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Legal Rights of Children with Epilepsy in School & Child Care

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CHAPTER TWO<br />

What Laws Apply to <strong><strong>Child</strong>ren</strong> <strong>with</strong> <strong>Epilepsy</strong>?<br />

Note: This chapter is a general <strong>in</strong>troduction to the relevant laws. Chapters 4 and 5<br />

discuss the application <strong>of</strong> these laws to children <strong>with</strong> epilepsy <strong>in</strong> detail.<br />

2.1Q:<br />

What are the primary laws that apply to children <strong>with</strong> epilepsy?<br />

A: Three laws <strong>in</strong> particular apply to children <strong>with</strong> epilepsy as well as children <strong>with</strong><br />

other disabilities. The Individuals <strong>with</strong> Disabilities Education Act (IDEA)<br />

governs the provision <strong>of</strong> early <strong>in</strong>tervention services to <strong>in</strong>fants and toddlers as<br />

well as education services to children ages three through 21. Section 504 <strong>of</strong> the<br />

Rehabilitation Act <strong>of</strong> 1973 (usually referred to simply as Section 504) is a<br />

general anti-discrim<strong>in</strong>ation law that prohibits disability discrim<strong>in</strong>ation <strong>in</strong><br />

federally funded and federally conducted programs and activities such as public<br />

schools. F<strong>in</strong>ally, the Americans <strong>with</strong> Disabilities Act (ADA) is a law that<br />

prohibits disability-based discrim<strong>in</strong>ation <strong>in</strong> state and local government activities<br />

such as parks and recreation programs and schools, and <strong>in</strong> programs and public<br />

accommodations such as bus<strong>in</strong>esses, child care programs and doctors’ <strong>of</strong>fices.<br />

2.2Q:<br />

What are the major provisions <strong>of</strong> the IDEA?<br />

A: The IDEA guarantees a “free appropriate public education” to children <strong>with</strong><br />

disabilities that “emphasizes special education and related services designed to<br />

meet their unique needs and prepare them for further education, employment,<br />

and <strong>in</strong>dependent liv<strong>in</strong>g.” 20 U.S.C.1401(d)(1)(A); 34 C.F.R.300.1. <strong><strong>Child</strong>ren</strong> are<br />

entitled to receive special education and related services <strong>in</strong> the least restrictive<br />

environment <strong>in</strong> which the services can be provided. The services are provided <strong>in</strong><br />

accordance <strong>with</strong> an <strong>in</strong>dividualized education program (IEP).<br />

2.3Q:<br />

What is a “free appropriate public education?”<br />

A: A free appropriate public education means special education and related services<br />

that are provided at public expense, under public supervision, at no cost to the<br />

child’s parent or guardian. These services must meet the standards <strong>of</strong> the state<br />

department <strong>of</strong> education, and the applicable requirements <strong>of</strong> the IDEA and its<br />

implement<strong>in</strong>g regulations, and must <strong>in</strong>clude an appropriate educational program<br />

for the child, provided <strong>in</strong> accord <strong>with</strong> the IEP. 20 U.S.C. 1401(a)(9); 34 C.F.R.<br />

300.17. Generally, an “appropriate” education has been found by courts to be<br />

one that enables children to make mean<strong>in</strong>gful educational progress. 7<br />

7 The sem<strong>in</strong>al case address<strong>in</strong>g this issue is Board <strong>of</strong> Education <strong>of</strong> the Hendrick Hudson Central <strong>School</strong><br />

District v. Rowley, 458 U.S 176 (1982), which held that the requirement <strong>of</strong> an appropriate education is<br />

satisfied when the student receives sufficient support services to benefit educationally from <strong>in</strong>struction. If<br />

the child is educated <strong>in</strong> the regular classroom, the child’s education is appropriate if the IEP is reasonably<br />

calculated to enable him or her to achieve pass<strong>in</strong>g marks and progress from grade to grade. Subsequent<br />

14

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