Clinical Trials and Preclinical Infrastructure Asset Map - Genome BC

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APPENDIX 8. Provincial And National Patient Registries Involving B.C. Investigators (cont’d) Name of Registry/ URL B.C. Contact Description N/A Canadian on-line patient data surveillance system (see www.gcdisclosure-divulgationsc. phac-aspc.gc.ca/phac/pd/pd_grants.nsf/WEBbydetails/4D1B39E580E78B9F8525734000500 2AD?OpenDocument&L=E&). Cystic Fibrosis Foundation Patient Data Registry (no URL) Localized registry of COPD patients. 256 Jeremy Road, Medical Director of the COPD Clinic jroad@interchange.ubc.ca Tel: 604 875-4241 COPD Registry at The Lung Centre, VGH (No URL) Collects and maintains data on all trauma patients admitted to any of the nine trauma receiving facilities in B.C. The primary purpose is to improve and maintain the quality of patient care. Other purposes of this data source are for epidemiology, research, planning, injury Sharon Kasic, VGH sharon.kasic@vch.ca Tel: 604-875-4748 Other B.C. Trauma Registry (www2. itssti.hc-sc.gc.ca/clf/clfinventory.nsf/idview/030204164816-KC- surveillance; and contributing to injury prevention programs. KR?OpenDocument&lang=E) CORR records, analyzes and reports on the level of activity and outcomes of vital organ transplantation and renal dialysis activities in Canada. It keeps statistics on transplant numbers, donor numbers and waiting lists. John Gill, Chair, CORR Transplant Registry, St Paul’s Hospital jgill@providencehealth.bc.ca CORR (Canadian Organ Replacement Register) Transplant Registry (http://www.cihi.ca/corr) Tel: 604-806-9048 An automated, integrated, client health record and reporting system that supports public health provider interventions, tracking, follow-up, case management, and reporting. iPHIS includes immunization tracking, communicable disease case management, and surveillance components and is designed to be used centrally, providing secure access to one client record by multiple public health providers and programs and allowing communicable disease surveillance and immunization information to be shared. Data available for project-specific Dilma Sandrin, iPHIS Program Manager, BCCDC Tel: 604-707-2501 Integrated Public Health Information System (iPHIS) (www.phac-aspc.gc.ca/php-psp/ciphs-eng. php#wiphis) research purposes. BRITISH COLUMBIA US/Canadian registry of children with Wegener’s Granulomatosis and related small-medium vessel chronic vasculitis populated by all pediatric rheumatology centres (see www.vasculitisfoundation.org/registryofchildrenwithWGandrelatedvasculitides). David Cabral, BCCH. dcabral@cw.bc.ca Tel: 604-875-2437. ARCHIVE (International Registry for Childhood Vasculitis) Database of all nephrology patients on dialysis, with CKD and before/ after transplantation. Contains all patient records and outcomes from B.C.’s 37 renal units. Care providers can access information about a patient’s medical care, no matter where the care is delivered. Mirek Piaseczny, B.C. Provincial Renal Agency mpiaseczny@bcpra.ubc.ca Tel: 604-806-8647 PROMIS (www.bcrenalagency.ca/professionals/ promis/default.htm)
CLINICAL TRIALS AND PRECLINICAL INFRASTRUCTURE ASSET MAP APPENDIX 9. HEALTHCARE RESEARCH CENTRES The following table has been split into different categories as follows: 1. Broad-based • Providence Health Care Research Institute • Vancouver Coastal Health Research Institute (VCHRI) • British Columbia Institute of Technology (BCIT) School of Health Sciences 2. Neurosciences, including mental health and addiction • Brain Research Centre, VCHRI • International Collaboration On (Spinal Cord) Repair Discoveries (ICORD) VCHRI • Down Syndrome Research Foundation • B.C. Mental Health and Addictions Research Institute (BCMHARI) • Centre for Addictions Research of B.C. • Centre for Applied Research in Mental Health & Addiction (CARMHA) 3. Cancer • B.C. Cancer Research Centre, BCCA • Functional Imaging Program (FIP), BCCA • The Vancouver Prostate Centre including theTranslational Research Initiative for Accelerated Discovery and Development (PC-TRIADD), VCHRI • Finlandia Natural Pharmacy • InspireHealth 4. Infectious diseases • B.C. Centre for Disease Control • B.C. Centre for Excellence in HIV/AIDS • CIHR Canadian HIV Trials Network 5. Cardiovascular • Healthy Heart Centre (HHC), St Paul’s Hospital • The James Hogg iCAPTURE Centre for Cardiovascular and Pulmonary Research (Heart Lung Institute) 6. Pulmonary • Centre for Respiratory & Critical Care Medicine, VCHRI • Pacific Lung Health Centre 7. Autoimmune diseases • Arthritis Research Centre of Canada, VGH • Immunity & Infection Research Centre, VCHRI • Prevention of Organ Failure Centre of Excellence (PROOF) 257
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2 EXECUTIVE SUMMARY BRITISH COLUMBI
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4 INTRODUCTION BRITISH COLUMBIA Wit
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6 Health Authority (URL) Key Facili
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8 FIGURE 2. Clinical Trials Units,
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20 TABLE 3. Clinical Trials Support
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22 Much clinical research - particu
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26 BRITISH COLUMBIA FIGURE 7. Thera
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28 BRITISH COLUMBIA Clinical Invest
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Disease Area Population Information
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32 CV/Cardiology CNS Pulmonary Canc
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34 TABLE 9. Health Economics and He
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40 Network B.C. Investigator’s Ro
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42 Network B.C. Investigator’s Ro
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44 TABLE 14. Independent Clinical T
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46 COMPARATIVE POSITIONING OF B.C.
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48 ACKNOWLEDGEMENTS BRITISH COLUMBI
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50 APPENDIX 1-2 TABLE OF CONTENTS B
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52 PROVINCIAL HEALTH SERVICES AUTHO
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54 BRITISH COLUMBIA Edward Miller C
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56 BRITISH COLUMBIA Radiation Thera
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58 The Unit has 15 Principal Invest
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60 BRITISH COLUMBIA Neonatal Resear
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62 The B.C. Children’s Hospital p
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64 BRITISH COLUMBIA The clinical tr
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66 FRASER HEALTH AUTHORITY BRITISH
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68 BRITISH COLUMBIA tional therapis
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70 PROVIDENCE HEALTH CARE SOCIETY 4
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72 BRITISH COLUMBIA Quality control
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74 Clinical trials investigators in
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76 The facility has 13 investigator
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78 Staffing of the Centre is as fol
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80 Investigators: • Ayas, Najib
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82 BRITISH COLUMBIA Quality control
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Since the Centre is located in St.
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TABLE A1. Providence Health Care So
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100 BRITISH COLUMBIA Quality contro
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102 BRITISH COLUMBIA • Knowledge
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104 Its staffing is as follows: Stu
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106 APPENDIX 3. QUALITY CONTROL/ QU
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APPENDIX 5. CLINICAL TRIALS TRAININ
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APPENDIX 5. Clinical Trials Trainin
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112 APPENDIX 6 TABLE OF CONTENTS BR
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312 B.C. Centre for Disease Control
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314 University of Victoria Brenda D
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