Access <strong>to</strong> <strong>health</strong>“Two months ago I went <strong>to</strong> my home village. I went for acoffee at a café. Most people <strong>the</strong>re, of those who wereaware of my problem, call me ‘mad’. More specifically<strong>the</strong>y said ‘Here is <strong>the</strong> lunatic’. That incident made mevery sad, I quickly finished my coffee <strong>and</strong> I left”. Tom.encouragement <strong>to</strong> go for mental <strong>health</strong> assessment <strong>and</strong>treatment does often work 52 .It is fair <strong>to</strong> include not only individual but also systemicfac<strong>to</strong>rs in trying <strong>to</strong> underst<strong>and</strong> <strong>the</strong> puzzle of under-treatment.In <strong>the</strong> USA <strong>the</strong> National Depressive <strong>and</strong> Manic-DepressiveAssociation under<strong>to</strong>ok an investigation <strong>to</strong> explore why “<strong>the</strong>reis overwhelming evidence that individuals with depressionare being seriously under-treated”. They concluded that <strong>the</strong>“reasons for <strong>the</strong> continuing gap include patient, provider <strong>and</strong><strong>health</strong> care system fac<strong>to</strong>rs. Patient-based reasons include:failure <strong>to</strong> recognize <strong>the</strong> symp<strong>to</strong>ms, underestimating <strong>the</strong>severity, limited access, reluctance <strong>to</strong> see a mental <strong>health</strong>care specialist due <strong>to</strong> stigma, noncompliance with treatment<strong>and</strong> lack of <strong>health</strong> insurance. Provider fac<strong>to</strong>rs include poorprofessional school education about depression, limitedtraining in interpersonal skills, stigma, inadequate time <strong>to</strong>evaluate <strong>and</strong> treat depression, failure <strong>to</strong> considerpsycho<strong>the</strong>rapeutic approaches, <strong>and</strong> prescription ofinadequate doses of antidepressant medication forinadequate durations. Mental <strong>health</strong> care systems createbarriers <strong>to</strong> receiving optimal treatment” 53 .Are people in rural areas better or worse served than thosein <strong>to</strong>wns <strong>and</strong> cities? The evidence here is patchy but a clearoutline does tend <strong>to</strong> emerge. If a person with a mental illnesswants <strong>to</strong> keep personal information confidential, this seems<strong>to</strong> be more difficult in rural communities. A study in Arkansas,for example, compared over 200 urban <strong>and</strong> rural residents’views about depression <strong>and</strong> its treatment. The rural residentswith a his<strong>to</strong>ry of depression labelled people who soughtprofessional help more negatively than <strong>the</strong>ir urbancounterparts. By <strong>the</strong> same <strong>to</strong>ken, those who labelleddepression more negatively were less likely <strong>to</strong> have soughtprofessional help 54 .Similar findings also emerged from a study in Iowa wherepeople living in <strong>the</strong> most rural environments were more likely<strong>to</strong> hold stigmatizing attitudes <strong>to</strong>wards mental <strong>health</strong> care thanpeople in <strong>to</strong>wns, <strong>and</strong> such views strongly predicted willingness<strong>to</strong> seek care 55 . Perhaps for <strong>the</strong>se reasons, a survey of ruralresidents in Virginia found that over a third of <strong>the</strong> populationhad a diagnosed mental disorder, but only 6% subsequentlysought help, that those who did not go for treatment said that<strong>the</strong>y “felt <strong>the</strong>re was no need” 56 . Evidence from Tennessee alsoshowed that among people who were mentally unwell, thosemore likely <strong>to</strong> seek help were women, younger people <strong>and</strong>those who had been treated for a mental illness previously 57 .There is some evidence that <strong>the</strong>se fac<strong>to</strong>rs also prevent ruralchildren with mental illness from having access <strong>to</strong> mental<strong>health</strong> care. A study of parents in rural areas of North Carolinaconcluded that although as many as 20% of children hadsome type of treatable mental illness, only about one third of<strong>the</strong>m received help from <strong>the</strong> mental <strong>health</strong> system 58,59 . Theresearchers found that one of <strong>the</strong> main barriers <strong>to</strong> care wasstigma <strong>to</strong>wards <strong>the</strong> use of <strong>the</strong> mental <strong>health</strong> care.So it seems <strong>to</strong> be true that stigma about mental illness isno less in many rural areas, <strong>and</strong> may be even stronger thanin <strong>to</strong>wns <strong>and</strong> cities. In part this may be based upon fears thata rural community will learn details about a period of mentalillness, while it is easier in cities <strong>to</strong> remain anonymous. Butrelatively little research has been done in rural areas <strong>to</strong>underst<strong>and</strong> <strong>the</strong>se processes in more detail. This is especiallyimportant because <strong>the</strong>re are relatively high rates of suicideamong male farmers in many countries 60-67 .In summary, this paper shows that stigmatization againstpeople with mental illness is common wherever it has beenstudied, <strong>and</strong> that <strong>the</strong>se processes present formidable barriersboth <strong>to</strong> <strong>social</strong> inclusion <strong>and</strong> <strong>to</strong> proper access <strong>to</strong> mental <strong>health</strong>care. As <strong>the</strong> disabilities associated with mental illness exceedthose of most o<strong>the</strong>r disorder groups 68,69 , now is <strong>the</strong> time <strong>to</strong>: (i)undertake evidence-based interventions <strong>to</strong> reduce stigma;(ii) increase access <strong>to</strong> mental <strong>health</strong> treatment <strong>and</strong> care; <strong>and</strong>(iii) <strong>to</strong> scale up <strong>the</strong> available services in proportion <strong>to</strong> <strong>the</strong>magnitude of <strong>the</strong> need 70 . ❏Acknowledgement: The quotations <strong>and</strong> some elements of <strong>the</strong>text are adapted from: Thornicroft G. (2006) Shunned:discrimination against people with mental illness. OxfordUniversity Press, Oxford.Graham Thornicroft is Professor of Community Psychiatry, <strong>and</strong>Head of <strong>the</strong> Multi-disciplinary Health Service <strong>and</strong> PopulationResearch Department at <strong>the</strong> Institute of Psychiatry, King’s CollegeLondon. He is a consultant psychiatrist <strong>and</strong> is Direc<strong>to</strong>r of Research<strong>and</strong> Development at <strong>the</strong> South London <strong>and</strong> Maudsley NHS Trust.He chaired <strong>the</strong> External Reference Group for <strong>the</strong> National ServiceFramework for Mental Health in Engl<strong>and</strong>. His areas of researchexpertise include: stigma <strong>and</strong> discrimination, mental <strong>health</strong> needsassessment, <strong>the</strong> development of outcome scales, costeffectivenessevaluation of mental <strong>health</strong> treatments, <strong>and</strong> mental<strong>health</strong> services in less economically developed countries. He hasauthored <strong>and</strong> co-authored 20 books <strong>and</strong> over 180 papers in peerreviewedjournals.“In my village <strong>the</strong>y don’t know that I am living at agroup home <strong>and</strong> that I am on medication. I have <strong>to</strong>ld<strong>the</strong>m that I am working at a shop in A<strong>the</strong>ns. My closerelatives know it <strong>and</strong> some of <strong>the</strong>m were moresupportive after I got sick than before. In my village Idon’t want <strong>the</strong>m <strong>to</strong> know about it because I don’t wantpeople <strong>to</strong> say things about me”. Diana.064 ✜ Global Forum Update on Research for Health Volume 4
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