ForewordGlobal Forum Update on Researchfor Health volume 4: Equitableaccess: research challenges for<strong>health</strong> in developing countriesForeword by Pramilla SenanayakeLife expectancy <strong>and</strong> o<strong>the</strong>r indica<strong>to</strong>rs of <strong>health</strong> have, onaverage, increased markedly across <strong>the</strong> world during<strong>the</strong> last century. At <strong>the</strong> same time, however, <strong>health</strong>inequities within <strong>and</strong> between populations have persisted <strong>and</strong>in some cases worsened.Recent efforts <strong>to</strong> reduce some of <strong>the</strong> large gaps in <strong>health</strong>status have been channelled through international initiativessuch as <strong>the</strong> Millennium Development Goals <strong>and</strong> a variety ofinternational <strong>health</strong> initiatives, including new public-privatepartnerships <strong>to</strong> develop products for neglected diseases <strong>and</strong>large pools of funds <strong>to</strong> assist disease-endemic countries <strong>to</strong>purchase drugs <strong>and</strong> vaccines. But ensuring that individualseverywhere can enjoy <strong>the</strong> right <strong>to</strong> <strong>health</strong> involves much morethan creating medicines <strong>and</strong> supporting <strong>the</strong>ir purchase for <strong>the</strong>poorest countries. It requires enabling people <strong>to</strong> haveequitable access <strong>to</strong> information, <strong>health</strong> services <strong>and</strong> products<strong>and</strong> <strong>to</strong> basic living <strong>and</strong> working conditions that give <strong>the</strong>m realchoices <strong>and</strong> opportunities <strong>to</strong> maintain good <strong>health</strong> <strong>and</strong> avoiddiseases <strong>and</strong> injuries.Research has a central role <strong>to</strong> play in addressing <strong>health</strong>inequities. It can identify <strong>the</strong> presence of major <strong>health</strong>disparities, help <strong>to</strong> create underst<strong>and</strong>ing of <strong>the</strong> underlyingcauses <strong>and</strong> provide potential solutions <strong>to</strong> be tested, verified<strong>and</strong> scaled up. The spectrum of research required <strong>to</strong> supportequitable access <strong>to</strong> <strong>health</strong> is <strong>the</strong>refore very broad. Itencompasses not only biomedical research <strong>to</strong> underst<strong>and</strong>biological causes of ill-<strong>health</strong> <strong>and</strong> develop medical solutions,but also research in<strong>to</strong> economic, environmental, political <strong>and</strong><strong>social</strong> determinants of <strong>health</strong>; <strong>and</strong> it ranges from studies ofhow policies are developed <strong>and</strong> implemented at global <strong>and</strong>national levels <strong>to</strong> <strong>the</strong> examination of <strong>the</strong>ir effectiveness <strong>and</strong>impact on <strong>the</strong> <strong>health</strong> of those who have been marginalized.This year’s edition of <strong>the</strong> Global Forum Update onResearch for Health <strong>and</strong> <strong>the</strong> annual Forum meeting of <strong>the</strong>Global Forum for Health Research take as <strong>the</strong>ir <strong>the</strong>me <strong>the</strong>issue of equitable access <strong>and</strong> <strong>the</strong> research challenges it posesin trying <strong>to</strong> improve <strong>health</strong> <strong>and</strong> reduce <strong>health</strong> disparities indeveloping countries. We are extremely grateful <strong>to</strong> <strong>the</strong> manydistinguished authors who have contributed <strong>the</strong>ir time <strong>and</strong>expertise <strong>to</strong> <strong>the</strong> articles in <strong>the</strong> Update. These provide concise,expert summaries <strong>and</strong> opinions <strong>to</strong> complement <strong>the</strong> rich arrayof presentations <strong>and</strong> discussions of <strong>the</strong> many facets ofequitable access that are on <strong>the</strong> agenda of Forum 11 inBeijing this year. ❏Pramilla Senanayake is Chair of <strong>the</strong> Foundation CouncilGlobal Forum for Health ResearchAugust 2007Global Forum Update on Research for Health Volume 4 ✜ 009
IntroductionResearch contributions <strong>to</strong>improving equitable access <strong>to</strong><strong>health</strong> in developing countriesArticle by Stephen A MatlinEverywhere in <strong>the</strong> world, issues of equitable access arefundamental <strong>to</strong> improving <strong>the</strong> <strong>health</strong> of all <strong>the</strong> people 1 .Limitations of access <strong>to</strong> information, <strong>to</strong> services forprevention <strong>and</strong> treatment, or <strong>to</strong> good quality <strong>health</strong>-relatedproducts are among <strong>the</strong> many fac<strong>to</strong>rs that create gradients in<strong>health</strong> status within <strong>and</strong> between societies.High levels of malnutrition, maternal <strong>and</strong> child mortality<strong>and</strong> infections with HIV/AIDS, TB, malaria <strong>and</strong> a number ofpathogenic tropical parasites in some developing countrieshave attracted much attention <strong>and</strong> led <strong>to</strong> <strong>the</strong> establishment of<strong>the</strong> Millennium Development Goals 2 <strong>to</strong> reduce some of <strong>the</strong>starkest <strong>health</strong> gradients between countries. But <strong>the</strong>se do notaddress <strong>the</strong> broader <strong>health</strong> conditions that affect peoplethroughout <strong>the</strong> world, including a host of noncommunicablediseases that are becoming increasingly prevalent in low- <strong>and</strong>middle-income countries 3 , nor <strong>the</strong> wide range of fac<strong>to</strong>rs <strong>and</strong>determinants that act as pre-conditions for people <strong>to</strong> achieve<strong>and</strong> maintain good <strong>health</strong>.His<strong>to</strong>rically, some groups have experienced long-st<strong>and</strong>ingdiscrimination in access <strong>to</strong> <strong>health</strong> including, among o<strong>the</strong>rs:women, people with disabilities, indigenous peoples, poorpeople, people in low-income countries, rural populations,slum dwellers, elderly people, children, adolescent <strong>and</strong> youngpeople, people of low <strong>social</strong> class or caste <strong>and</strong> peoplestigmatized by specific conditions such as HIV/AIDS.Given <strong>the</strong> wide range of <strong>health</strong> determinants <strong>and</strong>conditions that are at play, <strong>the</strong> spectrum of research required<strong>to</strong> address <strong>the</strong> complex range of fac<strong>to</strong>rs associated withinequities in access is necessarily very broad. Research canhelp <strong>to</strong> identify <strong>and</strong> address barriers <strong>to</strong> access of all types(including economic, geographical, institutional, political,socio-cultural <strong>and</strong> technological barriers) <strong>and</strong> can help <strong>to</strong>identify, test <strong>and</strong> validate <strong>measures</strong> <strong>to</strong> improve equity ofaccess for all. The range of people who need <strong>to</strong> be engagedGiven <strong>the</strong> wide range of <strong>health</strong> determinants <strong>and</strong>conditions that are at play, <strong>the</strong> spectrum of researchrequired <strong>to</strong> address <strong>the</strong> complex range of fac<strong>to</strong>rsassociated with inequities in access is necessarilyvery broadin such research is also extensive – encompassing not justphysical, biological, <strong>social</strong> <strong>and</strong> behavioural scientists locatedin academic research institutions but also <strong>health</strong> workers,nongovernmental organizations (NGOs), communities, civilsociety groups <strong>and</strong> individuals, including representatives ofgroups on whom <strong>the</strong> research is focused.This article considers a diverse array of fac<strong>to</strong>rs associatedwith inequities in access <strong>to</strong> <strong>the</strong> means <strong>to</strong> achieve better<strong>health</strong> in developing countries <strong>and</strong> summarizes some of <strong>the</strong>ways in which research is, or could be, playing a role inremoving barriers <strong>and</strong> biases.Access <strong>to</strong> <strong>the</strong> preconditions for <strong>health</strong>It is increasingly appreciated 4 that a broad array of nonbiologicalfac<strong>to</strong>rs act as determinants of <strong>health</strong>, includingthose of economic, environmental, political <strong>and</strong> <strong>social</strong> origins(Figure 1). Improving <strong>health</strong>, especially for some of <strong>the</strong>poorest <strong>and</strong> most marginalized in society, will require givingmuch greater attention <strong>to</strong> <strong>the</strong>se “causes of <strong>the</strong> causes” of ill<strong>health</strong>,with effort needing <strong>to</strong> be concentrated on securing <strong>the</strong>human rights on which many of <strong>the</strong>se determinants depend.Research <strong>to</strong> examine <strong>the</strong>se wider determinants of <strong>health</strong>, <strong>to</strong>underst<strong>and</strong> <strong>the</strong> causal relationships <strong>and</strong> <strong>to</strong> demonstrate waysin which <strong>the</strong>y can be used <strong>to</strong> improve <strong>health</strong> status <strong>and</strong><strong>health</strong> equity is scarce <strong>and</strong> <strong>the</strong>re is a need <strong>to</strong> begin byestablishing <strong>the</strong> scope of <strong>the</strong> research agenda, mapping <strong>the</strong>human <strong>and</strong> financial resources already available <strong>and</strong> settingpriorities for where <strong>and</strong> how <strong>the</strong> most urgent gaps are <strong>to</strong> befilled. The research agenda on determinants of <strong>health</strong> mustinclude studies of <strong>the</strong> extent <strong>to</strong> which human rights arerecognized <strong>and</strong> upheld, given that <strong>health</strong> <strong>and</strong> human rightsare inextricably connected.Among <strong>the</strong> broad range of determinants, <strong>social</strong> fac<strong>to</strong>rs havereceived most attention recently, particularly through <strong>the</strong>establishment of a series of Knowledge Networks by <strong>the</strong> WHOCommission on Social Determinants of Health (CSDH) 5 . TheCSDH, created in 2005 <strong>to</strong> draw attention <strong>to</strong> pragmatic waysof creating better <strong>social</strong> conditions for <strong>health</strong>, aims <strong>to</strong> promotemodels <strong>and</strong> practices that effectively address underlying<strong>social</strong> inequities, human rights <strong>and</strong> <strong>the</strong> broad <strong>social</strong>determinants of <strong>health</strong>; <strong>to</strong> support countries in placing <strong>health</strong>as a shared goal <strong>to</strong> which many government departments <strong>and</strong>sec<strong>to</strong>rs of society contribute; <strong>and</strong> <strong>to</strong> help build a sustainableGlobal Forum Update on Research for Health Volume 4 ✜ 011