Legal Rights of Children with Epilepsy in School & Child Care
Legal Rights of Children with Epilepsy in School & Child Care
Legal Rights of Children with Epilepsy in School & Child Care
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Special Education and Section 504<br />
Case Scenarios<br />
Case Scenario 1 — Eligibility for Section 504 Plan<br />
William is a ten-year-old child who has fully controlled epilepsy and has not had a<br />
seizure <strong>in</strong> eight years. He has no academic difficulties and does not need medication<br />
dur<strong>in</strong>g school hours. He has no overt side effects from his medication, has lots <strong>of</strong> friends<br />
and is able to participate fully <strong>in</strong> school activities. His parents contact a lawyer because a<br />
friend has told them about Section 504 and they want to know how the law may help<br />
William.<br />
Discussion and Advocacy Strategy: As it stands, William will not qualify for protection<br />
under Section 504 because his epilepsy does not significantly impair a major life activity.<br />
He is able to participate <strong>in</strong> all activities <strong>with</strong>out the need for any accommodations.<br />
However, it is possible that his situation will change at some po<strong>in</strong>t, and the attorney<br />
should expla<strong>in</strong> Section 504 to William’s parents and describe the types <strong>of</strong> situations <strong>in</strong><br />
which Section 504 might be helpful <strong>in</strong> the future. The follow<strong>in</strong>g <strong>in</strong>formation may be<br />
useful to William’s parents:<br />
1) If William beg<strong>in</strong>s to have breakthrough seizures and needs medication dur<strong>in</strong>g the<br />
school day, school staff would be required to adm<strong>in</strong>ister the medication.<br />
2) If William beg<strong>in</strong>s to have seizures that <strong>in</strong>terfere <strong>with</strong> his ability to concentrate or<br />
to complete his work <strong>in</strong> a timely way or if his medication beg<strong>in</strong>s to cause side<br />
effects that cause this result, he may need accommodations such as, but not<br />
limited to, additional time to complete his work, reduced amount <strong>of</strong> work, or a<br />
quiet room <strong>in</strong> which to take tests. It is likely that if, after a long period <strong>with</strong> no<br />
seizures, William suddenly beg<strong>in</strong>s to have seizures aga<strong>in</strong>, he will be spend<strong>in</strong>g a<br />
good deal <strong>of</strong> time at physician appo<strong>in</strong>tments and try<strong>in</strong>g various dosages <strong>of</strong><br />
medications. The school will need to be prepared to accommodate absences and<br />
the potential medication side effects that are likely to ensue.<br />
3) If William beg<strong>in</strong>s to have seizures that are caused by lack <strong>of</strong> sufficient sleep, he<br />
may need an adjusted school start time as a reasonable accommodation, so that he<br />
does not have to be awakened early <strong>in</strong> the morn<strong>in</strong>g, s<strong>in</strong>ce that might trigger a<br />
seizure.<br />
4) It is important to rem<strong>in</strong>d William’s parents that William’s protection under<br />
Section 504 is conditional on someth<strong>in</strong>g chang<strong>in</strong>g. At the moment, his epilepsy is<br />
so well controlled that he does not need the protection <strong>of</strong>fered by Section 504<br />
because his epilepsy does not impair him <strong>in</strong> any way that warrants the protection<br />
<strong>of</strong> the law. But that could change at any time and, at that po<strong>in</strong>t, Section 504 is<br />
available to protect him from discrim<strong>in</strong>ation and to ensure that he receives<br />
whatever reasonable accommodations he needs.<br />
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