Legal Rights of Children with Epilepsy in School & Child Care

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(Student’s name) needs assistance or supervision to take his or her routine medication. S/he needs assistance with the following care tasks: (a) ______________________________________ (b) ______________________________________ (c) ______________________________________ (d) ______________________________________ (Student’s name) needs a person to perform the following care tasks during a seizure: (a) ______________________________________ (b) ______________________________________ (c) _______________________________________ (d) Administration of Diastat Acudial Medication and supplies shall be stored at: _________________________________________________ 3. EXERCISE, PHYSICAL ACTIVITY, AND REST PERIODS: (Student’s name) shall be permitted to participate fully in physical education classes and team sports except as set out below in accord with physician orders: ______________________________________________ ______________________________________________ ______________________________________________ Physical education instructors and sports coaches must be able to recognize the student’s seizures and assist with first aid. Responsible school staff members will make sure that any needed emergency AEDs such as Diastat Acudial are available for (student’s name) at the site of his/her physical education class and team sports practices/games. School staff shall ensure that if (student’s name) has a seizure and needs to sleep or rest afterwards or otherwise needs to rest during the school day, he or she will have the opportunity to do so in a safe, supervised, comfortable setting. The setting does not have (301) 459-3700 • (888) 886-EPILEPSY • FAX: (301) 577-2684 • postmaster@efa.org • www.epilepsyfoundation.org 5
to be the school nurse’s office, and supervision does not have to be provided by the school nurse, unless physician orders so require. 4. KETOGENIC DIET 4.1 (Student’s name) shall have access to needed food and liquids as required during the school day in order to maintain the protocol of the ketogenic diet. (Student’s name) parent/guardian shall provide pre-measured supplies of food and liquid to the school on a daily basis. 4.2 School staff who work with (student’s name) shall be trained regarding the ketogenic diet so that violations of the diet do not occur at school. 4.3 As appropriate, classmates of (student’s name) shall be given information about the ketogenic diet so that they do not share food with him/her. 4.4 As appropriate, during class parties or celebrations with food, alternatives shall be arranged for (student’s name) that enable him/her to partake in the celebration if s/he will be unable to eat or drink during the party time. Such alternatives may include, but are not limited to, playing a special role in the celebration, choosing music for the party, or being the “emcee.” 5. VAGUS NERVE STIMULATOR 5.1 School staff who work with (student’s name) shall be trained regarding the vagus nerve stimulator (VNS) and how it works. 5.2 A staff person shall be identified who shall be trained to swipe the magnet over the VNS in the event that (student’s name) has a seizure, as stated in the attached Seizure Action Plan. 5.3 A log shall be kept of each instance in which the VNS is swiped and the parents shall be notified at the end of each school day in which a swipe occurred. 6. ROUTINE AND EMERGENCY ANTIEPILEPTIC DRUGS 6.1 As stated in the attached Seizure Action Plan, (Student’s name) shall be given his/her prescribed doses of AEDs in accordance with physician orders. 6.2 School staff shall identify a person and a back-up person to be trained to administer appropriate emergency AEDs to (student’s name) in accordance with physician orders, as stated in the attached Seizure Action Plan. A trained staff member shall be available to perform this task all times during which (student’s name) is at school or attending a school-related activity or event. (301) 459-3700 • (888) 886-EPILEPSY • FAX: (301) 577-2684 • postmaster@efa.org • www.epilepsyfoundation.org 6
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AN ADVOCATE’S MANUAL AN ADVOCATE
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User is hereby granted permission t
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CHAPTER TWO What Laws Apply to Chil
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Case Scenarios ....................
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4.35Q: What happens if a parent dis
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5.20Q: 5.21Q: 5.22Q: Does a school
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Case Scenarios ....................
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ABOUT THE AUTHOR Leslie Seid Margol
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Legal Rights of Children with Epile
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CHAPTER TWO What Laws Apply to Chil
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What Laws Apply to Children with Ep
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CHAPTER SIX Special Education and S
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Special Education and Students with
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Legal Rights of Children with Epilepsy in School & Child Care

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