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Combining health and social protection measures to reach the ultra ...

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Decision-makingPolicy-makersComplex policy problemsFocused solutionsReducing uncertaintiesSpeedControl <strong>and</strong> delayManipulationFeasible <strong>and</strong> pragmatic solutionsResearchersSimplification of <strong>the</strong> problemInterest in related but separatedissuesFinding <strong>the</strong> truthTime <strong>to</strong> thinkPublish or perilExplanationThoughtful deliberationsSource: Bensing JM. Doing <strong>the</strong> right thing <strong>and</strong> doing it right: <strong>to</strong>ward a framework forassessing <strong>the</strong> policy relevance of <strong>health</strong> service research. International Journal ofTechnology Assessment in Health Care, 2003, 19:604-512.Table 1: Conflicting interests of policy-makers <strong>and</strong> researchersor even fellow researchers in a different field. Researchersoften add a st<strong>and</strong>ard clause at <strong>the</strong> end of <strong>the</strong>ir papers statingthat “our research indicates that more research is needed”.This is, of course, both exculpa<strong>to</strong>ry (“don’t blame me if thisisn’t correct”) <strong>and</strong> self-serving (“but if you give me moremoney I might be able <strong>to</strong> give you a better answer”). Hereinlies a key point of distrust: policy-makers believe thatresearchers do research primarily <strong>to</strong> generate more fundingfor more research, <strong>and</strong> not for <strong>the</strong> potential value of <strong>the</strong>research <strong>to</strong> society.“Policy speak” is often used <strong>to</strong> describe <strong>the</strong> language whichpolicy-makers use <strong>and</strong> it often contains acronyms, which inturn are defined by o<strong>the</strong>r acronyms. Much of <strong>the</strong>communication is confidential in nature <strong>and</strong> for a closedaudience, <strong>and</strong> driven by unpublicized political agendas. Theyoften include multiple signatures or are anonymous(containing no signatures), <strong>and</strong> are often stamped as“confidential”. While policy-makers do sometimes conductresearch, it is rare <strong>to</strong> see <strong>the</strong>ir findings published in peerreviewedscientific journals, if released at all. In general, <strong>the</strong>culture of open sharing of knowledge <strong>and</strong> information is notpart of <strong>the</strong> policy-making world.Scientific research in general is driven by fairly long timeframes. Researchers want time for contemplation, thinking,formulating hypo<strong>the</strong>ses, analysis, syn<strong>the</strong>ses, talking <strong>to</strong>colleagues <strong>and</strong> more reflection. In general, it is believed that<strong>the</strong> longer it takes <strong>to</strong> do a research study, <strong>the</strong> better <strong>the</strong>research quality. It is also a fact that <strong>the</strong> process of science isa cumulative one <strong>and</strong> builds on <strong>the</strong> previous work of o<strong>the</strong>rs.Many researchers spend <strong>the</strong>ir entire research career in onenarrow subject area, in order <strong>to</strong> build up <strong>the</strong>ir expertise <strong>and</strong>track record, as well as national <strong>and</strong> international reputationin that area – <strong>to</strong> many, this is an end in itself.In contrast, policy-makers work <strong>to</strong> a very different, muchshorter time scale, often a matter of days or weeks. Answersare always needed instantly <strong>and</strong> <strong>the</strong> time pressures often takeprecedence over quality, since <strong>the</strong>y must have prompt <strong>and</strong>firm opinion <strong>to</strong> look credible. This is reflected in <strong>the</strong> classicpolicy-makers’ sentiment, “I have made up my mind, don’tconfuse me with <strong>the</strong> facts”. Policy-makers usually haveshort tenure managing projects, <strong>and</strong> will move on quickly<strong>to</strong> o<strong>the</strong>r responsibilities, in order <strong>to</strong> build up <strong>the</strong>ir reper<strong>to</strong>ireof expertise in a wide variety of different areas. Theconflicting interests of policy-makers <strong>and</strong> researchers is givenin Table 1.Why are <strong>the</strong>y different?The incompatibilities between researchers <strong>and</strong> policy-makerslead <strong>to</strong> very real problems in terms of promoting better useof evidence for <strong>health</strong> policy development. If <strong>the</strong>y are <strong>to</strong>work <strong>to</strong>ge<strong>the</strong>r, researchers <strong>and</strong> policy-makers must knoweach o<strong>the</strong>r’s strengths <strong>and</strong> weaknesses, as well as likes <strong>and</strong>dislikes. There are a number of key issues that must <strong>the</strong>reforebe addressed.Researchers <strong>and</strong> policy-makers often lack trust <strong>and</strong> respectfor <strong>the</strong> respective roles that <strong>the</strong>y play. Researchers often havea “superiority complex” which translates in<strong>to</strong> acondescending attitude <strong>and</strong> a lack of respect for those whoare not researchers. They often take <strong>the</strong> view that <strong>the</strong>irresearch is <strong>to</strong> be reviewed only by <strong>the</strong>ir peers <strong>and</strong> find itdifficult <strong>to</strong> conduct “directed” or “applied” research,regardless of <strong>the</strong> potential benefits <strong>to</strong> society in general. Theyconsider “academic freedom” <strong>to</strong> be sacrosanct <strong>and</strong> expect <strong>to</strong>be allowed <strong>to</strong> pursue <strong>the</strong>ir interests with no constraints.Therefore, <strong>the</strong>y often resent <strong>the</strong> power of policy-makers <strong>to</strong>control research funding <strong>and</strong> <strong>the</strong> frequent misuse that ismade of scientific data <strong>to</strong> fulfil a politically-driven policyagenda. At <strong>the</strong> same time, policy-makers resent <strong>the</strong> arroganceof researchers, <strong>the</strong> seeming self-fulfilment <strong>and</strong> self-servingnature of much of <strong>the</strong>ir research, <strong>and</strong> <strong>the</strong>ir narrow, tunnelvision approach <strong>to</strong> <strong>the</strong> world. Scientific input is oftenuntimely, less-than-relevant, abstract <strong>and</strong> impossible <strong>to</strong>underst<strong>and</strong> or contextualize. In extreme situations, <strong>the</strong>y viewscientific evidence as being detrimental <strong>to</strong> political <strong>and</strong>economic considerations, e.g. when evidence of an infectiousdisease outbreak can lead <strong>to</strong> economic loss as a result ofreduced numbers of <strong>to</strong>urists.In addition, researchers <strong>and</strong> policy-makers often havedifferent views as <strong>to</strong> what constitutes evidence. Manyscientific results are quantitative <strong>and</strong> can be assessed inrigorous, repeatable ways. Researchers obsess aboutresearch methodology <strong>and</strong> <strong>the</strong> “levels of evidence” ga<strong>the</strong>redthrough different study designs, such as clinical trials <strong>and</strong>observational studies. Policy-makers, on <strong>the</strong> o<strong>the</strong>r h<strong>and</strong>, areoften more informal in <strong>the</strong>ir assessment of information, eventhat of a quantitative nature. They look for importantinformation based on quick reflections of reality for policymaking,e.g. poll results, opinion surveys, focus groups inmarginal elec<strong>to</strong>rates, anecdotes <strong>and</strong> real-life s<strong>to</strong>ries. Theyoperate on a different hierarchy of evidence – <strong>the</strong>ir “levels ofevidence” may range from “any information that establishes afact or gives reason for believing in something” <strong>to</strong> “availablebody of facts or information indicating a belief or propositionis true or valid”.Should researchers cater <strong>to</strong> <strong>the</strong> needs of policy-makers?Policy-makers are often frustrated because researcherscannot give <strong>the</strong>m a quick, clear <strong>and</strong> simple answer.Researchers are frustrated because required data may notexist, or <strong>the</strong>y do not know <strong>the</strong> answer or want <strong>to</strong> admitproblems with <strong>the</strong>ir studies, or <strong>the</strong>y cannot explain <strong>the</strong>ircomplex findings in a simple language. Policy-makers believethat much of <strong>the</strong> research being conducted is pointless <strong>and</strong>lacks relevance, which is probably right as <strong>the</strong> motivation on<strong>the</strong> part of <strong>the</strong> researchers is often scientific curiosity <strong>and</strong> <strong>the</strong>Global Forum Update on Research for Health Volume 4 ✜ 155

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