Legal Rights of Children with Epilepsy in School & Child Care
Legal Rights of Children with Epilepsy in School & Child Care
Legal Rights of Children with Epilepsy in School & Child Care
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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />
related services to enable the student to meet the measurable annual goals set out<br />
<strong>in</strong> his or her IEP and to participate, as appropriate, <strong>in</strong> the general education<br />
curriculum. 34 C.F.R. 300.305.<br />
4.13Q: What happens if parents disagree <strong>with</strong> an evaluation that has been done by<br />
the school district?<br />
A: Parents may request an <strong>in</strong>dependent educational evaluation at public expense.<br />
The school district must either ensure that the evaluation is provided at public<br />
expense or <strong>in</strong>itiate a due process hear<strong>in</strong>g, at which the district will have the<br />
burden <strong>of</strong> prov<strong>in</strong>g that its evaluation is appropriate and, therefore, that it should<br />
not have to fund an <strong>in</strong>dependent evaluation. The district must either <strong>in</strong>itiate a<br />
hear<strong>in</strong>g or pay for the <strong>in</strong>dependent evaluation “<strong>with</strong>out unnecessary delay.” 34<br />
C.F.R. 300.502. The district may ask parents why they disagree <strong>with</strong> the<br />
district’s evaluation, but parents do not have to provide a reason, and the district<br />
cannot delay payment or its due process hear<strong>in</strong>g request if parents do not<br />
provide a reason. Parents are entitled to only one <strong>in</strong>dependent educational<br />
evaluation at public expense each time the school district conducts an evaluation<br />
<strong>with</strong> which the parents disagree. 34 C.F.R. 300.502.<br />
4.14Q: Does a school district have to adopt an <strong>in</strong>dependent evaluation obta<strong>in</strong>ed by<br />
parents at their own expense?<br />
A: No, but the IEP team must “consider” the evaluation. 34 C.F.R. 300.502 (c)(1).<br />
The law does not def<strong>in</strong>e “consider,” but a common-sense <strong>in</strong>terpretation is that<br />
the team must review the evaluation and have a mean<strong>in</strong>gful discussion about the<br />
recommendations.<br />
4.15Q: Is epilepsy an identified disability under the IDEA? If not, how would a<br />
child <strong>with</strong> epilepsy be identified as need<strong>in</strong>g special education?<br />
A: <strong>Epilepsy</strong> is not specifically listed <strong>in</strong> the IDEA as a standalone disability that<br />
qualifies students for special education. However, epilepsy is listed <strong>in</strong> the<br />
def<strong>in</strong>ition <strong>of</strong> “other health impairment” <strong>in</strong> the IDEA’s regulations at 34 C.F.R.<br />
300.8(b)(9):<br />
42<br />
limited strength, vitality, or alertness, <strong>in</strong>clud<strong>in</strong>g a heightened alertness to<br />
environmental stimuli, that results <strong>in</strong> limited alertness <strong>with</strong> respect to the<br />
educational environment, that —<br />
(i) Is due to chronic or acute health problems such as asthma,<br />
attention deficit disorder or attention deficit hyperactivity<br />
disorder, diabetes, epilepsy, a heart condition, hemophilia, lead<br />
poison<strong>in</strong>g, leukemia, nephritis, rheumatic fever, sickle cell<br />
anemia, and Tourette syndrome, and<br />
(ii) Adversely affects a child’s educational performance.