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My Battle with Merkel Cell Cancer

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60<br />

the measurement is 4.5 cm.<br />

<strong>My</strong> next step will be to confer <strong>with</strong> Dr. Nghiem and <strong>with</strong> Dr. Flam about chemotherapy.<br />

The more I read about it, the more terrified I become.<br />

Here is a link to Cisplatin side effects<br />

These are the less common Cisplatin side effects (occurring in 10-29%) for patients<br />

receiving Cisplatin:<br />

Peripheral neuropathy: Although less common, a serious side effect of decreased<br />

sensation and paresthesia (numbness and tingling of the extremities) may be noted.<br />

Sensory loss, numbness and tingling, and difficulty in walking may last for at least as long<br />

as therapy is continued. Neurologic effects may be irreversible.<br />

High frequency hearing loss. Ringing in the ears.<br />

Loss of appetite<br />

Taste changes, metallic taste<br />

Increases in blood tests measuring liver function.<br />

Death from the therapy in about 2% of patients.<br />

The following Cisplatin side effects are common (occurring in greater than 30%) for<br />

patients receiving Cisplatin:<br />

Nausea and vomiting. Nausea may last up to 1 week after therapy. Anti-nausea<br />

medication is given before the infusion, and a prescription is also given for use after.<br />

Kidney toxicity. Effects on kidney function are dose related, observed 10-20 days after<br />

therapy, and are generally reversible.<br />

Blood test abnormalities (low magnesium, low calcium, low potassium)<br />

Low white blood cells (this may put you at increased risk for infection)<br />

Low red blood cells (anemia)<br />

This will be a major undertaking and I will have to balance the potential gain <strong>with</strong> the risks<br />

of spending my remaining days in misery.<br />

I would be very much interested in hearing from people who have undergone the<br />

treatment as to in their personal experience, it was worthwhile.<br />

Posted by David Shuster at 09:05PM (-07:00)<br />

A Plan<br />

Tuesday, April 05, 2011<br />

I had a long conversation <strong>with</strong> Dr. Nghiem today. He is not against my having chemo, but<br />

is also not strongly in favor of it. We discussed the pros and cons, and I have come to the<br />

conclusion that it is worth the risk and misery to try to defeat this monster of a disease.<br />

Judy has come up <strong>with</strong> a great idea. it is not an urgent matter to begin the chemo<br />

immediately. Unless Dr Flam is able to convince me otherwise, I will visit my mother in<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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