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My Battle with Merkel Cell Cancer

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sessions, and for the first time since I came to Fresno in 1976, I won the Presidents<br />

Trophy for winning the most masterpoints. Thanks to my partners, Bert Rettner and Mark<br />

Stern.<br />

So how am I doing? I feel pretty good these days, but my shortness of breath has not<br />

improved. The worst symptom of this is inability to speak very long <strong>with</strong>out coughing. This<br />

bothers me most when working, as I spend all the time dictating reports into Dragon 10<br />

Medical. The software does a good job of ignoring my coughing. I am using cough drops<br />

and taking cough syrup at night, and have few symptoms when not speaking.<br />

<strong>My</strong> neuropathy has not changed.<br />

I will see Dr. Flam next Tuesday and will discuss possible treatment <strong>with</strong> corticosteroids.<br />

Posted by David Shuster at 07:25PM (-07:00)<br />

Not Much New, So I Tell the Story of Sadie<br />

Cohen<br />

Sunday, November 20, 2011<br />

It has been a while since I posted to this blog. That is because there has not been much<br />

change. I did visit Dr. Flam on November 9. <strong>My</strong> labs were unchanged, and my chest Xray<br />

showed little change. because of continuing cough and shortness of breath, he<br />

ordered a CT scan of my chest. That was done on Nov 10. I looked at the images but do<br />

not have them to post. I would describe the findings using a term I coined. "Mixed<br />

Change". That is, somewhat better in the right upper lung annd somewhat worse in the<br />

right lower lung and the same on the left. No change was seen in my posterior<br />

mediastinum, the site of the only known tumor, which I hope is totally inactive. No liver<br />

metastases are seen. I will get the full report when I see Dr. Flam on Wednesday. I still<br />

have shortness of breath and a cough, The cough responds well to<br />

Hydrocodone/homatropine cough syrop. It allows me to dictate reports <strong>with</strong> little<br />

interruptions for a coughing break. Drug Info<br />

This is a narcotic <strong>with</strong> potential for addiction. Apparently the Homatropine is added to<br />

stop people from taking too much at a time. It also helps me sleep all night as the<br />

homatropine prevents bladder spasm. Constipation is a side effect but so far has not<br />

been too much of a problem. <strong>My</strong> other symptoms are stable. Dry mouth, arm and leg<br />

numbness and hearing loss have not changed and are not too debilitating.<br />

I have been working half days at Kaiser and even worked a full day at Sierra Imaging.<br />

I was taking Vitamin B Complex, tablets from CVS. On my CT scan, I could see the<br />

tablets intact in my colon. Needless to say, they could not be very effective in treating<br />

peripheral neuropathy.<br />

We have an addition to the family, sort of. Our oldest granddaughter Eva has a baby<br />

(half) brother born yesterday to her mother and stepfather.<br />

Since I have no more news, I will tell the story of a patient from my internship who I will<br />

call Sadie Cohen.<br />

Sadie was an elderly Jewish diabetic being treated for an ulcer in her foot, <strong>with</strong> the hope<br />

of preventing an amputation. She had Alzheimer's disease and was in pain She would lie<br />

in bed constantly moaning oy-oy-oy-oy-oy as only an old Jewish lady could. It was my job<br />

to keep her IV running and she would be constantly pulling at it until she dislodged it.<br />

There were no ports or PICC lines back then. They were calling me at all times to restart<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

103

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