coordinated interdisciplinary, cross-national research aimed at replicating and extending research findings from a within-person perspective. The network is currently comprised of over 25 longitudinal studies on aging, spanning eight countries, with Integrative Analysis of Longitudinal Studies of Aging (IALSA) Research Network (http://lifelab.tss.oregonstate.edu/) a combined sample size of approximately 70,000 individuals. Promotes study of diagnosis and treatment using light and photosensitizers, disseminates such information to members of IPA, the medical community and the general public. Membership consists of the most prominent international clinicians and scientists involved in performing and researching photodynamic therapy (PDT) and photodiagnosis (PD). VCHRI’s Stephen Lam is a past President. International Photodynamic Association (IPA) (http://sites. pcmd.ac.uk/ipa/index.php) National Core for Neuroethics (www.neuroethics.ubc.ca) Based at UBC in Vancouver B.C. The permanent home for the International Neuroethics Network. BRITISH COLUMBIA
Networks In Which B.C.’s Clinical Investigators Are Members (Examples of National and International Networks) Network Description Cardiology National Canadian Heart Failure Network (www.chfn.ca) Established in 1999 to improve the current management of heart failure, implement new proven therapies in a timely manner, and collaborate in innovative research approaches to optimize patient management. Has five B.C. members: Abbotsford Heart Failure Clinic, Central Okanagan Association for Cardiac Function Office (Kelowna), Penticton Regional CLINICAL TRIALS AND PRECLINICAL INFRASTRUCTURE ASSET MAP Hospital, Surrey Memorial Hospital, St. Paul’s Hospital. Network of pediatric cardiac care providers from the four western provinces – B.C., Alberta, Saskatchewan, and Manitoba. Pediatric cardiac surgery is performed at two centres - Stollery Children's Hospital in Edmonton and B.C. Children's Hospital. Network follows standard diagnostic, investigation, and referral protocols. Western Canadian Children’s Heart Network (www.westernchildrensheartnetwork.ca) International Congenital Heart Surgeons Society (www.chss.org) Not-for-profit charitable corporation based in the US that sponsors and oversees multi-institutional clinical studies; links and educates investigators; and encourages and stimulates investigation and study that will increase the knowledge of congenital cardiac physiology, pathology and therapy, and to correlate and disseminate such knowledge. International group of physicians and allied professionals dedicated to improving the care of children and young adults with cardiac rhythm disturbances. The group's primary mission is to foster high-quality collaborative research and exchange of ideas on arrhythmia topics that are particularly relevant to infants and children. BCCH’s Shubhayan Sanatani is a member. Pediatric & Congenital Electrophysiology Society (www.pediatricepsociety.org) 289 Pediatric Heart Network (www.pediatricheartnetwork.com) Part of the US’ National Heart, Blood and Lung Institute of the NIH. Conducts trials to improve outcomes and quality of life in children who are born with or acquire heart disease. CNS National Canadian Pediatric Epilepsy Network (see http://cjns.meta- Network of scientists and health care professionals in partnership with organizations which provide education and suppress.com/app/home/contribution.asp?referrer=parent&bacport to children with epilepsy. Objective is to gain a better understanding of childhood epilepsy through collaborative kto=issue,11,20;journal,47,70;linkingpublicationresults,1:30 research conducted with doctors, psychologists, nurses, social workers, educators and scientists across Canada. 0307,1) Canadian Pediatric Neuromuscular Group N/A Canadian Consortium of Clinical Cognitive Research Centres Nationwide network of 35 clinics that evaluates and treats individuals with dementia and cognitive disorders. (C5R) (www.c5r.ca) Canadian Movement Disorder Group (www.cmdg.org) Canadian clinicians and scientists with an interest and expertise in the study and care of patients with movement disorders. Canadian Pediatric Demyelinating Network (no URL) Consists of 22 pediatric care facilities across Canada.
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2 EXECUTIVE SUMMARY BRITISH COLUMBI
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4 INTRODUCTION BRITISH COLUMBIA Wit
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6 Health Authority (URL) Key Facili
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8 FIGURE 2. Clinical Trials Units,
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10 Facility (URL if available) Pedi
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12 Facility (URL if available) Mood
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14 Facility (URL if available) Down
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16 Facility (URL if available) Clin
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18 Facility (URL if available) Gast
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20 TABLE 3. Clinical Trials Support
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22 Much clinical research - particu
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24 FIGURE 3. Source of Funds for Cl
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26 BRITISH COLUMBIA FIGURE 7. Thera
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28 BRITISH COLUMBIA Clinical Invest
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Disease Area Population Information
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32 CV/Cardiology CNS Pulmonary Canc
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34 TABLE 9. Health Economics and He
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36 TABLE 10. Epidemiology and Surve
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38 TABLE 12. Provincial Networks Th
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40 Network B.C. Investigator’s Ro
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42 Network B.C. Investigator’s Ro
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44 TABLE 14. Independent Clinical T
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46 COMPARATIVE POSITIONING OF B.C.
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48 ACKNOWLEDGEMENTS BRITISH COLUMBI
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50 APPENDIX 1-2 TABLE OF CONTENTS B
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52 PROVINCIAL HEALTH SERVICES AUTHO
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54 BRITISH COLUMBIA Edward Miller C
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56 BRITISH COLUMBIA Radiation Thera
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58 The Unit has 15 Principal Invest
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60 BRITISH COLUMBIA Neonatal Resear
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62 The B.C. Children’s Hospital p
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64 BRITISH COLUMBIA The clinical tr
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66 FRASER HEALTH AUTHORITY BRITISH
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68 BRITISH COLUMBIA tional therapis
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70 PROVIDENCE HEALTH CARE SOCIETY 4
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72 BRITISH COLUMBIA Quality control
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74 Clinical trials investigators in
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76 The facility has 13 investigator
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78 Staffing of the Centre is as fol
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80 Investigators: • Ayas, Najib
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82 BRITISH COLUMBIA Quality control
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84 The Research Group consists of t
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86 BRITISH COLUMBIA Multiple Sclero
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88 BRITISH COLUMBIA Gastroenterolog
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Since the Centre is located in St.
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TABLE A1. Providence Health Care So
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94 BRITISH COLUMBIA FIGURE A9. Cent
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96 BRITISH COLUMBIA The Unit suppor
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TABLE A2. CFRI Program-affiliated R
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100 BRITISH COLUMBIA Quality contro
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102 BRITISH COLUMBIA • Knowledge
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104 Its staffing is as follows: Stu
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106 APPENDIX 3. QUALITY CONTROL/ QU
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APPENDIX 5. CLINICAL TRIALS TRAININ
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APPENDIX 5. Clinical Trials Trainin
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112 APPENDIX 6 TABLE OF CONTENTS BR
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6.1 Clinical Trials Researchers Lis
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Page 242 and 243: Pediatrics INSTITUTION EMAIL URL DI
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Page 252 and 253: 248 APPENDICES 7-13 TABLE OF CONTEN
Page 254 and 255: 250 TABLE A3. Patient and Addiction
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Page 258 and 259: APPENDIX 8. PROVINCIAL AND NATIONAL
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Page 262 and 263: 258 APPENDIX 9. Healthcare Research
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Page 290 and 291: Networks In Which B.C.’s Clinical
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