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My Battle with Merkel Cell Cancer

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108<br />

asked what was going on and we told her. She made the decision. We had to let the<br />

mouse go. We argued, but my mother was the boss. So we opened the minnow trap, and<br />

the mouse scurried away. He didn't get very far, as the dog, who was watching this <strong>with</strong><br />

some interest, pounced on the mouse, and <strong>with</strong>in a heartbeat, the mouse was dead.<br />

There is a lesson to be learned from this. Men may be cruel, but nature can be just as<br />

cruel.<br />

Posted by David Shuster at 04:10PM (-08:00)<br />

Another Complication of Radiation Treatment<br />

Wednesday, January 11, 2012<br />

As I reported in my previous post, I am having difficulty eating. I get spasms of pain which<br />

appear to come from my lower esophagus. The pain is worse later in the day, and is<br />

worse <strong>with</strong> eating dry solid foods. Liquids go down better, and in the morning, I can eat<br />

my Rice Krispies <strong>with</strong> raisins, banana and blueberries <strong>with</strong>out these spasms. Pudding,<br />

ice cream and yogurt are OK. Today, I called Dr. Flam and asked to see him. He had<br />

come back from vacation earlier than I thought, and I was there at 4:00 PM. The office<br />

was surprisingly busy. I got my port flushed and had labs which are stable. I have not lost<br />

weight. A chest X-Ray showed improvement from the previous, and I was better able to<br />

take a deeper breath. I realized that in that respect, I am significantly improved. Dr. Flam<br />

is quite certain that this is not due to recurrence of <strong>Merkel</strong> <strong>Cell</strong> carcinoma but is a stricture<br />

of the esophagus due to radiation. He called my gastroenterologist, Dr. Robert Lewis to<br />

set up an appointment for an esopho-gastroscopy and dilatation of the stricture, but it<br />

was too late to reach him. I expect this to be scheduled tomorrow, and hopefully to be<br />

done by early next week. In the meanwhile, I am to have only liquids and "pureed food".<br />

"No bagels and lox" in the words of Dr. Flam.<br />

Stricture of the esophagus is a relatively common complication of radiation treatment and<br />

usually responds well to balloon dilatation. The major complication of rupture of the<br />

esophagus is relatively rare, less than 1% for all strictures, but greater for radiation<br />

strictures. The procedure may have to be repeated more than once as the stricture has a<br />

tendency to recur.<br />

I think it will be an out-patient procedure.<br />

It is of interest that I am feeling otherwise quite well and am functioning at a good level.<br />

I will report a follow-up when I have more information.<br />

Posted by David Shuster at 07:39PM (-08:00)<br />

Dilatation for Today, Almost an Emergency<br />

Friday, January 13, 2012<br />

This morning, after taking my Hydrocodone-Homatropine cough syrup and 2 small pills, I<br />

tried a mouthful of well chewed Rice Krispies. It would not go down, In fact, for the next<br />

45 minutes, nothing would go down, not even my own saliva and I was having severe<br />

pain. There were lots of oral secretions which I had to spit out, and <strong>with</strong> coughing, some<br />

of the cereal came back up. I could not even drink my coffee.<br />

This is significant progression of symptoms. Yesterday, I was able to eat a whole bowl of<br />

cereal <strong>with</strong>out much discomfort.<br />

I attribute this to flow dynamics. The flow through a tube is related to the 4th power of the<br />

diameter. Reduce the diameter by 1/2, and the flow rate is reduced to 1/16.<br />

The symptoms now have abated somewhat.<br />

<strong>My</strong> appointment <strong>with</strong> Dr. Lewis is for 3:00 PM but he has thankfully moved me up to 1:00<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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