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Legal Rights of Children with Epilepsy in School & Child Care

Legal Rights of Children with Epilepsy in School & Child Care

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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />

related services to enable the student to meet the measurable annual goals set out<br />

<strong>in</strong> his or her IEP and to participate, as appropriate, <strong>in</strong> the general education<br />

curriculum. 34 C.F.R. 300.305.<br />

4.13Q: What happens if parents disagree <strong>with</strong> an evaluation that has been done by<br />

the school district?<br />

A: Parents may request an <strong>in</strong>dependent educational evaluation at public expense.<br />

The school district must either ensure that the evaluation is provided at public<br />

expense or <strong>in</strong>itiate a due process hear<strong>in</strong>g, at which the district will have the<br />

burden <strong>of</strong> prov<strong>in</strong>g that its evaluation is appropriate and, therefore, that it should<br />

not have to fund an <strong>in</strong>dependent evaluation. The district must either <strong>in</strong>itiate a<br />

hear<strong>in</strong>g or pay for the <strong>in</strong>dependent evaluation “<strong>with</strong>out unnecessary delay.” 34<br />

C.F.R. 300.502. The district may ask parents why they disagree <strong>with</strong> the<br />

district’s evaluation, but parents do not have to provide a reason, and the district<br />

cannot delay payment or its due process hear<strong>in</strong>g request if parents do not<br />

provide a reason. Parents are entitled to only one <strong>in</strong>dependent educational<br />

evaluation at public expense each time the school district conducts an evaluation<br />

<strong>with</strong> which the parents disagree. 34 C.F.R. 300.502.<br />

4.14Q: Does a school district have to adopt an <strong>in</strong>dependent evaluation obta<strong>in</strong>ed by<br />

parents at their own expense?<br />

A: No, but the IEP team must “consider” the evaluation. 34 C.F.R. 300.502 (c)(1).<br />

The law does not def<strong>in</strong>e “consider,” but a common-sense <strong>in</strong>terpretation is that<br />

the team must review the evaluation and have a mean<strong>in</strong>gful discussion about the<br />

recommendations.<br />

4.15Q: Is epilepsy an identified disability under the IDEA? If not, how would a<br />

child <strong>with</strong> epilepsy be identified as need<strong>in</strong>g special education?<br />

A: <strong>Epilepsy</strong> is not specifically listed <strong>in</strong> the IDEA as a standalone disability that<br />

qualifies students for special education. However, epilepsy is listed <strong>in</strong> the<br />

def<strong>in</strong>ition <strong>of</strong> “other health impairment” <strong>in</strong> the IDEA’s regulations at 34 C.F.R.<br />

300.8(b)(9):<br />

42<br />

limited strength, vitality, or alertness, <strong>in</strong>clud<strong>in</strong>g a heightened alertness to<br />

environmental stimuli, that results <strong>in</strong> limited alertness <strong>with</strong> respect to the<br />

educational environment, that —<br />

(i) Is due to chronic or acute health problems such as asthma,<br />

attention deficit disorder or attention deficit hyperactivity<br />

disorder, diabetes, epilepsy, a heart condition, hemophilia, lead<br />

poison<strong>in</strong>g, leukemia, nephritis, rheumatic fever, sickle cell<br />

anemia, and Tourette syndrome, and<br />

(ii) Adversely affects a child’s educational performance.

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