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Legal Rights of Children with Epilepsy in School & Child Care

Legal Rights of Children with Epilepsy in School & Child Care

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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />

appropriate to the needs <strong>of</strong> the student <strong>with</strong> the disability, and school districts<br />

must provide necessary supplementary aids and services to enable the student to<br />

be appropriately placed <strong>in</strong> the regular education sett<strong>in</strong>g. Similarly, the IDEA<br />

expresses a preference for a student’s attendance at the school he or she would<br />

attend if not disabled and for placement as close as home as possible, just as<br />

Section 504 mandates consideration <strong>of</strong> distance <strong>of</strong> the alternate sett<strong>in</strong>g to the<br />

student’s home. 34 C.F.R. 104.34(a).<br />

5.20Q: Does a school district have any responsibility to students to help them be<br />

placed successfully <strong>in</strong> general education?<br />

A: Yes, as noted above, the school district must provide supplementary aids and<br />

services. In general, Section 504 requires reasonable accommodation <strong>of</strong> a<br />

person’s disability. A school district must provide the accommodations<br />

necessary to enable a student to participate <strong>in</strong> general education to the maximum<br />

extent appropriate to the student’s needs. For a student <strong>with</strong> epilepsy, the<br />

services may be as simple as provid<strong>in</strong>g a staff person to adm<strong>in</strong>ister needed<br />

medication at specified times <strong>of</strong> the day or to adm<strong>in</strong>ister emergency medication<br />

<strong>in</strong> the event <strong>of</strong> a prolonged seizure or cluster <strong>of</strong> seizures. Alternatively, a student<br />

may need a variety <strong>of</strong> other accommodations, such as a delayed school start time<br />

and extra time for tests. For a student <strong>with</strong> epilepsy and other disabilities,<br />

services may <strong>in</strong>clude special education as well as medication adm<strong>in</strong>istration and<br />

other accommodations, but the student may be more appropriately served under<br />

the IDEA, which has more specific programmatic requirements, timel<strong>in</strong>es and<br />

procedural safeguards.<br />

5.21Q: What if state law requires a licensed health care pr<strong>of</strong>essional to adm<strong>in</strong>ister<br />

an emergency antiepileptic medication such as Diastat AcuDial (rectally<br />

adm<strong>in</strong>istered diazepam gel) and other health care services to a student <strong>with</strong><br />

epilepsy at school, and the school district tells the parent that the student<br />

must go to a school ten miles away to have access to the person and the<br />

service?<br />

A: Unless the school district can establish that provision <strong>of</strong> a tra<strong>in</strong>ed person to<br />

adm<strong>in</strong>ister emergency antiepileptic medication at the student’s school is an<br />

accommodation that would cause a fundamental alteration to its program or that<br />

it is not appropriate to meet the student’s needs, it would be a violation <strong>of</strong><br />

Section 504 to move the student to another school <strong>in</strong> order to receive this<br />

service. The proposed removal <strong>of</strong> the student from his or her neighborhood<br />

school because <strong>of</strong> the refusal to provide a needed supplementary service—as<br />

well as the distance <strong>of</strong> the proposed placement—would raise serious compliance<br />

concerns under Section 504.<br />

78

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