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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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named after me) from Edmonton, my brother Jon, visiting from Gainesville Florida and my<br />

brother Robert, his daughter Andrea, her husband Ben, and granddaughter Alex.<br />

In addition, it will be my 45th medical class reunion and my 50th undergraduate reunion<br />

at McGill.<br />

These can not be missed.<br />

It seems like only yesterday, and yet also like an eternity ago when, on a visit to Montreal,<br />

I put my hand on a spot right in front of my ear and fount a mass. It was only 17 months<br />

ago. I have been through two major surgeries, 3 episodes of radiation treatments, 2<br />

courses of chemotherapy, a port insertion, innumerable blood draws, and about half a<br />

dozen sophisticated imaging studies. These are all further documented in my earlier blog<br />

posts.<br />

I continue to fight!<br />

Posted by David Shuster at 03:29PM (-07:00)<br />

Radiation Pneumonitis, No Evidence of<br />

<strong>Cancer</strong>!!!!!<br />

Friday, October 07, 2011<br />

Today I spoke <strong>with</strong> Dr. Nghiem. He told me that <strong>Merkel</strong> <strong>Cell</strong> Carcinoma looks like any<br />

other malignancy when it spreads to the lungs, round smooth nodules. It typically goes to<br />

the lungs only late in the disease when there is cancer which is widespread. He will look<br />

at the images on my last blog and have Dr, Parvathaneni look at them also and get back<br />

to me. I so much appreciate his responsiveness.<br />

I called Dr. Flam this morning and he agreed to see me on an urgent basis. I had labs<br />

done and my counts are improving. HGB is up to 12.3, WBC up to 5500. We did a<br />

baseline chest X-Ray and I must say that it looked almost normal. It amazes me how<br />

much more we see on a CT scan of the chest than on a routine X-Ray. We reviewed my<br />

PET/CT images. He examined me and I went for a walk while measuring my O2 Sat. This<br />

is a simple measurement <strong>with</strong> a device clipped to the finger which measures the<br />

percentage of oxygen in the blood compared to the maximum. It should run in the high<br />

90's. It was 95% at rest and on walking, went up to 97%. These results indicate good<br />

function.<br />

Dr. Flam has come to the conclusion that this is radiation pneumonitis, and the<br />

predominant area of involvement is the area which was irradiated. There are other areas<br />

involved also which he says is not uncommon. It is more common when chemotherapy is<br />

given at the same time as I had. The treatment if symptoms require it is <strong>with</strong> steroids. We<br />

would like to avoid steroids because of the immunosupressive effect which is not<br />

desirable <strong>with</strong> MCC.<br />

He is fine <strong>with</strong> me sticking <strong>with</strong> my plans to go to Montreal and I will bring pills for a<br />

course of steroids <strong>with</strong> me in case they are needed. He suggested I delay my flu shot<br />

until I get back but wants me to wear a mask on the airplanes.<br />

I have to thank Dr. Flam for seeing me in the middle of an exceedingly busy day.<br />

Bottom Line: No Evidence of <strong>Cancer</strong>. As good a result as I could hope for. Radiation<br />

Pneumonitis. A temporary inconvenience.<br />

On to Montreal.<br />

Posted by David Shuster at 02:53PM (-07:00)<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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