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Legal Rights of Children with Epilepsy in School & Child Care

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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />

expected course <strong>of</strong> the disorder, precipitat<strong>in</strong>g features, expected response to<br />

treatment and genetic factors.<br />

<strong>Epilepsy</strong> syndromes <strong>in</strong>clude, but are not limited to, frontal lobe epilepsy,<br />

temporal lobe epilepsy, childhood absence epilepsy, Landau-Kleffner syndrome,<br />

Benign Rolandic <strong>Epilepsy</strong>, Lennox-Gastaut syndrome, Rasmussen’s syndrome<br />

and Juvenile Myoclonic <strong>Epilepsy</strong>. 5<br />

The temporal lobes are the parts <strong>of</strong> the bra<strong>in</strong> just above the ears. People <strong>with</strong><br />

temporal lobe epilepsy most commonly have complex partial seizures <strong>with</strong><br />

automatic behaviors. Many people <strong>with</strong> temporal lobe epilepsy also have simple<br />

partial seizures dur<strong>in</strong>g which they may experience nausea or vomit<strong>in</strong>g, or<br />

feel<strong>in</strong>gs that are difficult to describe (auras). Auras may <strong>in</strong>clude halluc<strong>in</strong>ations<br />

<strong>of</strong> smells, tastes, voices, music or visual phenomena.<br />

People <strong>with</strong> frontal lobe epilepsy have partial seizures that may cause muscle<br />

weakness, thrash<strong>in</strong>g movements, or postur<strong>in</strong>g <strong>with</strong> their head jerk<strong>in</strong>g to one side<br />

while one arm lifts <strong>in</strong>to a frozen position. Frontal lobe complex partial seizures<br />

are usually less than one m<strong>in</strong>ute <strong>in</strong> length and <strong>of</strong>ten occur dur<strong>in</strong>g the night,<br />

caus<strong>in</strong>g a disruption <strong>in</strong> sleep, which can make the person sleepy dur<strong>in</strong>g the day<br />

and cause behavior problems and poor performance <strong>in</strong> school. Frontal lobe<br />

seizures can <strong>in</strong>volve scream<strong>in</strong>g, bicycl<strong>in</strong>g movements and other socially difficult<br />

behaviors. (Manag<strong>in</strong>g Students <strong>with</strong> Seizures, p. 20). In many cases, these<br />

seizures tend to cluster.<br />

<strong>Child</strong>hood absence epilepsy is also known as petit mal epilepsy and causes<br />

frequent absence seizures. It manifests itself between ages three and ten and<br />

about 40 percent <strong>of</strong> children <strong>with</strong> the condition will outgrow it or go <strong>in</strong>to<br />

remission by the time they reach their teens.<br />

Landau-Kleffner syndrome is rare. It manifests itself between ages three and<br />

seven and causes seizures and regression <strong>in</strong> speech. <strong><strong>Child</strong>ren</strong> <strong>with</strong> this syndrome<br />

have simple partial and tonic-clonic seizures.<br />

Benign Rolandic <strong>Epilepsy</strong> accounts for more than one third <strong>of</strong> the cases <strong>of</strong><br />

epilepsy that beg<strong>in</strong> <strong>in</strong> middle childhood between ages three and thirteen.<br />

Seizures occur primarily at night and are <strong>of</strong> the simple partial type, caus<strong>in</strong>g<br />

drool<strong>in</strong>g and an <strong>in</strong>ability to speak, although this may be followed by a<br />

convulsion <strong>of</strong> the body. These seizures tend to occur most <strong>of</strong>ten as the child is<br />

gett<strong>in</strong>g drowsy or attempt<strong>in</strong>g to go to sleep. <strong><strong>Child</strong>ren</strong> are otherwise normal, and<br />

95 percent <strong>of</strong> children <strong>with</strong> this condition outgrow it by age 15.<br />

5<br />

Unless otherwise noted, all <strong>in</strong>formation <strong>in</strong> this answer was obta<strong>in</strong>ed from<br />

http://www.epilepsyfoundation.org/about/types/syndromes/<strong>in</strong>dex.cfm, downloaded April 18, 2007<br />

8

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