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My Battle with Merkel Cell Cancer

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diminished sense of taste. We received a gift basket of Canadian chocolate bars, maple<br />

sugar and shortbread cookies from Gary, Dana and the girls. The Nestle Crunch bars<br />

tasted almost as good as I remember them.<br />

I have been feeling pretty good this past week, so I am not looking forward to round 3. It<br />

starts <strong>with</strong> labs and an examination by Dr Flam. <strong>My</strong> hemoglobin remains at 11 grams. <strong>My</strong><br />

WBC are 9,900 again normal and my platelets are 166,000. This is also normal. So far I<br />

have tolerated everything well, <strong>with</strong> only complaints of dry mouth, decreased taste and<br />

some tenderness of my gums. No hair loss although the hair on my head and my beard<br />

are growing only very slowly. I guess I got the buzz cut prematurely. I don't think I am<br />

significantly worse today than I was after round 1.<br />

We arrive early, at 8:00 AM. I am done by 3:30 PM.<br />

I am not uncomfortable during the chemo although I am running to the bathroom every 20<br />

minutes towards the end.<br />

About a week ago, Bert, my bridge partner and good friend suffered a stroke. He lost the<br />

ability to speak, but no other functionality. He was in the hospital for a few days and is<br />

expected to make a full recovery.<br />

I spoke <strong>with</strong> him on Saturday and he was quite lucid, although he was often still unable to<br />

find the words he needed. We had finished first and second the two last times we played<br />

bridge. I played <strong>with</strong> Jill Friday and we won. I played <strong>with</strong> Byron yesterday and we won.<br />

I will wait to play bridge again probably until a week from Friday, hopefully <strong>with</strong> Bert.<br />

Our dear friend Bonna came for breakfast on Saturday and she brought us a chicken<br />

noodle cheese casserole which we will have for dinner tonight.<br />

Eva slept here Sunday night. She will have her hair cut tomorrow and donated to Locks<br />

of Love to make wigs for cancer patients in my honor and also in honor of her<br />

grandmother on her mother's side who died of lymphoma and/or breast cancer.<br />

We had dinner <strong>with</strong> our good friends Carol and Larry Saturday and then they came here<br />

to play some bridge. I see significant improvement in their game.<br />

That's the news from here. We are trying to keep busy, but I am not looking forward to<br />

the next week.<br />

Go Giants.<br />

Posted by David Shuster at 05:19PM (-07:00)<br />

<strong>My</strong> Hair's Still There!<br />

Wednesday, June 15, 2011<br />

<strong>My</strong> tongue is so dry<br />

To my palate it's stuck<br />

And the taste of food<br />

Makes me want to upchuck<br />

But my hair's still there.<br />

I get so tired<br />

I could sleep on nails.<br />

<strong>My</strong> skin gets so dry<br />

It's as if I had scales.<br />

But my hair's still there.<br />

For a week, I feel<br />

Like I want to throw up<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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