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Legal Rights of Children with Epilepsy in School & Child Care

Legal Rights of Children with Epilepsy in School & Child Care

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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />

and must comply <strong>with</strong> its requirements. If the school does not receive any<br />

federal fund<strong>in</strong>g, it is not subject to Section 504. However, private schools must<br />

comply <strong>with</strong> Title III <strong>of</strong> the ADA unless they are run or controlled by religious<br />

entities. See Chapter 2, Question 2.30 for additional <strong>in</strong>formation.<br />

5.27Q: Is a student <strong>with</strong> epilepsy protected by Section 504 if he or she faces<br />

discipl<strong>in</strong>ary proceed<strong>in</strong>gs?<br />

A: Yes, to the extent that it is illegal to discrim<strong>in</strong>ate aga<strong>in</strong>st a student <strong>with</strong> a<br />

disability on the basis <strong>of</strong> his or her disability. Therefore, if the behavior that led<br />

to the discipl<strong>in</strong>ary action is a manifestation <strong>of</strong> the student’s epilepsy, he or she<br />

cannot be discipl<strong>in</strong>ed for it; to do so would be to punish him or her for behavior<br />

that is part <strong>of</strong> his or her disability. The school staff must look at the situation and<br />

the student to see if there is a relationship between the behavior and the<br />

disability. For example, if a student has a seizure <strong>in</strong> class and <strong>in</strong>voluntarily yells<br />

out dur<strong>in</strong>g the seizure, he or she cannot be suspended for disrupt<strong>in</strong>g the class;<br />

the yell<strong>in</strong>g was part <strong>of</strong> the seizure. Or if a student has a seizure and is somewhat<br />

dazed or confused for a period <strong>of</strong> time follow<strong>in</strong>g the seizure as he or she<br />

recovers, it would be a violation <strong>of</strong> Section 504 to discipl<strong>in</strong>e the student for<br />

fail<strong>in</strong>g to follow directions, for example, as the student is not fully able to<br />

process what is go<strong>in</strong>g on <strong>in</strong> this immediate post-seizure state. However, if a<br />

student <strong>with</strong> epilepsy who is stable on his or her medications and has not had a<br />

recent seizure gets <strong>in</strong>to a fight and hits the assistant pr<strong>in</strong>cipal, the staff should<br />

look at whether anyth<strong>in</strong>g has changed <strong>with</strong> the student to <strong>in</strong>dicate that the<br />

behavior is a manifestation <strong>of</strong> the epilepsy and, if not, the student can be<br />

discipl<strong>in</strong>ed <strong>in</strong> the same way as a student <strong>with</strong>out disabilities.<br />

5.28Q: What steps can attorneys and advocates take to prepare for a Section 504<br />

meet<strong>in</strong>g?<br />

A: An attorney or advocate can help the family prioritize their goals for the<br />

meet<strong>in</strong>g. Does the family want a Section 504 plan for the student? The attorney<br />

or advocate can use the model Section 504 plan conta<strong>in</strong>ed <strong>in</strong> this manual (see<br />

Appendix B) <strong>with</strong> the family to identify the areas <strong>in</strong> which services and<br />

accommodations will be requested. Then the attorney or advocate can identify<br />

the evidence that is necessary to support the family’s position. What evidence<br />

supports the need for each <strong>of</strong> the services or accommodations the family is<br />

request<strong>in</strong>g? Are there medical evaluations? Teacher reports? Other <strong>in</strong>formation?<br />

Who will be at the meet<strong>in</strong>g? Are there other people who should be <strong>in</strong>vited? The<br />

attorney or advocate should make sure the district knows that the attorney or<br />

advocate will be <strong>in</strong> attendance; many, but not all, districts send their own<br />

attorney to meet<strong>in</strong>gs if parents br<strong>in</strong>g a representative.<br />

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