Legal Rights of Children with Epilepsy in School & Child Care
Legal Rights of Children with Epilepsy in School & Child Care
Legal Rights of Children with Epilepsy in School & Child Care
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<strong>Legal</strong> <strong>Rights</strong> <strong>of</strong> <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong> <strong>in</strong> <strong>School</strong> and <strong>Child</strong> <strong>Care</strong><br />
to rule out a medical cause for her academic difficulties. Additionally, it would be<br />
appropriate to ask the team to order a psychiatric assessment, s<strong>in</strong>ce Melissa may<br />
be depressed, and it is important to determ<strong>in</strong>e if she has an emotional disability <strong>in</strong><br />
addition to her epilepsy and possible learn<strong>in</strong>g disability.<br />
5) If the team refuses to order assessments for Melissa, her parents should consider<br />
fil<strong>in</strong>g a due process hear<strong>in</strong>g request, assum<strong>in</strong>g they have documentation to<br />
support their position. Given the <strong>in</strong>formation available, it is possible that Melissa<br />
qualifies for special education as “other health impaired” on the basis <strong>of</strong> her<br />
epilepsy, or as a child <strong>with</strong> a learn<strong>in</strong>g disability, or even as a child <strong>with</strong> an<br />
emotional disturbance. Depend<strong>in</strong>g on the extent <strong>of</strong> her disabilities, she might<br />
qualify on the basis <strong>of</strong> multiple disabilities, if her disabilities each adversely affect<br />
her educational performance to the extent that they each need to be addressed <strong>in</strong><br />
order for her to make educational progress. Without assessments, it is difficult to<br />
know what is go<strong>in</strong>g on <strong>with</strong> Melissa. The chances are that once her parents make<br />
a formal request for evaluation, the team will agree to assessments. If not, it is<br />
likely that if her parents ask for due process, the case will be resolved when the<br />
district’s compliance <strong>of</strong>ficer or attorney becomes <strong>in</strong>volved.<br />
6) If the team does order assessments, Melissa’s parents should keep track <strong>of</strong> the 60-<br />
day timel<strong>in</strong>e and request copies <strong>of</strong> the assessments <strong>in</strong> advance <strong>of</strong> the team<br />
meet<strong>in</strong>g at which the assessments will be reviewed. Although the district does not<br />
have an obligation to provide the assessments <strong>in</strong> advance, it is helpful if parents<br />
can see them ahead <strong>of</strong> time, and the meet<strong>in</strong>g will be more efficient if Melissa’s<br />
parents are not listen<strong>in</strong>g to or read<strong>in</strong>g the test results for the first time dur<strong>in</strong>g the<br />
meet<strong>in</strong>g.<br />
7) If an advocate is <strong>in</strong>volved, he or she should cont<strong>in</strong>ue to provide technical<br />
assistance and be prepared to attend IEP meet<strong>in</strong>gs <strong>with</strong> Melissa’s parents if<br />
necessary as the process unfolds.<br />
Case Scenario 2 — Adm<strong>in</strong>istration <strong>of</strong> Emergency Antiepileptic Medication and<br />
Placement <strong>in</strong> the Least Restrictive Environment<br />
Lizzie is a four-year-old student <strong>with</strong> epilepsy, cerebral palsy, and mild mental<br />
retardation who has been fully <strong>in</strong>cluded <strong>in</strong> a private preschool program. She has made<br />
friends <strong>in</strong> this program and has made significant ga<strong>in</strong>s educationally as well. At the IEP<br />
team meet<strong>in</strong>g to determ<strong>in</strong>e a k<strong>in</strong>dergarten placement for her, Lizzie’s parents seek<br />
placement <strong>in</strong> their neighborhood school <strong>with</strong> the assistance <strong>of</strong> a licensed practical nurse<br />
(LPN) who can adm<strong>in</strong>ister emergency antiepileptic medication as necessary, as well as<br />
other supports and services. The team recommends placement <strong>in</strong> the district’s separate<br />
special education school because there is a nurse assigned full-time to the school who<br />
would be able to adm<strong>in</strong>ister her medication if necessary. Lizzie’s parents are strongly<br />
opposed to this recommendation and seek assistance <strong>in</strong> obta<strong>in</strong><strong>in</strong>g their neighborhood<br />
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