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Legal Rights of Children with Epilepsy in School & Child Care

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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />

2) Obta<strong>in</strong> experts <strong>in</strong> education, assistive technology and communication, and if<br />

necessary, seizures and medications.<br />

3) If a resolution session is scheduled, be prepared to identify what a successful<br />

resolution <strong>of</strong> the case would look like. The hear<strong>in</strong>g request will have identified the<br />

proposed solution sought by the family, but if they would accept anyth<strong>in</strong>g less<br />

than that, be prepared to negotiate. If not, be prepared to stand firm.<br />

4) Proceed to due process if necessary.<br />

Case Scenario 3 — Seizures and Attendance at <strong>School</strong><br />

Sam is a fifteen-year-old young man <strong>with</strong> epilepsy and other developmental disabilities<br />

who attends Hillside High <strong>School</strong>, a separate special education school. He recently had a<br />

vagus nerve stimulator (VNS) implanted and has been cleared by his neurologist to return<br />

to school. Although he has always had a variety <strong>of</strong> types <strong>of</strong> seizures at school, he has had<br />

several <strong>in</strong>tense tonic-clonic seizures s<strong>in</strong>ce he has returned, although none has lasted long<br />

enough to require emergency antiepileptic medication. However, the pr<strong>in</strong>cipal <strong>of</strong> the<br />

school has contacted Sam’s mother and asked her to keep Sam home until his seizures<br />

“are under control.” Sam’s mother sought legal assistance to get Sam back <strong>in</strong>to school<br />

and was able to do so, but the pr<strong>in</strong>cipal mentioned dur<strong>in</strong>g the course <strong>of</strong> a meet<strong>in</strong>g that she<br />

has begun rout<strong>in</strong>ely to send students home when they have “big” seizures and tells<br />

parents not to send them back until they are “better” because she doesn’t like students<br />

hav<strong>in</strong>g seizures <strong>in</strong> her school, and that she will send Sam home aga<strong>in</strong> if this recurs.<br />

Discussion and Advocacy Strategy: Sam is, <strong>of</strong> course, attend<strong>in</strong>g a separate day school<br />

designed to serve students <strong>with</strong> special needs, and the pr<strong>in</strong>cipal is supposed to be able to<br />

cope <strong>with</strong> the needs <strong>of</strong> the students <strong>in</strong> her school. Because the pr<strong>in</strong>cipal is illegally<br />

send<strong>in</strong>g students home from school, this is a situation that lends itself to a class IDEA<br />

compla<strong>in</strong>t on behalf <strong>of</strong> Sam and all other similarly situated students. Although Sam is<br />

currently <strong>in</strong> school, he may be affected by this practice <strong>in</strong> the future, and other students<br />

are affected by it on a daily basis. In addition to ask<strong>in</strong>g that the practice stop, Sam’s<br />

parents may wish to ask for a significant amount <strong>of</strong> tra<strong>in</strong><strong>in</strong>g for the pr<strong>in</strong>cipal and school<br />

staff regard<strong>in</strong>g seizures. They may also wish to make a compla<strong>in</strong>t about the pr<strong>in</strong>cipal to<br />

her supervisor and the super<strong>in</strong>tendent’s <strong>of</strong>fice.<br />

Selected Cases<br />

Attorney’s Fees:<br />

Buckhannon Board and <strong>Care</strong> Home, Inc. v. West Virg<strong>in</strong>ia Department <strong>of</strong> Health and<br />

Human Resources, 532 U.S. 598 (U.S. 2001)<br />

In order for a party to be a “prevail<strong>in</strong>g party” under the Fair Hous<strong>in</strong>g Amendments Act<br />

and the ADA, there must be a “material alteration <strong>of</strong> the legal relationship <strong>of</strong> the parties,”<br />

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